Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Have A New Problem Now

mytummyhurts

Recommended Posts

mytummyhurts Contributor
mytummyhurts
Posted

I don't think this is celiac related. But I wanted to ask you guys if you have had this or know what it could be.

A few days ago I started having a problem swallowing and it keeps getting worse. It feels like in the bottom of my throat (where my neck meets my body) that something is getting caught or popping about ever other time I swallow. It's really annoying and kind of scary. I'm afraid it will get worse and it may get stuck (I don't even know what it is that's popping though). It's really bad when I lay down, but almost goes away if I elogate my neck before I swallow. Also, if I push on my neck right before I swallow it doesn't happen. Weird. <_<

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

Abby-- Sorry :(

My only input is relux/esophagus issues. Have you ever had any? When I had relux years back, the symptom that sent me to the doctor was trouble swallowing when I was eating. For me, it felt like all the food was getting stuck and building up in my throat. It gave me trouble swallowing/eating. My esophagus was inflamed and swollen b/c of the reflux. I had to get it dialated and take some reflux meds, but after that, I didn't have any issues.

Not sure if this will help you, hope it does girl!

mytummyhurts Contributor
mytummyhurts
Posted
  • Author

I haven't really had nay problems with bad reflux. Sometimes I get heartburn, but not that often and not really bad. The other thing is that I've had really bad sore throats off and on for about 6 months now.

jenvan Collaborator
jenvan
Posted

Sore throat is another possible symptom of reflux. Not that it may be what you have--but it is another symptom of it some have. For me, the swallowing issue was the only symptom.

Saw this---has some ideas on causes for trouble swallowing: Open Original Shared Link

Sounds like you'll have to go to the dr... :( Sorry !

jknnej Collaborator
jknnej
Posted

I have had this problem, too, for a while now.

Yesterday when I had my endoscopy he showed me pictures of my Schatzki's Ring. This is when your esophogus swells up or whatever and it feels like it's hard to swallow.

He dialated mine using a little balloon and I already feel the difference.

You should talk to your GI dr. about this. I don't know if it's related to reflux or not, but he did say that plenty of people have reflux with my symptoms whatsoever.

mytummyhurts Contributor
mytummyhurts
Posted
  • Author
Sounds like you'll have to go to the dr...  :(  Sorry !

NO! I don't want to!

My endoscope thing was done last year, I wonder if nothing in my throat was showing up at that time. Otherwise, I hope they would have said something. I definitely don't want to have that done again. I'm still paying for the last one. <_<

jknnej Collaborator
jknnej
Posted

Did you have a bad experiene with your endo? Mine was pretty easy and now I can swallow better.

Maybe it hadn't developed last year? I don't know how long these things take to form. Mine had only been happening recently.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Eloisa
Guest Eloisa
Posted
I don't think this is celiac related. But I wanted to ask you guys if you have had this or know what it could be.

A few days ago I started having a problem swallowing and it keeps getting worse. It feels like in the bottom of my throat (where my neck meets my body) that something is getting caught or popping about ever other time I swallow. It's really annoying and kind of scary. I'm afraid it will get worse and it may get stuck (I don't even know what it is that's popping though). It's really bad when I lay down, but almost goes away if I elogate my neck before I swallow. Also, if I push on my neck right before I swallow it doesn't happen. Weird. <_<

This is how I found out I had Celiac. I thought it was silly that I couldn't swollow but what would happen first was that I would get chest pains then the next day I couldn't swollow food and if I tried I would gag. When I went to DR. he said it happends when you have so much reflux and all the acid you create irritates the esophogus. My doctor said I probably OD'd on wheat which is exactly what I'd done. I kept thinking it was the beans I was eating thinking they were too heavy but it was the flour tortillas I had eaten.

mytummyhurts Contributor
mytummyhurts
Posted
  • Author
Did you have a bad experiene with your endo? Mine was pretty easy and now I can swallow better.

Maybe it hadn't developed last year? I don't know how long these things take to form. Mine had only been happening recently.

No, it was just expensive. My insurance basically sucks and we ended up having to pay $600 for it. I don't want to have to pay that again!

So it's looking like maybe the reflux thing. So I may have to go to the doctor again. Crap!

cdford Contributor
cdford
Posted

Two questions and possible answers to them:

1- Do you have any muscle or neurological problems from the celiac disease? Muscle spasms in the throat can cause what you are describing. I have them when I get glutened or get too fatigued. I take medication for the spasms since they occur so regularly for me. You may also want to take small bites and chew well. This will help keep you from having that scary feeling that something is stuck and you can't get it to go either way.

2- Do you have any allergic type reactions that might cause the throat to swell? Gluten does this to us as well. Benadryl (or it's stonger relative Vistaril) can help this. It is one of the first ways I know I have been glutened. My tongue feels big and my throat feels clogged up.

jenvan Collaborator
jenvan
Posted

Dang Ab--that stinks with your insurance !! I wish I knew of a better way. The one thing would be to even see your dr and try and reflux med, (or an over the counter), and if this reflux issue is your problem you should start to notice some improvement...

How's it feeling today?

Also, if that is your problem, a few helpful things-- may want to cut out spicy foods (at least for a while), try not to eat an hour or so, at least, before laying down/going to bed, and lastly, elevate the head of your bed several inches. That helps prevent reflux at night. The head of my bed has been on bricks for years !

jknnej Collaborator
jknnej
Posted

Yes, that sucks about your insurance. Why don't you ask your dr. if you could try Nexium for a while. That helps reflux, but it probably won't help if you have a Schatzki's Ring...I think the only answer to that is to have the scope done again.

But it may just be reflux and It could really help you...

mytummyhurts Contributor
mytummyhurts
Posted
  • Author
Two questions and possible answers to them:

1- Do you have any muscle or neurological problems from the celiac disease? Muscle spasms in the throat can cause what you are describing. I have them when I get glutened or get too fatigued. I take medication for the spasms since they occur so regularly for me. You may also want to take small bites and chew well. This will help keep you from having that scary feeling that something is stuck and you can't get it to go either way.

2- Do you have any allergic type reactions that might cause the throat to swell? Gluten does this to us as well. Benadryl  (or it's stonger relative Vistaril) can help this. It is one of the first ways I know I have been glutened. My tongue feels big and my throat feels clogged up.

I haven't had any other muscle or neurological problems. And the problem isn't only when I'm eating, it actually happens less then. Mostly it's just when I'm swallowing my saliva.

It's actually gotten better since I wrote this on here. You know how when you feel sick and then you make a doctor's appt and it goes away. That's kind of what it's like. It's still there, just not as noticeable and doesn't happen as often.

I am really frustrated with my insurane. We pay $2400 a year just to have me covered and even then they hardly even pay for anything. I think it would be a lot cheaper to not have insurance at all and just pay for stuff out of pocket, since I'm basically doing that anyways. I'm just afraid about not having insurance if I have to go to the hospital or get a major illness or injury. So I kind of have to have it.

jenvan Collaborator
jenvan
Posted

Ab--depending on what you want for insurance, there are other options. If you only want coverage for major expenses, you can get a major medical policy, it is far less a month than a full coverage policy. However, it won't pay for drs visits or prescriptions.

mytummyhurts Contributor
mytummyhurts
Posted
  • Author
Ab--depending on what you want for insurance, there are other options. If you only want coverage for major expenses, you can get a major medical policy, it is far less a month than a full coverage policy. However, it won't pay for drs visits or prescriptions.

I should look into that because what we are paying right now for the coverage we are getting is just silly. <_<

jenvan Collaborator
jenvan
Posted

my mom's an HR VP (knows ALL about insurance!), so if you want more insurance details on that coverage i mentioned, i should be able to get you some more... help you know what to look for...

mytummyhurts Contributor
mytummyhurts
Posted
  • Author

Thanks, Jen. I would be interested to know how much it costs to get insurance that covers just emergencies and serious illnesses. If that is possible.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
    3. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    4. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    5. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.