Active Celiac & 3 Months gluten-free. Pill Camera

[vbecton]

Got my pill camera results, so to speak. My GI nurse sent an email saying the results were in for my latest blood work and pill camera, gave me an appt to come in. But, I'm far too impatient to wait for my appt to ask questions...HELLO!

All she said in the email was "Pill camera shows active Celiac" and gave a bunch of instructions on vitamins, minerals, amino acids, and staying gluten-free. My doctor wanted to do the pill camera because he said some Celiacs will show zero small intestine issues, but will show damage beyond that. Well, mine did. Problem is, I'm 3 months gluten-free. My doctor also suspected refractory celiac prior to the pill camera. I'm experiencing more diarrhea than ever. Also, the nurse mentioned in the email that antibiotics were being called in for bacterial overgrowth. Would bacterial overgrowth cause D? Also, should I be taking super hero probiotics? I'm taking some.

Questions: What do you guys make of the pill camera findings? They seem accurate based on what I'm feeling!!! LIKE POOP! What is the best diet for bacterial overgrowth? Is it the FODMAP? I started that 3 days ago. I asked my nurse to send me all my results by mail.

Thanks guys for all your continued help!!

[Lisa]

Got my pill camera results, so to speak. My GI nurse sent an email saying the results were in for my latest blood work and pill camera, gave me an appt to come in. But, I'm far too impatient to wait for my appt to ask questions...HELLO!

All she said in the email was "Pill camera shows active Celiac" and gave a bunch of instructions on vitamins, minerals, amino acids, and staying gluten-free. My doctor wanted to do the pill camera because he said some Celiacs will show zero small intestine issues, but will show damage beyond that. Well, mine did. Problem is, I'm 3 months gluten-free. My doctor also suspected refractory celiac prior to the pill camera. I'm experiencing more diarrhea than ever. Also, the nurse mentioned in the email that antibiotics were being called in for bacterial overgrowth. Would bacterial overgrowth cause D? Also, should I be taking super hero probiotics? I'm taking some.

Questions: What do you guys make of the pill camera findings? They seem accurate based on what I'm feeling!!! LIKE POOP! What is the best diet for bacterial overgrowth? Is it the FODMAP? I started that 3 days ago. I asked my nurse to send me all my results by mail.

Thanks guys for all your continued help!!

Hi! I just wanted to say that three months on a gluten free diet, is way, way too premature to diagnose refractory sprue. The diet is a major lifestyle challenge, and if many were honest, it takes months to master.

The pill-cam is great to check for damage and to check for other intestinal abnormalities, aside from Celiac. It, obviously, cannot take biopsies. But it can be a good diagnostic tool for Celiac.

I would recommend, if you have not already done so, keep a food diary. Include all your meds, vitamins, shared equipment, lotions, makeup, etc..

I would also eliminate dairy as well. With Celiac, dairy can also blunt the villi, as can soy.

Refractory Sprue is a very serious, lifelong condition....don't let anyone rush you to that conclusion.

[vbecton]

Thanks Lisa for your info! I've been dairy free since going gluten-free, I'm also soy, corn, egg free and doing the FODMAP (low fructose) diet. I also, naturally eat pretty much lean meat, veggies, fruit, oils and nuts...plus my protein shakes. And that's IT. That's why this is puzzling. I couldn't eat cleaner if I tried. Plus I'm an organic snob...a food snob in general . I'm getting sicker instead of getting better. All new pots/pans/tupperware, haircare, lotions, etc... It's so frustrating. I agree that it's probably premature for Refractory, but there is definitely something going on. I'm a fixer. If there is a problem, I cannot rest until it's fixed

I keep a food diary, I use the livestrong.com (myplate) to record everything I eat and take. This is a great tool by the way!!!

So, it's certainly possible to have visible intestinal damage 3 months out? What else could the pill camera see? Does it detect colitis, or diverticulitis type things?

[Lisa]

Thanks Lisa for your info! I've been dairy free since going gluten-free, I'm also soy, corn, egg free and doing the FODMAP (low fructose) diet. I also, naturally eat pretty much lean meat, veggies, fruit, oils and nuts...plus my protein shakes. And that's IT. That's why this is puzzling. I couldn't eat cleaner if I tried. Plus I'm an organic snob...a food snob in general . I'm getting sicker instead of getting better. All new pots/pans/tupperware, haircare, lotions, etc... It's so frustrating. I agree that it's probably premature for Refractory, but there is definitely something going on. I'm a fixer. If there is a problem, I cannot rest until it's fixed

I keep a food diary, I use the livestrong.com (myplate) to record everything I eat and take. This is a great tool by the way!!!

So, it's certainly possible to have visible intestinal damage 3 months out? What else could the pill camera see? Does it detect colitis, or diverticulitis type thi

It might be a short time for your results. Please post and let us know, or how we can be helpful.