Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten/body Aches...

tweeks2010

By tweeks2010
in Coping with Celiac Disease

Recommended Posts

tweeks2010 Apprentice
tweeks2010
Posted

Hey, I am currently working at a grocery store with some bakery shifts. Just wondering if anybody else gets body aches when they are around gluten. Almost everytime I am working in there...I am constantly aching all over.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Gluten will flare both my fibro and my arthritis. When you are in the bakery you are breathing it in and it is getting into your system that way. Can you get shifts somewhere other than the bakery? Celiac is covered under the ADA so if you are diagnosed you do have the right to request that you not be ordered to work in the bakery. I wouldn't make a stink about it but just tell the managers about the problem and see if they will find a way you can work those shifts in a different dept. Hopefully they will be understanding.

brendab Contributor
brendab
Posted

Wow, I never thought about that before!

What you describe is what I get when I am PG and it's horribly painful, like somebody put a blanket of pain over me and it washes in waves. Is this what you are describing? It makes me wonder if my gluten intolerance gave me worse symptoms while PG? I think I ought to make a new thread LOL I don't want to hijack yours :)

tweeks2010 Apprentice
tweeks2010
Posted
  • Author

Yea the aches just kinda come and go in waves...all over the body...all day long. I have been doing alot of bakery shifts though. I can ask my boss to not put me in the bakery...i know he will be understanding of that...but I don't have a positive biopsy or blood test...just based on my symptoms and my reaction to going gluten free, the docs says i am celiac. The only way for me to get a positive test is to get sick again...and there is no way in hell will i do that again. I got glutened about a week or so ago...from a little bit off of a water bottle..I was sick for 4 days with stomach cramps. Not fun.

Anyways, they doctor said I had fibro before I had even come to celiac..so I never thought about the fibro as a seperate thing from celiac...i guess they would come hand in hand though right.

I am in a situation where I am waiting for my mortgage approval...then I can tell the boss now more bakery shifts. It kind of sucks though...I like making the cakes and stuff...and They love me in there too.. I am one of the best workers. I guess it's a small price to pay to be healthy.

ravenwoodglass Mentor
ravenwoodglass
Posted

Yea the aches just kinda come and go in waves...all over the body...all day long. I have been doing alot of bakery shifts though. I can ask my boss to not put me in the bakery...i know he will be understanding of that...but I don't have a positive biopsy or blood test...just based on my symptoms and my reaction to going gluten free, the docs says i am celiac. The only way for me to get a positive test is to get sick again...and there is no way in hell will i do that again. I got glutened about a week or so ago...from a little bit off of a water bottle..I was sick for 4 days with stomach cramps. Not fun.

Anyways, they doctor said I had fibro before I had even come to celiac..so I never thought about the fibro as a seperate thing from celiac...i guess they would come hand in hand though right.

I am in a situation where I am waiting for my mortgage approval...then I can tell the boss now more bakery shifts. It kind of sucks though...I like making the cakes and stuff...and They love me in there too.. I am one of the best workers. I guess it's a small price to pay to be healthy.

If your doc says your celiac you have a diagnosis. I was really surprised when my fibro and so many other things went away after I had been gluten free for a few months. I never thought everything was connected to the extent that it was. I hope your pain goes away for good also.

Aphreal Contributor
Aphreal
Posted

My hip joint aches and lower back aches were the first to go when I went gluten-free. I also have shoulder arthritis and I haven't had any pain from that either. Thank GOD! The hip thing was about to do me in! I would try to move. Who wants to be achy all day?

Tiff

tweeks2010 Apprentice
tweeks2010
Posted
  • Author

My hip joint aches and lower back aches were the first to go when I went gluten-free. I also have shoulder arthritis and I haven't had any pain from that either. Thank GOD! The hip thing was about to do me in! I would try to move. Who wants to be achy all day?

Tiff

I just had to say that we have the same name...LOL..my hip does the same thing too. Now that I think of it...I went gluten free...then started working in a bakery then all of my joints go out all the time and are aching...neck is ALWAYS tight...ect. It has actually been getting worse in the last few weeks. Hmm...lol

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


precious831 Contributor
precious831
Posted

Hey, I am currently working at a grocery store with some bakery shifts. Just wondering if anybody else gets body aches when they are around gluten. Almost everytime I am working in there...I am constantly aching all over.

I have fibromyalgia and also arthritis and it flares up when I'm glutened(among other things. When I feel glutened I feel like a truck just run me over, almost like I have the flu. Achy joints, back pain,neck pain, just pain all over. My joints also swell.

I hope you can find some relief.

precious831 Contributor
precious831
Posted

Btw I forgot to say, my GI doctor said that fibromyalgia, interstitial cystitis(this is not UTI) and celiac usually go together. I have all three unfortunately. They flare up when I get glutened.

SueQueBlue Newbie
SueQueBlue
Posted

I have all 3 as well. I also was dx'd with Irritable Bowel, but I am hoping that is really just Celiac, and the IBS goes away. Actually I would like all of it to go away, and for the Celiac to be tamed, but I'm a newbie, so I don't know what will happen as time goes by.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Hmart
      - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end...
    2. trents
      - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So...
    3. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

      I have a lot to learn! Thank you
    4. DebJ14
      - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies. I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved. Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. ...
    5. Hmart
      - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative. I have gone gluten free. In week 1 I had a flare-up that was similar to...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,927
    • Most Online (within 30 mins)
      7,748
    Lindafink
    Newest Member
    Lindafink
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Hmart
      Is this celiac?

      By Hmart · Posted

      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Is this celiac?

      By trents · Posted

      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      I have a lot to learn!  Thank you
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      Is this celiac?

      By Hmart · Posted

      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.