Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy Reactions!


Marz

Recommended Posts

Marz Enthusiast

So the past two weeks I was struggling with typical mild glutening symptoms. I was desperately trying to figure out what was causing it, what could possibly contain gluten... possibly the gluten free flours I was using... or some nuts that got CC'd?

Now I'm starting to wonder, after reading that soy can cause similar symptoms. After my "gluten challenge" this week, I realised my initial symptoms are identical to that of my "soy challenge" - stomach pain, loss of energy, nausea. I think I may be sensitive to soy as well...

And this whole week I've been drinking a soy/corn mix for a top-up when I'm hungry, think that's my connection right there.

Anyway, thought I'd share that revelation, for what it's worth. After being told by my own nutritionist that "lots of celiacs are sensitive to soy as well", I'm surprised it took until now for my to realise this.

So any research done on soy intolerance? Is it the same mechanism/as damaging as gluten?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sandsurfgirl Collaborator

Soy gives me writhing stabbing pain in my gut and my nose gets all stuffy and swollen. I was drinking soymilk daily before I got diagnosed with celiac. Cut soy at the recommendation of this board and then when I challenged it YIKES! The pain was so bad I writhed in bed all night long.

Accidentally ate soy flour in some gluten free cookies and thought I was going to pass out from the pain.

bridgetm Enthusiast

I got that same stabbing pain. It started out mild, but the more I ate the worse it got. One time I felt like there was a twisting knife just above my waist line.

I cut out all those gluten-free snacks that are loaded with soybeans and by-products like oil, lecithin, etc and noticed a vast improvement. Now I do okay with small amounts like Tostito's tortilla chips which are made with soybean oil (my general rule of thumb is that if there are more than 3 "and/or's" listed under vegetable oil in the ingredients I can probably have a bite or two. It is best to just avoid it all though.

Some day I will try adding soy back to my diet (some research says soy lecithin should not cause a reaction in those who are soy-sensitive; I disagree now, but I may test that theory in the next few months) but for now I'm enjoying not having a knife in my gut. Just keep reading those labels.

NorthernElf Enthusiast

Wow, I've been experiencing the same thing. I've noticed that when I go away, no matter how careful I am, I seem to get sick...and I bring a lot of my own food. Just got back from a one week camping trip where I switched my usual breakie for cereal & Silk soy milk and had stomach aches (D, etc.) all morning until I stopped eating that breakie the last couple of days. Before I left I had made a couple of stir fries with Bragg's Aminos (soy based) and had headaches and the like. *Ding* a light went off - I'm avoiding soy at the moment, just bought some Almond Breeze (haven't tried it yet).

Anyway, I'll see how it goes and maybe try a little soy back in later & see what happens. Darn it !!!!!

NorthernElf Enthusiast

Wow, I've been experiencing the same thing. I've noticed that when I go away, no matter how careful I am, I seem to get sick...and I bring a lot of my own food. Just got back from a one week camping trip where I switched my usual breakie for cereal & Silk soy milk and had stomach aches (D, etc.) all morning until I stopped eating that breakie the last couple of days. Before I left I had made a couple of stir fries with Bragg's Aminos (soy based) and had headaches and the like. *Ding* a light went off - I'm avoiding soy at the moment, just bought some Almond Breeze (haven't tried it yet).

Anyway, I'll see how it goes and maybe try a little soy back in later & see what happens. Darn it !!!!!

julandjo Explorer

(some research says soy lecithin should not cause a reaction in those who are soy-sensitive; I disagree now, but I may test that theory in the next few months)

I too thought I was fine with soy lecithin. I'm down to so few safe foods and yet was still having constant chest pain (a cardiologist ruled out any cardiac problems). I switched my omega supplement, which contained soy lecithin in the capsule shell, and voila! the chest pain is *completely* gone. I tried a small piece of dark chocolate a few days ago. Soy lecithin was the only questionable ingredient, and whammo - instant chest pain. This blows me away! So much for soy lecithin being safe, at least for me!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,132
    • Most Online (within 30 mins)
      7,748

    Albert1013
    Newest Member
    Albert1013
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NoriTori
      @Scott Adams  Sure, Any and all information is welcome. Also the only was to convince my family to get tested is to get tested myself and conclusive answers. Very stubborn lot.  
    • trents
      Understood. It's very anxiety-provoking when you don't know what you are dealing with and don't know if you are attacking it correctly.
    • Heatherisle
      I have heard of NCGS, but everything is just so confusing!!! Just unsure of things as her EMA test was negative but TTG was positive @19u/ml(lab range 0.0-7.0).Apparently she also has occasional bubble like blisters in between her fingers, don’t know if that’s significant. She is triallling gluten free as suggested by the gastroenterologist after her endoscopy. Keep getting different answers when typing in her symptoms etc. Some sites say it can be possible to have coeliac, even with a negative EMA . It’s so frustrating and her anxiety levels are through the roof. I know she’s hoping it’s coeliac which is weird I know!!! But if it’s not it just means more tests. Sorry to ramble on!!!
    • sillyac58
      I ame looking for rice flakes that aren't cross contaminated to use in making oat free granola. Does anyone know of a brand? Also I see that some people just used puffed rice cereal, but it seems like that wouldn't be sturdy enough to withstand the mixing without crumbling. Any ideas out there? Thanks!  
    • Scott Adams
      There isn't because there is currently no gluten-free labeling requirement for prescription medications. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...