Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Glutened By A Friend!


Twister2

Recommended Posts

Twister2 Contributor

Hey all, anyone else ever been accidently glutened by a friend??? We had friends over for dinner, and my husband was making homemeade burgers. A friend of ours was mixing the meat up and put a beer in there to add flavor. I ate the burger and have been sick for two days and itching like crazy! I told my husband the next day that I couldn't figure out what I had eaten, but I felt terrible and he said "oh yeah, our friend put a beer in the hamburger." I was so mad even though neither of them meant to make me sick. My hubby said "well it was just beer, I thought it was fine" Sheesh.....it's like beer is its own food group or something!!! :huh:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast
Hey all, anyone else ever been accidently glutened by a friend??? We had friends over for dinner, and my husband was making homemeade burgers. A friend of ours was mixing the meat up and put a beer in there to add flavor. I ate the burger and have been sick for two days and itching like crazy! I told my husband the next day that I couldn't figure out what I had eaten, but I felt terrible and he said "oh yeah, our friend put a beer in the hamburger." I was so mad even though neither of them meant to make me sick. My hubby said "well it was just beer, I thought it was fine" Sheesh.....it's like beer is its own food group or something!!! :huh:

:o:o Just beer..I would have said o next time I'll add just a little bit of rat poison...just a little bit..see if thats ok for you. :lol:

I have been glutened by my friends before. I hope you feel better soon

luvs2eat Collaborator

That rat poison example is a really good illustration to explain the gluten-free diet...

It's a pain to have to ask all the time what's in stuff... cause it seems to me 9 times out of 10, there's something in stuff that I can't have when we're at friend's... and it makes THEM feel so bad.

I hope you feel better soon too!!

jenvan Collaborator

Ugh! That's stinks! I'm sorry! So many times our friends don't really get the long term consequences of being glutened. Don't be afraid to be honest and decline even if you are suspicious. Maybe you'll have to give them a long lists of non gluten-free foods... I had a friend recently say she was going to bake me a gluten-free surprise for a cook out we were having. She is sweet, but not detail-oriented, so I called her back later and mentioned contamination etc, and that I wasn't really comfortable with the idea. Well, it turned out she made gluten-free chocolate brownies and remembered later I can't eat chocolate !! See-attention to detail, she knows I can't eat chocolate, and forgot :) It's always good to remember our health is more important than trying to be nice...not that we can't decline nicely of course ! Hope you feel better soon !

Carriefaith Enthusiast
It's always good to remember our health is more important than trying to be nice...not that we can't decline nicely of course!

That's so true! I have people make stuff and say I "can" eat it and sometimes I do not eat it. It's not that I don't like them... it's just that they don't always know how careful they have to be!

tarnalberry Community Regular

I feel safe if a friend who is making me something asks about pretty much every last ingredient - even an "obvious" one. I don't feel safe if the person asks no questions at all. :-)

As for the beer... I'd cut them a bit of slack - most people don't know what goes into beer, and a lot who have a clue might only say hops. Lesson learned for them.

skbird Contributor

Yeah, I feel bad about making friends feel bad about not having anything I can eat. I have this one friend who keeps telling me that she asks for a list of what to avoid but I haven't had time to sit down with her yet to explain so I haven't given her one for that reason. I instead just bring things I can eat with me.

But you guys are right, it's more important to be safe for yourself than to not hurt someone else's feelings. Just hard trying to figure the best way for some people...

Stephanie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

my sister is one of those not so detail oriented people... she tries really hard to make gluten free things that I can eat, but inevitably she puts something in without thinking about it (like flour to thicken the sauce) or uses a seasoning without checking it first. I know it hurts her feelings if I won't eat anything she makes but after being accidentally glutened by her on more than one occasion, I just can't take a chance anymore. I tried telling her, just make what she wants to make, don't worry about trying to make it gluten free, that I'll fend for myself. She really wants to make something for everyone that my daughter and I can eat as well, but she just gets distracted too easily. (like the time she iced all of my gluten-free cupcakes that I made with the same icing and crumb filled knife that she had just used to ice all of the non gluten-free cupcakes)

louie Newbie

I've been glutened by well meaning friends, especially when I was first diagnosed, I've even had friends buying food that they think is gluten free for me and then I'm apologsing for not being able to eat it which is embarressing, but at the end of the day it's my stomach thats going to ache, not thiers.

I ended up just telling people that it's a very complicated diet , i can basically only eat plain meat, rice vegetables and fruits with no sauces/ dressings, and this seems to have worked well with my friends

I just hate it when I go somewhere and what I can and can't eat becomes the main topic of conversation, I'm someone who hates being the centre of attention at the best of times and sometimes people just start asking questions and coming up with all kinds of useless advice and recipes that are not gluten free, suddenly everyones an expert of celiac!

I've become good at changing the topic when this happens.

I have one freind who I will take food from she is Italian and used to cook for a resaturant and her food is FANTASTIC!!

she makes everything from scratch (even stock!) and is fanatical about getting my food gluten free.

In my last year of uni when I was going crazy trying to finish my hons dissertation on time, she arrived at my house with 2 weeks worth of frozen gluten free Italian meals :D

marycubs Rookie

Okay - just to add a little humor to our gluten free lives:

when I read the topic "I've been glutened by a friend"... the Rollings Stones song "I'm just waitin on a friend" came to mind. :lol:

I bet there are alot of songs we can play with -

To the tune of "Born Free"... (for all you age 40+ posters):

"Wheat Free...

though pizza surrounds us...

our hotdogs are bunless ...

Wheat Free...

we must continue to be"

:lol:

Guest Viola

Ahhh, Mary that is funny :lol: We do need a sense of humour around here.

I even try and discourage friends from buying gluten free products. For one thing, they usually buy something that is if maybe edible, pretty bland and boring. Then when I leave they are stuck with this awful expensive stuff. We spend a lot of time trying out and finding 'good' gluten free products, and know what to look for. So I keep telling them to please not waste any money on a gluten free product, when we go to play cards, or visit, I'll bring my own. And of course they are surprised that things like Lays Stax can be gluten free :lol:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.