Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Insomnia


bincongo

Recommended Posts

bincongo Contributor

I am a new Celiac of 6 weeks. I have been on Thyroid medicine for over a year. I am thinking it is my thyroid medicine causing my insomnia and sometimes hyperactive during the day so I have tried decreasing my thyroid medicine a little until I get my blood work done in a month. Maybe it has helped with the daytime feelings but I get very little sleep at night. Is this part of the healing process of Celiac or the diet or both.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Seitan-Is-Evil Newbie

I'd have to say, it could be both, possibly some from the celiacs. I'm gluten sensitive, and I've noticed an agressive increase of insomnia over the last year, since I first started getting sick. I've been using melatonin with mild success. I sleep well, but the only downfall is it takes a while to fall asleep, and I'm still tired throughout the day. It affects most people differently though, so you'd just have to try it.

bluebonnet Explorer

i've had chronic insomnia for 13 years. that's how long it took me to be diagnosised with celiac. i also have hypothyroid. i've had that for 18 years but i didn't always struggle with sleeping so i believe it has more to do with celiac. have your vitamin levels checked. i have noticed since going gluten free that my sleep is improving drastically. :)

bincongo Contributor

i've had chronic insomnia for 13 years. that's how long it took me to be diagnosised with celiac. i also have hypothyroid. i've had that for 18 years but i didn't always struggle with sleeping so i believe it has more to do with celiac. have your vitamin levels checked. i have noticed since going gluten free that my sleep is improving drastically. :)

I have gotten worse since going gluten free but then it has been almost a year since I had blood work done so maybe other thinks have gotten worse. I am wondering if I take vitamins if they will be absorbed right anyway since I am a long way from healing. I think I am just wishing the healing process would hurry up because I can't say I feel much better and I am being very careful about gluten.

ravenwoodglass Mentor

I have gotten worse since going gluten free but then it has been almost a year since I had blood work done so maybe other thinks have gotten worse. I am wondering if I take vitamins if they will be absorbed right anyway since I am a long way from healing. I think I am just wishing the healing process would hurry up because I can't say I feel much better and I am being very careful about gluten.

You mention you are a long way from healing, are you still having gluten symptoms? Make sure you have checked all meds and supplements with the maker, check your toiletries for gluten and make sure to avoid CC issues in your home. Some of us even have to change our pets food. There are also nonfood sources of gluten. Things like drywall compound, wall paper paste, craft supplies and glues can all be a problem.

There a quite a few of us who have other intolerances as well, dairy and soy being the most common. Have you tried eliminating those? What are you typically eating? Whole foods are best.

6 weeks is early on in the healing and for some of us it can take some time. You may also be absorbing your meds more effectively and that is something to bring up with your doctor. The insomnia may even be a withdrawl symptom from the gluten, some of us do encounter withdrawl when we first go gluten free.

I hope you are feeling better soon.

bincongo Contributor

You mention you are a long way from healing, are you still having gluten symptoms? Make sure you have checked all meds and supplements with the maker, check your toiletries for gluten and make sure to avoid CC issues in your home. Some of us even have to change our pets food. There are also nonfood sources of gluten. Things like drywall compound, wall paper paste, craft supplies and glues can all be a problem.

There a quite a few of us who have other intolerances as well, dairy and soy being the most common. Have you tried eliminating those? What are you typically eating? Whole foods are best.

6 weeks is early on in the healing and for some of us it can take some time. You may also be absorbing your meds more effectively and that is something to bring up with your doctor. The insomnia may even be a withdrawl symptom from the gluten, some of us do encounter withdrawl when we first go gluten free.

I hope you are feeling better soon.

I am always thankful for all the responses. I just don't really know yet what I might be doing wrong or if I am just being impatient. The problem is I was diagnosed by accident, having gone in for another problem, had an endoscopy and I ended up with a biopsy and a celiac diagnosis. I am not even that sure what a gluten attack might feel like although sometimes I think I know. I am always constipated and always have been and sometimes I am bloated. I don't know if that is because of the constipation or contamination. I have given up lactace.

ToriMartin Apprentice

Hey there :)

I have been hypothyroid for years. I don't know how anyone survives on stuff like Levothyroxine... I always felt Hypo on meds like that. I like Armour, but soooo hard to get! You don't want to lower your meds & be more hypo...

I've always had Insomnia probs. After going gluten-free it was really bad for over a week. I was getting 3 & 4 hours of sleep a night. My husband is no support. He thinks it's my fault, men... I did take 2 250mg Magnesium & 1 Calcium Pill before bed last night. I was falling asleep at 10:30pm! My infant actually let me sleep till almost 8am! So, I got around 9-10 hours of sleep! yippeee You should try it! I'm not only gluten-free Free but also milk & corn free. So, we need calcium... The magnesium will help with constipation, hopefully... That's another prob of mine. It's terrible... I'm taking milk of magnesia daily for a week, this is my 3rd day. It's starting to help... My goal is to empty as much as possible. I'm like you... I had an xray the other day & the Dr kept pointing it out... Getting those toxins out is so important! I've had Brain Fog for 12 years, that is my main goal, getting rid of that... Anyhow, no more than 7 days of course on the Milk of Magnesia...But do think I will do it every so often...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sb2178 Enthusiast

Get your magnesium level checked too. Or just try taking a low dose for a week to see if it makes a difference. It killed my insomnia -- like down from maybe 3-4 times times a week to just when I overdo the caffeine. I wasn't even deficient, just at the very bottom of the normal range.

FYI, can cause diarrhea, so start at a low dose!

ToriMartin Apprentice

Get your magnesium level checked too. Or just try taking a low dose for a week to see if it makes a difference. It killed my insomnia -- like down from maybe 3-4 times times a week to just when I overdo the caffeine. I wasn't even deficient, just at the very bottom of the normal range.

FYI, can cause diarrhea, so start at a low dose!

To much magnesium will cause insomnia?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    2. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748

    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.