Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Insomnia


bincongo

Recommended Posts

bincongo Contributor

I am a new Celiac of 6 weeks. I have been on Thyroid medicine for over a year. I am thinking it is my thyroid medicine causing my insomnia and sometimes hyperactive during the day so I have tried decreasing my thyroid medicine a little until I get my blood work done in a month. Maybe it has helped with the daytime feelings but I get very little sleep at night. Is this part of the healing process of Celiac or the diet or both.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Seitan-Is-Evil Newbie

I'd have to say, it could be both, possibly some from the celiacs. I'm gluten sensitive, and I've noticed an agressive increase of insomnia over the last year, since I first started getting sick. I've been using melatonin with mild success. I sleep well, but the only downfall is it takes a while to fall asleep, and I'm still tired throughout the day. It affects most people differently though, so you'd just have to try it.

bluebonnet Explorer

i've had chronic insomnia for 13 years. that's how long it took me to be diagnosised with celiac. i also have hypothyroid. i've had that for 18 years but i didn't always struggle with sleeping so i believe it has more to do with celiac. have your vitamin levels checked. i have noticed since going gluten free that my sleep is improving drastically. :)

bincongo Contributor

i've had chronic insomnia for 13 years. that's how long it took me to be diagnosised with celiac. i also have hypothyroid. i've had that for 18 years but i didn't always struggle with sleeping so i believe it has more to do with celiac. have your vitamin levels checked. i have noticed since going gluten free that my sleep is improving drastically. :)

I have gotten worse since going gluten free but then it has been almost a year since I had blood work done so maybe other thinks have gotten worse. I am wondering if I take vitamins if they will be absorbed right anyway since I am a long way from healing. I think I am just wishing the healing process would hurry up because I can't say I feel much better and I am being very careful about gluten.

ravenwoodglass Mentor

I have gotten worse since going gluten free but then it has been almost a year since I had blood work done so maybe other thinks have gotten worse. I am wondering if I take vitamins if they will be absorbed right anyway since I am a long way from healing. I think I am just wishing the healing process would hurry up because I can't say I feel much better and I am being very careful about gluten.

You mention you are a long way from healing, are you still having gluten symptoms? Make sure you have checked all meds and supplements with the maker, check your toiletries for gluten and make sure to avoid CC issues in your home. Some of us even have to change our pets food. There are also nonfood sources of gluten. Things like drywall compound, wall paper paste, craft supplies and glues can all be a problem.

There a quite a few of us who have other intolerances as well, dairy and soy being the most common. Have you tried eliminating those? What are you typically eating? Whole foods are best.

6 weeks is early on in the healing and for some of us it can take some time. You may also be absorbing your meds more effectively and that is something to bring up with your doctor. The insomnia may even be a withdrawl symptom from the gluten, some of us do encounter withdrawl when we first go gluten free.

I hope you are feeling better soon.

bincongo Contributor

You mention you are a long way from healing, are you still having gluten symptoms? Make sure you have checked all meds and supplements with the maker, check your toiletries for gluten and make sure to avoid CC issues in your home. Some of us even have to change our pets food. There are also nonfood sources of gluten. Things like drywall compound, wall paper paste, craft supplies and glues can all be a problem.

There a quite a few of us who have other intolerances as well, dairy and soy being the most common. Have you tried eliminating those? What are you typically eating? Whole foods are best.

6 weeks is early on in the healing and for some of us it can take some time. You may also be absorbing your meds more effectively and that is something to bring up with your doctor. The insomnia may even be a withdrawl symptom from the gluten, some of us do encounter withdrawl when we first go gluten free.

I hope you are feeling better soon.

I am always thankful for all the responses. I just don't really know yet what I might be doing wrong or if I am just being impatient. The problem is I was diagnosed by accident, having gone in for another problem, had an endoscopy and I ended up with a biopsy and a celiac diagnosis. I am not even that sure what a gluten attack might feel like although sometimes I think I know. I am always constipated and always have been and sometimes I am bloated. I don't know if that is because of the constipation or contamination. I have given up lactace.

ToriMartin Apprentice

Hey there :)

I have been hypothyroid for years. I don't know how anyone survives on stuff like Levothyroxine... I always felt Hypo on meds like that. I like Armour, but soooo hard to get! You don't want to lower your meds & be more hypo...

I've always had Insomnia probs. After going gluten-free it was really bad for over a week. I was getting 3 & 4 hours of sleep a night. My husband is no support. He thinks it's my fault, men... I did take 2 250mg Magnesium & 1 Calcium Pill before bed last night. I was falling asleep at 10:30pm! My infant actually let me sleep till almost 8am! So, I got around 9-10 hours of sleep! yippeee You should try it! I'm not only gluten-free Free but also milk & corn free. So, we need calcium... The magnesium will help with constipation, hopefully... That's another prob of mine. It's terrible... I'm taking milk of magnesia daily for a week, this is my 3rd day. It's starting to help... My goal is to empty as much as possible. I'm like you... I had an xray the other day & the Dr kept pointing it out... Getting those toxins out is so important! I've had Brain Fog for 12 years, that is my main goal, getting rid of that... Anyhow, no more than 7 days of course on the Milk of Magnesia...But do think I will do it every so often...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sb2178 Enthusiast

Get your magnesium level checked too. Or just try taking a low dose for a week to see if it makes a difference. It killed my insomnia -- like down from maybe 3-4 times times a week to just when I overdo the caffeine. I wasn't even deficient, just at the very bottom of the normal range.

FYI, can cause diarrhea, so start at a low dose!

ToriMartin Apprentice

Get your magnesium level checked too. Or just try taking a low dose for a week to see if it makes a difference. It killed my insomnia -- like down from maybe 3-4 times times a week to just when I overdo the caffeine. I wasn't even deficient, just at the very bottom of the normal range.

FYI, can cause diarrhea, so start at a low dose!

To much magnesium will cause insomnia?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.