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ravenwoodglass

Well I Finally Did It

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I haven't been to a restaurant to eat in a long time. I had been glutened by two of the best restaurants in my city (one a 5 star place!) trying to eat out a few years ago so with the exception of a couple of takeouts from PF Changs over the last 6 years or so I have avoided trying anyplace else.

Well my DS is leaving for an out of state school next week and I really wanted to take him out to dinner. We have a pretty new place in town that is upscale and advertises gluten free food. We went last night. I am so glad I did. When I first looked at the menu I was like oh no! Everything had all these fancy sauces and there was no chance of the plain and boring broiled fish with baked potato that I figured I would order to be safe. The wait staff was fantastic though and really knowledgeable and even checked to make sure there was no soy. They even had 'homemade' gluten-free rolls. I did have broiled fish, snapper, but it was served on the best beans and greens I have had since I made them myelf and basil sauce. It was excellent.

It definately was not an 'inexpensive' meal but it was excellent. I will definately be trying this eating out more often now. Such a world of difference from just a few years ago.

Lesson I learned, talk to that wait staff before I go. If they sound confident that they can feed me safely I will go without fear. Perhaps I will even eat at my DD's wedding instead of just staring at my plate.

If your in the Finger Lakes area check out Halsey's in Geneva. Nice dining and they also do gluten free pizza if your not into something fancy. Don't expect to be able to get a burger though.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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whoo hooo for you! how great it was for you to be able to "go for it" ... and without incident! i'm happy to hear you had a lovely meal with your DS. :) and since you posted, i'd like to say thanks for being so kind and helpful to everyone (myself included) here with giving advice and encouragement. we have a pf changs not too far from here ... i may have to check it out now. if YOU think its safe, it must be! lol :)

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Wow Ravenwood--I'm so happy that you were able to venture out for a meal and that you had such a great experience! :D


Patti

"Life is what happens while you're busy making other plans"

"When people show you who they are, believe them"--Maya Angelou

"Bloom where you are planted"--Bev

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What a joy that must have been for you :D

I am soooo happy that you had that wonderful experience!!


Long history of IBS, and stomach/intestinal problems. Low on iron for all of my life.

Low on energy, with aches and pains in my joints and in my whole body for as long as I can remember.

Mostly lactose intolerant for all of my life (except for yoghurt)

Diagnosed in 2003 by naturapath as wheat intolerant. Tried it then fell of the wagon. In Feb. 2010 tried going gluten-free.

Went back to the poison in March, 2010.

Tested negative for celiac in April, 2010 (based on negative biopsy and normal tTG test). IgA tested 30-40 percent higher than normal.

Not going to fight the diagnosis because I refuse to go back to the poison. Happily gluten-free for health reasons as of April 2010, and not looking back.

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whoo hooo for you! how great it was for you to be able to "go for it" ... and without incident! i'm happy to hear you had a lovely meal with your DS. :) and since you posted, i'd like to say thanks for being so kind and helpful to everyone (myself included) here with giving advice and encouragement. we have a pf changs not too far from here ... i may have to check it out now. if YOU think its safe, it must be! lol :)

Yes do check them out. I do have to say I only have had their food two or three times, I didn't get glutened but I did get soyed. However it was with take out and I didn't ask them about the soy. Just talk to the waitstaff first, with them being a big chain type place not all may be as good as the one near me.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Yea it was a big step for me. I'm soooo happy it was a good experience. It was a big step for me toward feeling like I am finally conquering this darn PTSD. My shrink will be really pleased I finally did it. :D


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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I have had LOTS of positive experiences at restaurants. There are MANY places out there that are very willing to accommodate you. I stick to the ones that have gluten-free menus, because then I know that they most likely know what they are talking about and have been trained on it. Most of the gluten-free menus I've seen have been created in conjunction with the gluten intolerance group, so you know they know what we can have (Now, gluten is the only thing I can't have, I don't have multiple things to avoid). I have only gotten sick ONE time, and that was at a restaurant that DID NOT have a gluten-free menu, but assured me they could make me something safe. I don't go to restaurants without a gluten-free menu anymore. There are plenty of choices, so why risk it?! I have only been gluten-free since April, but from talking to people it is very apparent that restaurants have changed A LOT even over the past few years. If nothing else, I guess I diagnosed at a good time with the gluten-free grocery food and restaurants with more awareness.

Happy to hear you had a great experience!


Thanks!!!

---------------------------------------------------

Kim

Newly diagnosed Celiac trying to learn the ropes

Very Positive tTG 3/10

Positive EGD/Biopsy 4/10

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BRAVO!


Gluten Intolerant with double HLA-DQ6. Pre-diagnosis: Weight gain, swelling, diarrhea, mouth sores, back pain, body aches, fatigue, muscle weakness, BRAIN FOG, runny nose, recurrent sinus infections, bruising, low white cell count (whole life), and more. My feet were so bad, I could hardly walk. Toward the end: Chronic Vit. D deficiency (almost no D in my body despite a quality multi-vit. each day).

There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!

Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt

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So glad you ventured out! Eating out can always be scary but like you said, if you find a knowledgeable staff that can make you feel confident, then you can relax and have a good time and focus on conversation and having a good time instead of food.


Kathy

Gluten free 3/08

Negative blood work/positive endoscopy

Fructose Malabsorption

Soy free

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That's great news!!! All these mini- and major-steps on the recovery pathway. :)


Neroli

"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein

"Life is not weathering the storm; it is learning to dance in the rain"

"Whatever the question, the answer is always chocolate." Nigella Lawson

------------

Caffeine free 1973

Lactose free 1990

(Mis)diagnosed IBS, fibromyalgia '80's and '90's

Diagnosed psoriatic arthritis 2004

Self-diagnosed gluten intolerant, gluten-free Nov. 2007

Soy free March 2008

Nightshade free Feb 2009

Citric acid free June 2009

Potato starch free July 2009

(Totally) corn free Nov. 2009

Legume free March 2010

Now tolerant of lactose

Celiac.com - Celiac Disease Board Moderator

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I have been using the forum for several months now- searching for this and that and your name always pops up with helpful and kind insights. It is so nice to hear that things are getting better for you as it seems you have helped many other people get better. Cheers to many more dinners and milestones.

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And what a memorable experience that must have been for your son! A great send off!

I'm so glad that gluten-free is becoming an option throughout the U.S. My husband is doing some work right now in the U.K., and he says that all of the food is labeled there if it has gluten or doesn't. I hope we'll see that someday here!

I'm so happy for you, Ravenwoodglass!!!

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Congratulations! You should be proud, and I hope you can enjoy DD's wedding.

~Laura


Diagnosed by biopsy 2/12/07. Negative blood tests. Gluten-free (except for accidents) since 2/15/07. DQ2.5 (HLA DQA1*05:DQB1*0201)

Son, age 18, previously delayed growth 3rd percentile weight, 25th percentile height (5'3" at age 15). Negative blood work. Endoscopy declined. Enterolab positive 3/12/08. Gene results: HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0503 Serologic equivalent: HLA-DQ 2,1(Subtype 2,5) Went gluten-free, casein-free 3/15/08. Now 6'2" (Over six feet!) and doing great.

"Great difficulties may be surmounted by patience and perseverance." Abigail Adams (1744-1818) 2nd First Lady of the United States

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Well done, so glad you had a great experience!


Feb 2010 - Start of continuous GIT problems and panic attacks

July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms

July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem

*************************************************************

Gluten intolerant

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Thanks guys. I am so glad that the US is finally getting more Celiac savvy. I have always hoped that my struggles might help others. I never could have done this if I hadn't taken that first very hard step a year and half ago and sought out a good therapist and psychologist. I know there are a few of us who struggle with the fears that this disease brings along with the severe physical reactions. Although my issues come from much more than just the Celiac my reactions play a big part in them. We can overcome so much. My son says I am the strongest person he knows but I sure didn't feel that way a year ago. The support of the wonderful folks on this board help so much but sometimes we need to get that little bit of extra help with these struggles. I am so glad I finally did have the strength to get that help, even though it took me 7 years to admit I needed it, and I hope the others who feel 'locked in a box' by this disease and it's reactions find the strength to do the same.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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You go! Good for you! My first eating out experience was very scary. I was so paranoid, and kept "checking myself" internally with every bite I ate. As the meal continued however, I still felt good! It was so exciting!

I now hit In-And-Out Burger frequently to get their protein style burger and dedicated fryer french friend. As far as sit down places are concerned, I'm in love with Outback Steakhouse. They have a special menu, and seemed to know their stuff!

Isn't it exciting to feel a little bit "normal"? Congrats!


Heather C.

July, 2010: Diagnosed with Celiac Disease via elimination diet and strong Lactose Intolerance via blood work. My symptoms of glutening include 1. extreme abdominal distention, 2. severe abdominal pain, 3. gas, 4. mood swings/generally negative and unpleasant to be around!

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Good for you! I didn't even wait that long to try eating out, but I paid for it by getting glutened several times even at places with gluten free menus. Once I finally found a place that is consistently safe my husband wanted to go there every week! I had to convince him that we will go on special occasions or when I don't feel like cooking. I'm afraid to push my luck by eating out too often, but there really is a good variety now (at least if you live near a city).


A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

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Ravenwoodglass, your posts have made a big difference to me. And I'm sure that's true for many people on this board. You often have just the right thing to say - sometimes comforting, and other times honest (when that's needed). I think that often the people who have struggled the most are the most qualified to support others on similar journeys.

I'm glad good things are coming back at you.

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Ravenwoodglass, your posts have made a big difference to me. And I'm sure that's true for many people on this board. You often have just the right thing to say - sometimes comforting, and other times honest (when that's needed). I think that often the people who have struggled the most are the most qualified to support others on similar journeys.

I'm glad good things are coming back at you.

Yes, what lucia said! Very true.

I went to Olive Garden for my dad's birthday the other night. They have a gluten-free menu, and our server was great. i asked him about cross contamination. He asked how bad my "allergy" was, and when I told him that any gluten would "ravage my intestine," he was extremely helpful and reassuring! :P I think I may have to keep using that phrase... And I did appear to come out unscathed, as well.


Diagnosed by biopsy and blood test August 11, 2010.

GI quote: profound atrophy of the villous.

Scared me to death. Still very new at this.

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You are an inspiration to us all!


Gluten Intolerant with double HLA-DQ6. Pre-diagnosis: Weight gain, swelling, diarrhea, mouth sores, back pain, body aches, fatigue, muscle weakness, BRAIN FOG, runny nose, recurrent sinus infections, bruising, low white cell count (whole life), and more. My feet were so bad, I could hardly walk. Toward the end: Chronic Vit. D deficiency (almost no D in my body despite a quality multi-vit. each day).

There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!

Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt

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Congratulations Ravenwoodglass! I'm so glad you took the plunge.

We went to PF Changs last night and it was so good and yummy! Totally without fear of being glutened and had a great time with friends. Just like before diagnosis!

Doing the happy dance for you and your family!! :D


Diagnosed with Lymphoma March 2010. After surgery doctors said "Oops!"

Diagnosed with Celiac Disease April 2010. After endoscopy doc said "Aren't you glad?"

Uhhh.....yeah!

DD #1 ('99) tested negative on bloodwork but positive on 2 genetic markers. Went gluten free in July 2010 and has been symptom-free ever since!

DD #2 ('98) tested negative and has no symptoms. Didn't fork out money for genetic testing. Will watch and test regularly.

Husband tested positive in July 2010 and has refused to go gluten free. Uh huh, that's gonna bite him in the a** one day! (Pun intended!)

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That's great RWG! kind of like opening a new door. Things are getting better for us. And there may be more of us to enjoy the results too! Probably a lot more people will be diagnosed now that the press has taken some interest in celiac disease. It's all good! :-)


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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Yay! Good going... someday I may too eat at a restaurant again... one step at a time. Thanks for blazing a trail.. helps to hear what works and what doesn't.

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