Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Can I Do To Get Through This?


revenant

Recommended Posts

revenant Enthusiast

I can only go 1 week at a time before I cave and eat icecream or crackers. (lactose and gluten sensitive). My family doesn't have enough money to buy many gluten free things, all that I can eat in the house is tuna potatoes and rice. Occasionally my mom buys coconut bliss for me but only once every 2 week kind of thing. I've asked if she would temporarily not bring icecream into the house and she said no (she actually got angry that I asked such a thing), I asked if there could be a gluten free section of the kitchen and she said there's not enough room in the kitchen for that. It's so hard, and I can't get through the cravings without some gluten-free breads and icecreams... so what else can I do to support myself through this and to prevent myself from caving??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



aderifield Apprentice

Speak to your doctor about this the next time you go in and ask him for suggestions.

mushroom Proficient

It is hard to get over the first weeks of craving gluten - it is like quitting smoking and your body is crying out for its fix. You must strengthen your resolve and find other things to eat, like carrot and celery sticks, nuts, seeds (spend your pocket money if you have to) to get you through these first weeks. Once you get over the withdrawal you will start to think of gluten the way we all do, as rat poison for our bodies, rather than something to crave.

Just hang in there - you can get over this hump!!

T.H. Community Regular

Okay, this is a bit silly and totally psychological, but it did help sometimes - I need to be doing it again as cravings have been hitting me!

I got these little notecards/post-its and wrote encouraging things on them and stuck them in the places I was most likely to cheat. Like, "your health is more important than eating this right now" or "remember what this food does to you. Stay safe"

Didn't always help, but it usually made me pause a bit and that sometimes was all I needed to back away from the food, ya know?

Okay, and for the ice cream cravings? How about homemade non-dairy ice cream on a budget? Here's something that might help.

Homemade rice milk (that you can then turn into ice cream)

Ingredients:

1 cup brown rice + 8 cups water

Directions:

1. Put water and rice in a pot on the stove. Bring to a boil, then simmer 3 hours. It should be a kind of slurry at that point.

2. Get a blender (hopefully you have one?). Fill it half full with the rice slurry. Fill the other half with water from the faucet (so 1:1 slurry to plain water ratio). Blend that puppy until it's really smooth. Then pour it through a mesh sieve once, and pour it through again, or pour it through cheesecloth layered over a normal sieve.

3. Repeat this with the rest of the slurry and there you go: Rice Milk. You can add a few Tablespoons oil and honey/agave syrup/sugar to make it taste better. It is usually twice as concentrated as purchased rice milk, so you can dilute it by half before drinking.

But after you've got it, you could add some extra sugar and make it into ice cream, hopefully.

Hmmm, and if you don't have any equipment that could make it into ice cream? Maybe freeze it into ice cubes and then blend it up in a blender like a smoothie or milk shake? That might do. Maybe with a little fruit or frozen fruit?

Hopefully, that might help with the cravings a bit and still stay in budget. :-)

ravenwoodglass Mentor

There is a lot of natually gluten free food. For snacks most Delmonte, if not all, fruit cups and snacks. Raisens, nuts, fresh fruit some candy like Jelly Belly jelly beans, DARK Milky Way bars, and a lot more. Many meals can be made naturally gluten free like chili, rice and beans, chicken breast, fresh meats and fish. Some prepared items like Dinty Moore beef stew, Jimmy Dean breakfast skillets. Ask here for suggestions. I don't know how old you are but if you are old enough to get a part time job that will help you afford stuff like gluten-free pretzels and breads etc. If you don't have room in the kitchen for your gluten-free stuff then do you have room in your bedroom? Some will get an inexpensive box or even a cardboard one will do to seperate out their specialy stuff. Also see if your Mom will get on the board and read some of what mixed families do. Has your family been tested yet? Once one of us is diagnosed all should be tested.

sb2178 Enthusiast

chocolate. candied ginger. herbal tea. grapes. grapes. cherries. canned pineapple. larabars. and... at one point... straight honey.

you can also order some stuff on amaazon in bulk quantities which makes it cheaper (i.e. 10 lbs corn-quinoa pasta in bulk for 3.20/lb instead of 4.29 for one 8 oz box), but again you have to be old enough to have a credit card. plain popcorn might help too.

i might work on the mom discussion again-- do you have a sympathetic sibling or dad who would listen and act as a moderator?

Skylark Collaborator

In some people gluten and alpha-casein (cows milk casein) have narcotic-like effects. Every time you eat milk or gluten, you maintain the addiction and refesh the cravings. You are basically suffering from a mild narcotic addiction.

The only way to do this is to stay strong until the cravings go away. Come here for support. You might also check for a celiac support group where you live to find some people to talk to. After you go a while off gluten and casein, you will not crave them as badly.

If you're diagnosed, it sounds like you need to drag your mom in for a talk with the doctor. Keeping a house filled with gluten and only offering you potatoes, tuna, and rice to eat is not good parenting. Overpriced gluten-free breads might not be an option on your family's budget but you need other protein (there is too much mercury in tuna for it to be a staple), fruits and vegetables, and some more healthy variety in your diet. Eggs and dried beans are cheap and safer sources of protein than tuna.

Eating better with more variety in your food will help with the cravings for gluten and casein. You should also probably be taking a B-complex.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



deebra Rookie

I can only go 1 week at a time before I cave and eat icecream or crackers. (lactose and gluten sensitive). My family doesn't have enough money to buy many gluten free things, all that I can eat in the house is tuna potatoes and rice. Occasionally my mom buys coconut bliss for me but only once every 2 week kind of thing. I've asked if she would temporarily not bring icecream into the house and she said no (she actually got angry that I asked such a thing), I asked if there could be a gluten free section of the kitchen and she said there's not enough room in the kitchen for that. It's so hard, and I can't get through the cravings without some gluten-free breads and icecreams... so what else can I do to support myself through this and to prevent myself from caving??

im sorry to hear your mother is so insensitive to your needs, im new also to celiac and confused.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    2. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    3. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

    4. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,154
    • Most Online (within 30 mins)
      7,748

    Kathy N
    Newest Member
    Kathy N
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • JudyLou
    • knitty kitty
      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.