Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Upset

KikiUSA

By KikiUSA
in Coping with Celiac Disease

Recommended Posts

KikiUSA Explorer
KikiUSA
Posted

Ok so I thought I was coping with being left out of office treats. I have been doing so well when they bring in lunch for the whole office and I sit eating my own safe food or when the cookies and donuts come in I have made sure I have a gluten-free snack. But for some reason today when DairyQueen Blizzards were bought for everyone in the office but me, I lost it, I had to go into the bathroom so no one would see my cry and then I went outside and sat down and text my husband how I was feeling. It really hurt alot and it bothered me that I was acting like a big baby...I sure hope this doesn't happen again.

One good thing did come out of it, my husband called me and he is going to the store to get some gluten-free ice cream for me and is making my a banana split when I get home! I don't know what I would do without his support.

Thanks for listening, this was the only place I knew was safe to let out my feelings.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mike7 Newbie
Mike7
Posted

Hey, we all get upset from time to time about having this condition. It is very hard for people to understand, but the trick is to find ways to make things work. Think of the bright side, you didn't get the unnecessarily calories and fat from those Blizzards your co-workers ate. Even if you are enjoying some gluten-free ice cream, it probably is much better for you health wise than the processed and commercial ice cream from DQ. B)

kareng Grand Master
kareng
Posted

They could have brought you a cup of plain DQ ice cream! Or with hot fudge! The plain ice-cream is gluten-free as well as a lot of toppings. Just nothing they mix like Blizzards. That's really mean!

KikiUSA Explorer
KikiUSA
Posted
  • Author

Wow thanks for telling me I didn't know that. I just assumed it was unsafe altogether.

Wondering now if I should let them know so I am not always left out????

Skylark Collaborator
Skylark
Posted

((( hug )))

I hate losing it over something at work. I promise you, it does eventually get easier. Your hubs sounds great and I hope he makes really good banana splits.

KikiUSA Explorer
KikiUSA
Posted
  • Author

Thanks you all, I feel alot better now. I was embarassed for getting so upset but you all have made me feel its ok for me to have my moments and I am glad to hear it gets easier because I am determined to stay gluten-free and well no matter what!

(((hugs))) to all of you!

MelindaLee Contributor
MelindaLee
Posted

Thanks you all, I feel alot better now. I was embarassed for getting so upset but you all have made me feel its ok for me to have my moments and I am glad to hear it gets easier because I am determined to stay gluten-free and well no matter what!

(((hugs))) to all of you!

I am certain all of your co-workers lose it at one time or another, over something. We are all human after all. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


starrytrekchic Apprentice
starrytrekchic
Posted

You know, as long as you skip the obvious toppings--oreo cookie, etc., the blizzards would be gluten free. That's not to say they wouldn't be cross-contaminated--obviously there's a very big risk there (someone makes an oreo-cookie blizzard then makes one for you without cleaning the mixer.)

But if you're not particularly sensitive, or if you're okay with the risk, you can have the blizzard. I'm pretty sensitive and I get mixes from Braum's all the time--never had a problem. I know I'm risking a good cc'ing, but--in ten months it hasn't happened yet.

Course it probably depends on how good your DQ is at cleaning things. You could always tell them to take extra care with your order--in fact, in the link below, that's what they recommend.

Here's a list of all the DQ products you can have: Open Original Shared Link

LauraBeth Rookie
LauraBeth
Posted

Next time, why not make a big batch of gluten free cupcakes/ muffins/ cookies or something along those lines to share with everyone? I've just started bringing something to share anytime I know I won't be able to have what's being eaten. When we go to dinner at my in-laws I bring a big yummy salad now just in case. I'm taking chocolate cupcakes to the office tomorrow because lots of times there are donuts Friday morning and I hate feeling left out of that stuff. I can still have my coffee and my treat on Fridays and if anyone wants to share what I'm having, great! Sorry that happened to you though, it sucks. :(

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Next time just ask them to bring you something like a Dilly Bar. It's gluten free and wrapped in plastic from the manufacturer so there's no cc risk from the cookie crumbs and things that Dairy Queen uses. Some Blizzards are safe if they clean the equipment well before making yours, but if you are really sensitive to CC go for the Dilly Bar or one of the other pre-wrapped treats listed on the link above.

I can totally understand your frustration however. I can't even eat ice cream yet without lactose intolerance-induced pain. I have tried a few times and it wasn't worth it. So if you can have dairy be glad there are many gluten free options for you at Dairy Queen. B)

Kay DH Apprentice
Kay DH
Posted

Ok so I thought I was coping with being left out of office treats. I have been doing so well when they bring in lunch for the whole office and I sit eating my own safe food or when the cookies and donuts come in I have made sure I have a gluten-free snack. But for some reason today when DairyQueen Blizzards were bought for everyone in the office but me, I lost it, I had to go into the bathroom so no one would see my cry and then I went outside and sat down and text my husband how I was feeling. It really hurt alot and it bothered me that I was acting like a big baby...I sure hope this doesn't happen again.

One good thing did come out of it, my husband called me and he is going to the store to get some gluten-free ice cream for me and is making my a banana split when I get home! I don't know what I would do without his support.

Thanks for listening, this was the only place I knew was safe to let out my feelings.

The Dairy Queen chocolate or vanilla shakes are generally safe, too. I know the feeling of not being included. It takes time to adjust to all the aspects of gluten-free. Sometimes a few of my coworkers see something gluten-free in the store and bring it to me at work, or ask what gluten-free means. It is good to hug these experiences close to your heart and remember them when you are not included.

I've been gluten-free since November, and I'm doing fairly well at work/social events, but. A few months ago my best girl friend said they had a party and she was thinking of inviting me, but didn't have anything gluten-free, so didn't. Feels a bit like being hit in the (gluten-free) gut. I sent an email to all my friends and requested that they humor my bringing my own food to their parties; I enjoy seeing them far more than I enjoy food offerings. Last month one of my rather large coworkers made our lunch reservations at a new restaurant. I called the restaurant and they had never heard of gluten, did not know what I was talking about, and recommended I not come. When my coworkers said, "well, you could have had eggs", I mentioned the cc risk etc. So, damage control on this is to send my coworkers a list of restaurants that I can go to. It may not work because the fellow that usually schedules them is into "comfort food." I take goodies into work. I love to cook. There are funny expressions on peoples' faces when I tell them the cake or whatever is gluten-free. Some people won't try them. People aren't necessarily being insensitive, mostly they don't have a clue.

KikiUSA Explorer
KikiUSA
Posted
  • Author

Thank you all for the advice. I will bring in some gluten-free goodies and share maybe that will soften them up.

I usually am very prepared with making sure I have snacks or when they order food in I make something special for myself so I feel ok about it. Yesterday's upsetting event was because they planned this and didn't even ask me about it or I would have jumped on the web site to see if I could have anything...I guess it was just easier for them not to bother.

I use to be so involved with all the office stuff before I was diagnosed with this, I need to make a better effort in voicing how I would still like to be apart of it.

Thanks for all the encouragement and btw my banana split that my hubby made me when I got home was wonderful and I felt so much better!

Kelly&Mom Rookie
Kelly&Mom
Posted

Today the principal brought in bagels, cream cheese and coffee..... Panera bagels look sooooo good. I've been gluten-free since Feb. and am getting better about just taking it in stride. I do take control sometimes such as when we do our Stone Soup potluck, I offer to make the soup so I can control what goes in it and I always bring some gluten-free cornbread muffins. Lucky for me, one of my co-workers is gluten intolerant also so we can commiserate and share things we've baked or bought sometimes. I try not to take it personally because it isn't. I never thought about it before either unless someone told me they had a food issue.

Hang in there and glad your hubby is supportive :)

Skylark Collaborator
Skylark
Posted

What is a Stone Soup potluck? I know the story of stone soup but soup takes a while to cook. My friends do potluck all the time and this sounds fun! How does the potluck work? What do you say on the invitations? Do you really start with a stone? :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748
    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.