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Upset


KikiUSA

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KikiUSA Explorer

Ok so I thought I was coping with being left out of office treats. I have been doing so well when they bring in lunch for the whole office and I sit eating my own safe food or when the cookies and donuts come in I have made sure I have a gluten-free snack. But for some reason today when DairyQueen Blizzards were bought for everyone in the office but me, I lost it, I had to go into the bathroom so no one would see my cry and then I went outside and sat down and text my husband how I was feeling. It really hurt alot and it bothered me that I was acting like a big baby...I sure hope this doesn't happen again.

One good thing did come out of it, my husband called me and he is going to the store to get some gluten-free ice cream for me and is making my a banana split when I get home! I don't know what I would do without his support.

Thanks for listening, this was the only place I knew was safe to let out my feelings.


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Mike7 Newbie

Hey, we all get upset from time to time about having this condition. It is very hard for people to understand, but the trick is to find ways to make things work. Think of the bright side, you didn't get the unnecessarily calories and fat from those Blizzards your co-workers ate. Even if you are enjoying some gluten-free ice cream, it probably is much better for you health wise than the processed and commercial ice cream from DQ. B)

kareng Grand Master

They could have brought you a cup of plain DQ ice cream! Or with hot fudge! The plain ice-cream is gluten-free as well as a lot of toppings. Just nothing they mix like Blizzards. That's really mean!

KikiUSA Explorer

Wow thanks for telling me I didn't know that. I just assumed it was unsafe altogether.

Wondering now if I should let them know so I am not always left out????

Skylark Collaborator

((( hug )))

I hate losing it over something at work. I promise you, it does eventually get easier. Your hubs sounds great and I hope he makes really good banana splits.

KikiUSA Explorer

Thanks you all, I feel alot better now. I was embarassed for getting so upset but you all have made me feel its ok for me to have my moments and I am glad to hear it gets easier because I am determined to stay gluten-free and well no matter what!

(((hugs))) to all of you!

MelindaLee Contributor

Thanks you all, I feel alot better now. I was embarassed for getting so upset but you all have made me feel its ok for me to have my moments and I am glad to hear it gets easier because I am determined to stay gluten-free and well no matter what!

(((hugs))) to all of you!

I am certain all of your co-workers lose it at one time or another, over something. We are all human after all. :)


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starrytrekchic Apprentice

You know, as long as you skip the obvious toppings--oreo cookie, etc., the blizzards would be gluten free. That's not to say they wouldn't be cross-contaminated--obviously there's a very big risk there (someone makes an oreo-cookie blizzard then makes one for you without cleaning the mixer.)

But if you're not particularly sensitive, or if you're okay with the risk, you can have the blizzard. I'm pretty sensitive and I get mixes from Braum's all the time--never had a problem. I know I'm risking a good cc'ing, but--in ten months it hasn't happened yet.

Course it probably depends on how good your DQ is at cleaning things. You could always tell them to take extra care with your order--in fact, in the link below, that's what they recommend.

Here's a list of all the DQ products you can have: Open Original Shared Link

LauraBeth Rookie

Next time, why not make a big batch of gluten free cupcakes/ muffins/ cookies or something along those lines to share with everyone? I've just started bringing something to share anytime I know I won't be able to have what's being eaten. When we go to dinner at my in-laws I bring a big yummy salad now just in case. I'm taking chocolate cupcakes to the office tomorrow because lots of times there are donuts Friday morning and I hate feeling left out of that stuff. I can still have my coffee and my treat on Fridays and if anyone wants to share what I'm having, great! Sorry that happened to you though, it sucks. :(

GlutenFreeManna Rising Star

Next time just ask them to bring you something like a Dilly Bar. It's gluten free and wrapped in plastic from the manufacturer so there's no cc risk from the cookie crumbs and things that Dairy Queen uses. Some Blizzards are safe if they clean the equipment well before making yours, but if you are really sensitive to CC go for the Dilly Bar or one of the other pre-wrapped treats listed on the link above.

I can totally understand your frustration however. I can't even eat ice cream yet without lactose intolerance-induced pain. I have tried a few times and it wasn't worth it. So if you can have dairy be glad there are many gluten free options for you at Dairy Queen. B)

Kay DH Apprentice

Ok so I thought I was coping with being left out of office treats. I have been doing so well when they bring in lunch for the whole office and I sit eating my own safe food or when the cookies and donuts come in I have made sure I have a gluten-free snack. But for some reason today when DairyQueen Blizzards were bought for everyone in the office but me, I lost it, I had to go into the bathroom so no one would see my cry and then I went outside and sat down and text my husband how I was feeling. It really hurt alot and it bothered me that I was acting like a big baby...I sure hope this doesn't happen again.

One good thing did come out of it, my husband called me and he is going to the store to get some gluten-free ice cream for me and is making my a banana split when I get home! I don't know what I would do without his support.

Thanks for listening, this was the only place I knew was safe to let out my feelings.

The Dairy Queen chocolate or vanilla shakes are generally safe, too. I know the feeling of not being included. It takes time to adjust to all the aspects of gluten-free. Sometimes a few of my coworkers see something gluten-free in the store and bring it to me at work, or ask what gluten-free means. It is good to hug these experiences close to your heart and remember them when you are not included.

I've been gluten-free since November, and I'm doing fairly well at work/social events, but. A few months ago my best girl friend said they had a party and she was thinking of inviting me, but didn't have anything gluten-free, so didn't. Feels a bit like being hit in the (gluten-free) gut. I sent an email to all my friends and requested that they humor my bringing my own food to their parties; I enjoy seeing them far more than I enjoy food offerings. Last month one of my rather large coworkers made our lunch reservations at a new restaurant. I called the restaurant and they had never heard of gluten, did not know what I was talking about, and recommended I not come. When my coworkers said, "well, you could have had eggs", I mentioned the cc risk etc. So, damage control on this is to send my coworkers a list of restaurants that I can go to. It may not work because the fellow that usually schedules them is into "comfort food." I take goodies into work. I love to cook. There are funny expressions on peoples' faces when I tell them the cake or whatever is gluten-free. Some people won't try them. People aren't necessarily being insensitive, mostly they don't have a clue.

KikiUSA Explorer

Thank you all for the advice. I will bring in some gluten-free goodies and share maybe that will soften them up.

I usually am very prepared with making sure I have snacks or when they order food in I make something special for myself so I feel ok about it. Yesterday's upsetting event was because they planned this and didn't even ask me about it or I would have jumped on the web site to see if I could have anything...I guess it was just easier for them not to bother.

I use to be so involved with all the office stuff before I was diagnosed with this, I need to make a better effort in voicing how I would still like to be apart of it.

Thanks for all the encouragement and btw my banana split that my hubby made me when I got home was wonderful and I felt so much better!

Kelly&Mom Rookie

Today the principal brought in bagels, cream cheese and coffee..... Panera bagels look sooooo good. I've been gluten-free since Feb. and am getting better about just taking it in stride. I do take control sometimes such as when we do our Stone Soup potluck, I offer to make the soup so I can control what goes in it and I always bring some gluten-free cornbread muffins. Lucky for me, one of my co-workers is gluten intolerant also so we can commiserate and share things we've baked or bought sometimes. I try not to take it personally because it isn't. I never thought about it before either unless someone told me they had a food issue.

Hang in there and glad your hubby is supportive :)

Skylark Collaborator

What is a Stone Soup potluck? I know the story of stone soup but soup takes a while to cook. My friends do potluck all the time and this sounds fun! How does the potluck work? What do you say on the invitations? Do you really start with a stone? :lol:

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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