Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge?

Steviac

Recommended Posts

Steviac Newbie
Steviac
Posted
  • Author

Thanks again for ever more interesting facts and experiences. It's day 3. Been my first day back at work. It's been pretty unbearable. And all in time for my birthday/holiday! At least the gluten challenge gives me a good excuse to stuff my face with french pastries! (I have to look at the bright side! hahaha)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Thanks again for ever more interesting facts and experiences. It's day 3. Been my first day back at work. It's been pretty unbearable. And all in time for my birthday/holiday! At least the gluten challenge gives me a good excuse to stuff my face with french pastries! (I have to look at the bright side! hahaha)

Eat a pain au chocolat for me! :P

Steviac Newbie
Steviac
Posted
  • Author

So I managed to have a good time in France despite feeling awful. I had more than one pain au chocolat for you Skylark ;)

I have suffered for it though. Mouth ulcers, bleeding tongue (???????), severe cramps, extremely painful bones??, major fatigue, constant headaches, itchy patches of skin rash and I seem to be drifting off into daydreams like no-one's business... I've also started bruising very easily. I used to bruise a heck of a lot up until my early teens and then I just didn't bruise anymore. But now they're popping up all over...

I've also recently found out that my cousin has been diagnosed with coeliac. Am I right in thinking that coeliac is a genetic thing? Very confusing!?

Skylark Collaborator
Skylark
Posted

Sorry you're feeling so sick. I hope the pain au chocolat was good, although it probably hardly feels worth the trade-off for feeling so sick. I imagine you're going gluten-free for good no matter what the tests say now. I wasn't expecting to come up sensitive to gluten when I did my elimination diet or I would have had a lot more good pastries beforehand. :lol:

Yes, it's genetic. A first-degree relative like a parent or sibling gives you a 1 in 20 chance of having celiac. I don't know about cousins but it's clearly in your family.

Steviac Newbie
Steviac
Posted
  • Author

Well the challenge has beaten me! I've decided I can't do it any longer as the really nasty symptons have kicked in. It's really not worth it... At least I tried I guess :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Well the challenge has beaten me! I've decided I can't do it any longer as the really nasty symptons have kicked in. It's really not worth it... At least I tried I guess :)

Let your doctor know how badly you reacted to the challenge. You do know the answer as to whether your body wants gluten or not now. I hope the reaction stops soon.

AnnaH Newbie
AnnaH
Posted

Well the challenge has beaten me! I've decided I can't do it any longer as the really nasty symptons have kicked in. It's really not worth it... At least I tried I guess :)

I can relate - I am on day 12 of a gluten challenge and I have an EGD scheduled a week from today. My doctor thinks that 2 weeks should be enough as I was only gluten-light, not gluten-free before (or he is just convinced I don't have celiac and is trying to prove that to me.) In any case, I feel awful: migraines, fatigue, lack of concentration, irritability, and some digestive issues as well. I am not sure I will last an other week on this "challenge". I am thinking of eating my 4 slices of bed just before going to sleep, maybe that way I avoid the worst symptoms - has anyone tried that?

Steviac, have you canceled your biopsy, or will you do it nevertheless?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Steviac Newbie
Steviac
Posted
  • Author

I can relate - I am on day 12 of a gluten challenge and I have an EGD scheduled a week from today. My doctor thinks that 2 weeks should be enough as I was only gluten-light, not gluten-free before (or he is just convinced I don't have celiac and is trying to prove that to me.) In any case, I feel awful: migraines, fatigue, lack of concentration, irritability, and some digestive issues as well. I am not sure I will last an other week on this "challenge". I am thinking of eating my 4 slices of bed just before going to sleep, maybe that way I avoid the worst symptoms - has anyone tried that?

Steviac, have you canceled your biopsy, or will you do it nevertheless?

Mine was actually for another round of bloodtests, it hadn't yet got to the biopsy stage. I have however been to see my doctor and she's referring me to a gastroenterolgist (sp?) who specialises in coeliac disease and I will probably be having an endoscopy once I've seen him. It could be weeks before I end up seeing him though.

ravenwoodglass Mentor
ravenwoodglass
Posted

Mine was actually for another round of bloodtests, it hadn't yet got to the biopsy stage. I have however been to see my doctor and she's referring me to a gastroenterolgist (sp?) who specialises in coeliac disease and I will probably be having an endoscopy once I've seen him. It could be weeks before I end up seeing him though.

If you are going for a diagnosis you really do need to stay on gluten until after you see the GI doctor. However you don't need a doctors permission to be gluten free and if you can't tolerate staying on the challenge and your symptoms are gone by the time you get to that appointment you do have your answer.

cassP Contributor
cassP
Posted

ya- try to get the blood tests and maybe even a biopsy as soon as you can- or at least before you go off the gluten-

but i TOTALLY understand. my GI had only had me on a 2 week challenge (and the previous 6 years i had been mostly gluten lite).... so my blood tests were still somewhat inconclusive- and my insurance company wouldnt do the endoscopy.

Anyways- i HONESTLY dont know if i could have done more than 2 weeks... i thought i was gonna enjoy all the food... but i had no idea how bad the ANXIETY was gonna be!!!!!! i was DONE by day 14 DONE- no matter what the game plan was gonna be!!!

and wouldnt you know it, i STILL went on and off gluten for a couple of years untill i got my genetics test, and researched what my previous blood tests might mean.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Me,Sue
      - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
    2. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    3. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,853
    • Most Online (within 30 mins)
      7,748
    Procurement
    Newest Member
    Procurement
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.