Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge?

Steviac

Recommended Posts

Steviac Newbie
Steviac
Posted
  • Author

Thanks again for ever more interesting facts and experiences. It's day 3. Been my first day back at work. It's been pretty unbearable. And all in time for my birthday/holiday! At least the gluten challenge gives me a good excuse to stuff my face with french pastries! (I have to look at the bright side! hahaha)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Skylark Collaborator
Skylark
Posted

Thanks again for ever more interesting facts and experiences. It's day 3. Been my first day back at work. It's been pretty unbearable. And all in time for my birthday/holiday! At least the gluten challenge gives me a good excuse to stuff my face with french pastries! (I have to look at the bright side! hahaha)

Eat a pain au chocolat for me! :P

Steviac Newbie
Steviac
Posted
  • Author

So I managed to have a good time in France despite feeling awful. I had more than one pain au chocolat for you Skylark ;)

I have suffered for it though. Mouth ulcers, bleeding tongue (???????), severe cramps, extremely painful bones??, major fatigue, constant headaches, itchy patches of skin rash and I seem to be drifting off into daydreams like no-one's business... I've also started bruising very easily. I used to bruise a heck of a lot up until my early teens and then I just didn't bruise anymore. But now they're popping up all over...

I've also recently found out that my cousin has been diagnosed with coeliac. Am I right in thinking that coeliac is a genetic thing? Very confusing!?

Skylark Collaborator
Skylark
Posted

Sorry you're feeling so sick. I hope the pain au chocolat was good, although it probably hardly feels worth the trade-off for feeling so sick. I imagine you're going gluten-free for good no matter what the tests say now. I wasn't expecting to come up sensitive to gluten when I did my elimination diet or I would have had a lot more good pastries beforehand. :lol:

Yes, it's genetic. A first-degree relative like a parent or sibling gives you a 1 in 20 chance of having celiac. I don't know about cousins but it's clearly in your family.

Steviac Newbie
Steviac
Posted
  • Author

Well the challenge has beaten me! I've decided I can't do it any longer as the really nasty symptons have kicked in. It's really not worth it... At least I tried I guess :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Well the challenge has beaten me! I've decided I can't do it any longer as the really nasty symptons have kicked in. It's really not worth it... At least I tried I guess :)

Let your doctor know how badly you reacted to the challenge. You do know the answer as to whether your body wants gluten or not now. I hope the reaction stops soon.

AnnaH Newbie
AnnaH
Posted

Well the challenge has beaten me! I've decided I can't do it any longer as the really nasty symptons have kicked in. It's really not worth it... At least I tried I guess :)

I can relate - I am on day 12 of a gluten challenge and I have an EGD scheduled a week from today. My doctor thinks that 2 weeks should be enough as I was only gluten-light, not gluten-free before (or he is just convinced I don't have celiac and is trying to prove that to me.) In any case, I feel awful: migraines, fatigue, lack of concentration, irritability, and some digestive issues as well. I am not sure I will last an other week on this "challenge". I am thinking of eating my 4 slices of bed just before going to sleep, maybe that way I avoid the worst symptoms - has anyone tried that?

Steviac, have you canceled your biopsy, or will you do it nevertheless?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Steviac Newbie
Steviac
Posted
  • Author

I can relate - I am on day 12 of a gluten challenge and I have an EGD scheduled a week from today. My doctor thinks that 2 weeks should be enough as I was only gluten-light, not gluten-free before (or he is just convinced I don't have celiac and is trying to prove that to me.) In any case, I feel awful: migraines, fatigue, lack of concentration, irritability, and some digestive issues as well. I am not sure I will last an other week on this "challenge". I am thinking of eating my 4 slices of bed just before going to sleep, maybe that way I avoid the worst symptoms - has anyone tried that?

Steviac, have you canceled your biopsy, or will you do it nevertheless?

Mine was actually for another round of bloodtests, it hadn't yet got to the biopsy stage. I have however been to see my doctor and she's referring me to a gastroenterolgist (sp?) who specialises in coeliac disease and I will probably be having an endoscopy once I've seen him. It could be weeks before I end up seeing him though.

ravenwoodglass Mentor
ravenwoodglass
Posted

Mine was actually for another round of bloodtests, it hadn't yet got to the biopsy stage. I have however been to see my doctor and she's referring me to a gastroenterolgist (sp?) who specialises in coeliac disease and I will probably be having an endoscopy once I've seen him. It could be weeks before I end up seeing him though.

If you are going for a diagnosis you really do need to stay on gluten until after you see the GI doctor. However you don't need a doctors permission to be gluten free and if you can't tolerate staying on the challenge and your symptoms are gone by the time you get to that appointment you do have your answer.

cassP Contributor
cassP
Posted

ya- try to get the blood tests and maybe even a biopsy as soon as you can- or at least before you go off the gluten-

but i TOTALLY understand. my GI had only had me on a 2 week challenge (and the previous 6 years i had been mostly gluten lite).... so my blood tests were still somewhat inconclusive- and my insurance company wouldnt do the endoscopy.

Anyways- i HONESTLY dont know if i could have done more than 2 weeks... i thought i was gonna enjoy all the food... but i had no idea how bad the ANXIETY was gonna be!!!!!! i was DONE by day 14 DONE- no matter what the game plan was gonna be!!!

and wouldnt you know it, i STILL went on and off gluten for a couple of years untill i got my genetics test, and researched what my previous blood tests might mean.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Morgan Tiernan
      How to navigate living with dermatitis herpetiformis

      By Morgan Tiernan · Posted

      Hi all! Ive been away for a while navigating this new illness and also studying at university. But im back with so more updates and info, thank you all for your help and support.    Update: I suffered with an infection of my dermatitis herpetiformis a month or so ago. This resulted in a trip to a&e with an extremely swollen face, and a 2 week dose of doxycycline. Of course the infection went down but my dermatitis herpetiformis still remains to pop up every now and again. However, I’m coming up to almost a year being gluten free and I can honestly say the outbreaks are less often and more mild. But I’ve been eating extremely strict on a gluten-free diet (not much eating out and very cross contamination aware), so fingers crossed this continues.  As I am UK based, I have finally got through to dermatology and rheumatology in the NHS (no more private appointments which is great!) She was amazing and agreed on what sounds like dermatitis herpetiformis. However, she has also diagnosed me with chronic urticaria (hives) which will explain the swelling of my face, eyes, lips, and even sometimes tongue! So might be an allergy on the case, or perhaps another autoimmune condition due to the undiagnosed coeliac until this year. A skin biopsy has now been arrange for next month which is positive (there’s talks of me eating gluten for a day to activate the rash also, scary but they will have medication on site!)  Currently, I’m feeling more positive about my diagnosis and am so thankful to my hospital for the ongoing support I wasn’t able to get from my GP.  Things are looking up!
    • Morgan Tiernan
      Does anyone else have seborrheic dermatitis

      By Morgan Tiernan · Posted

      Hi there! This is something I’ve often wondered too! I’m still going through the process of getting an official dermatitis herpetiformis diagnosis, however I’ve been battling for 3 years and the dermatologists are pretty certain it’s dermatitis herpetiformis/celiac disease with it’s classic appearance and symptoms (it’s nasty stuff!) About 2 years ago before dermatitis herpetiformis was on the cards, I suffered with a terrible episode of seb dermatitis, it was absolutely everywhere and was probs left undiagnosed for months before I could get in with a dermatologist! I used ketaconazole and it seemed to do the trick. However, knowing what we do now, the dermatitis herpetiformis was definitely aggravating/causing this and I found that it was the use of too many steroid creams (they thought I had eczema) and heavy moisturisers bothering my dermatitis herpetiformis.  Since being gluten free for a year, I haven’t really suffered with an episode of the seb dermatitis for a while. Just trying to navigate the dermatitis herpetiformis outbreaks now.  But definitely feel there could be a correlation! 
    • leahsch
      Rosacea

      By leahsch · Posted

      I have had very mild rosacea on my cheeks for years. I also am celiac abd have recently been diagnosed with rosacea in one eye. I have been prescribed eye drops during the day and a gel at night. 
    • JD-New to Celiac
      Anyone understand genetic testing

      By JD-New to Celiac · Posted

      Although diagnosed with celiac and dermatitis herpetiformis, I was curious about the celiac genetics and had that testing done on my own. Unfortunately, the lab does not explain the results and any doctor I have asked said I would need to see someone specializing in genetics. I was hoping someone out there might help me understand. Here is what came back and although I understand the HLA DQ2 and HLA DQ8, I wasn't sure what the variants mean and why they repeat twice. Someone said it was a double marker meaning both of my parents gave me copies. I also read having this combination makes my celiac potentially much worse. HLA DQ2 - Positive | HLA DQ8 - Negative HLA Variants Detected: HLA DQA1*05 and again HLA DQA1*05 HLA DQB1*0201 and again HLA DQB1*0201
    • JD-New to Celiac
      What should tTG IgA be if Gluten Free?

      By JD-New to Celiac · Posted

      Understanding that normal is <15, I started off with 250+, then using the same lab it took two years to get to 11, the last test was 3. So, it jumped back up for some reason which is why I suspected gluten in my diet somewhere. I do not do dairy, eggs, oats, or soy. I am vegan and gluten free, and take numerous supplements with the help of this forum.
×
×
  • Create New...