Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question On Going Gluten Free


Nen

Recommended Posts

Nen Explorer

I wasn't quite sure where to post this, but this seems like the most correct forum.

I was wondering something pertaining to trying the gluten-free diet.

If I were to try gluten-free eating, and did NOT have any trouble with eating gluten (as in the diet would do nothing), would I then be able to resume eating gluten after a time and not have any bad reactions?

Wouldn't you only have trouble resuming eating gluten foods (after not eating gluten for a time) if you had celiac or a sensitivity to it?

I guess what I am getting at is, it is not possible to make your body become intolerant to gluten (if you have previously eaten it just fine) just by cutting it out for a time, is it? Either your body has trouble with it or it doesn't.

I guess what I fear happening is that say now I have no trouble with gluten and it isn't the reason for my issues, then I stop eating gluten, after a time try to eat it again, and my body be like "I don't think so!"


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WheatChef Apprentice

Your fears are unneeded. It is true that if you do not have a preexisting problem with gluten that the gluten-free diet will not cause one to show up. Basically you go gluten-free for a while and then "test" it by eating a bit/bunch of gluten. If you have reactions or unfavorable changes then you need to stay gluten-free, if not then enjoy a loaf of sourdough.

ravenwoodglass Mentor

Your fears are unneeded. It is true that if you do not have a preexisting problem with gluten that the gluten-free diet will not cause one to show up. Basically you go gluten-free for a while and then "test" it by eating a bit/bunch of gluten. If you have reactions or unfavorable changes then you need to stay gluten-free, if not then enjoy a loaf of sourdough.

I agree. Also if you don't have an issue with gluten and your problems stem from something else then chances are the diet won't help you feel better.

It is a good idea to at least get a celiac panel done if you can before you go gluten free. If you do have issues with gluten and eliminate it and then decide later that you want testing you need to go back on gluten for 2 to 3 months before testing. If you have an issue with gluten those months back on it for testing will likely make you feel pretty lousy.

Nen Explorer

Thank you very much for your responses. This does help me! Good to know, I was fearful that stopping gluten could do something odd like that!

So I could safely stop eating for a trial period, and my reaction to starting it up again would show if I had a problem with it or not.

Darn210 Enthusiast

Hi Nen,

Just thought I would through in my own experience . . .

Three years ago, I did a 6 week trial diet to see if I noticed any difference in my health. My daughter was diagnosed and my screening was negative but I thought what the heck, the house is mostly gluten free anyway. There a loads of people on here that had negative screenings and had symptoms (that they thought was how everyone felt) disappear once they went gluten-free. Also, if anything, it was an experiment in walking in my daughter's shoes. Personally, I didn't notice a difference and I was also paying close attention to when I went back on gluten to see if I had some sort of reaction . . . but nothing.

Now, three years later, I'm doing a 6 month trial diet. I've got joint pain issues that have been getting worse the last year that I don't think are normal for a person my age. (Had a bunch of testing that showed up with nothing but a high ANA). I just want to point out that some people see immediate improvement (within days) of going gluten-free. Others take months. If you are going to the trouble of trying the diet, make sure you give it enough time to make a difference.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      46

      Supplements for those Diagnosed with Celiac Disease

    2. - trents replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Is it gluten?

    3. - RMJ replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    4. - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      nothing has changed

    5. - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
    • trents
      @par18, no, Scott's use of the term "false negative" is intentional and appropriate. The "total IGA" test is not a test used to diagnose celiac disease per se. The IGA immune spectrum response encompasses more than just celiac disease. So, "total IGA" refers to the whole pie, not just the celiac response part of it. But if the whole pie is deficient, the spectrum of components making it up will likely be also, including the celiac disease response spectrum. In other words, IGA deficiency may produce a tTG-IGA score that is negative that might have been positive had there not been IGA deficiency. So, the tTG-IGA negative score may be "false", i.e, inaccurate, aka, not to be trusted.
    • RMJ
      This may be the problem. Every time you eat gluten it is like giving a booster shot to your immune system, telling it to react and produce antibodies again.
    • asaT
      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.