Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Treated Special And Loving It!


watkinson

Recommended Posts

watkinson Apprentice

Just a word of encouragement,

So often when I read the posts on this site I actually go away feeling down. I mean so often everything in our lives is so negative. We all have so much pain and so many illnesses not to mention all the inconvienience of living our lives gluten-free in a gluten filled world. Well here's a bit of happiness.... :D

We recently went on vacation in Colorado Springs at a resort called the Broadmoor. It was a business trip with my husbands company. Every day they had a full gourmet breakfast buffet, lunch anywhere on the property and special event dinners for us every night. I was looking so forward to the trip but had resigned myself to the fact that I probably just wouldn't be eating while I was there. I had decided not to mention being a celiac because it would just be too much trouble at every meal, for a whole week, to deal with it. Well after being encouraged by my husband to talk to the hotel about it, I realized I was wrong.

I made a very silght mention to the fact that I had food problems, they jumped on it happily and told me they would contact me soon. I recieved a phone call in my room within the hour that the chef would be meeting with me at dinner. He went through all the ingredients of the whole menu for that first night and went through everyghing I could eat at the breakfast buffet. after talking to him, lunches on the property were easy, and at the event meals off the property they sought me out, and brought me a special groumet gluten-free meal. I mean they even went to a store and got me gluten-free bread so that my bread plate during the dinners would have something on it too. My dinners were hardly different from everyone elses (maybe no sauces) so I didn't feel weird or deprived. I even got specail desserts!!! :D It was neat, because since I didn't have to say anything to the waiter but would get a specail meal, the people at our table would wonder what was going on and ask me about it. I got tons of oppportunity to explain to many people what Celiacs was. People who were genuinly interested. Almost everyone had never heard of it and so many of them would respond with Gee..I wonder if that's my problem, or my mother, friend, or whoever. It was fabulous! :D

The last full day of the trip they had a special speaker who talked about health in the workplace ect. Yes...He talked about sugar being poison, and how we need to eat more veggies but guess what?...He talked about Celiacs. It was spectacular!! :D:lol:

I haven't had such a great vacation since I was a kid. I told my husband how I couldn't understand why I hated so much for this vacation to end, I mean we have had tons of fabulous vacations over the years. Then it came to me...this is the first vacation I have ever had where I wasn't sick.

I discovered I was a celiac in March of 2004. We didn't take a vacation last year. This was the first time I wasn't living on anti diareahal and spending the whole trip in a panic that I would have an unexpected attack. I felt great the whole time, while eating like a queen. :D

I just wanted to encourage everyone to speak up, to not be embarassed, but to tell people about the disease. It is NOT AN ALLERGY, it is much more serious. Most people are genuinly interested and really do want to help you. I think it makes people feel good to be someone's hero, to genuinly know they helped you. By not speaking up we are denying those around us the opportunity to help and to learn. And who knows... maybe by speaking up you could save someone from spending any more time being sick. I Wish like anything that someone had told me about the disease years ago....then I wouldn't have spent all these years living in physical torture. Not to mention all the time and money wasted going to doctors.

Get the word out :D

Wendy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

Good thoughts Wendy. I was reading in an article today where PF Changs and Wildfire both said they created gluten-free menus simply because more and more people were asking for them. There is truth to getting the word out. I am currently writing letters to all my old doctors who misdiagnosed me, humbly asking them to rethink their paradigm of celiac disease and hoping to try and add some celiac disease pamplets to the collection at their offices. I've already made some crazy connections b/c of celiac disease. Last Saturday I went to a celiac support group meeting and immediately afterwards went to church for a sat night service. The service is large, about 1,100 people, but on my way out, one of the ladies from the celiac disease meeting ran right into me. Small world :lol:

Carriefaith Enthusiast

Sounds like you had a great time! Lucky you! and you never even got sick. It's nice to know that there are people out there willing to take the time to help. Not everyone is like that.

skbird Contributor

When I was on vacation last October - one week after going gluten-free, we met up with some friends on the coast and it was one of their birthdays so we got invited along for dinner. It was at an Italian restaurant and I was really worried about it but didn't want to make a big deal. The place only had about 12 dishes and was pretty small. Turned out the owner was our waiter and his wife, who was Italian, was the chef. So when he asked what I'd like, I told him my food restrictions (not only gluten but no tomato/eggplant/peppers...) and he said, how about some polenta? with cheese and olive oil, and crunchy garlic, oh, also some fresh basil??? My dinner came out looking beautiful and was so incredibly delicious. Everyone was envious. And at the end, all of their meals were $15 or so each and mine was $8.50. So I totally scored!

There are good experiences out there, maybe we should all try to contribute some - I have read a few times recently that the bad stuff here has been depressing people. I think we have more good experiences than we let on because they don't stand out as much as the really bad ones! :)

Stephanie

mytummyhurts Contributor

Wow Wendy! That's awesome! My husband and I are thinking about going on vacation. Is that a good place to go for the vacation aspect of it? I would love to be able to go someplace and tell them the reason I went there was because of how they treated someone with the same disease as me. That way they will keep up the good work and know they made a difference.

watkinson Apprentice

Hi guys,

Jenvan, I think it is spectacular that you are writing letters to all your old doctors, I have thought many times about doing that but never have. Iv'e always been afraid that I would go off on them and scream about thier idiocy and all the torture I went through because of it. :angry::rolleyes: And your right. I am meeting more and more people who are celiacs or have heard of it.

skbird, Wow I love that story, especially that your "speciallly prepared" meal was less expensive than theirs. :lol: There is a great Italian restaraunt near me here in Maryland called Boca de bepo. Just like you said I figured Italian, they will have nothing I can eat, with all the noodles and sauces, but actually they have a whole gluten-free menu. Tons of food!! Some of the best ever. We couldn't even eat it all :P

mytummyhurts,

Yes...It was fiercley wonderful. I encourage you to take a look at the site online. This place is the only resort in America that has achieved the 5 star rating on both the hotel and the food for 25 years in a row!!!

The pool is really cool, it looks like it goes on out into the lake. They even have water slides...big ones!! They have a bar on the property that was taken apart piece by piece from a pub in England and put back together on the site. It's called

THE B. They have a guy playing the piano and the whole bar gets to singing along! Great old songs like oom papa, and hey jude, piano man, Oklahoma, all the ones you can think of that a crowd would belt out. It was a blast. We went horse back riding. They have white water rafting. We even went to a rodeo. A great place. Check it out!

Wendy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.