Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help Disoriented Has Stopped Me From Driving In The Morning!


Liveenjoylife

Recommended Posts

Liveenjoylife Apprentice

I have been dealing with celiac disease for a while now, but noticed when I drive in the morning I am disoriented and in a daze. Even after I have eaten breakfest. I become shaky and nervous. Except as soon as 11ish Noon I am fine and am sharp to drive. All the symptoms go away. But this is every morning and has been like this for a loooong time. I am on a strict diet of gluten dairy free foods. And I take a bunch of my vitamins every other day. Can some one help me please? Does celiac disease cause this? Any one else suffer this. I don't have insurance so I can't go to the doctor.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

Are you taking the vitamins in the morning? Try switching to taking them at night and see if it helps. Also make sure none of the vitamins are interacting with each other or other meds you could be taking. If you go to drugs.com they have an interaction checker and you can plug in vitamins as well as drugs to see if any interact and cause bad side effects. Also double check to make sure your vitamins are all gluten and dairy free. Some vitamins claim to be gluten free but have wheat grass, barley grass or oat grass in them.

Takala Enthusiast

What are you eating for breakfast ?

What are you drinking ?

What did you eat for dinner the night before, typically ?

cyberprof Enthusiast

Do you have low blood sugar problems at any other time? Like if you don't eat and miss a meal, do you get lightheaded then?

What do you have for breakfast? A balanced breakfast (protein, sugar/carb, fat) and waiting a bit to drive might help. Being gluten-free/DF calls for more creative ideas for b'fast. Maybe gluten-free cereal with almond milk and strawberries (or bananas or craisins) and an egg (hardboiled, fried, scrambled).

I agree about not taking vitamins in the morning. I get nauseous if I take them before lunch.

You can also try having a late night snack (right before bed) of protein/carbs/fat like a waffle with peanut butter and almond milk before bed to see if that helps.

If nothing helps you may want to be checked for diabetes(especially if you have other symptoms). I understand not having insurance but it may be something serious.

kareng Grand Master

The radio had a doc on answering sleep questions. He said that when it is time to get up - get up. Do not hit the snooze button 4 times and then get up (that was the question). He also, said that we really shouldn't drive until we have been up and out of bed for an hour to be at our best cognitively. Maybe you are having sleep issues or just don't wake up as fast as others. Maybe if you did something active for 10 minutes before you drive like walk or march in place while you watch the news. This is a technique some of the high school teachers use for the first class of the day to clear the brain fog.

Do look at what everyone said about diet & blood sugar.

kareng Grand Master

If nothing helps you may want to be checked for diabetes(especially if you have other symptoms). I understand not having insurance but it may be something serious.

Check your local health department. Many do a basic diabetes screening for free. Also, November is National Diabetes Awareness month (at least it seems that it was last year). Local hospitals will sometimes have health fairs, wellness fairs or diabetes screening days. Our grocery had a wellness day with blood pressure, cholesterol & diabetes screening for free or a few dollars. Only the Univ of Chicago does a free Celiac screening. :(

sandsurfgirl Collaborator

I had that problem for months and my doc said it was dehydration and electrolytes. Celiacs and people with other autoimmunes disorders are very prone to dehydration. When I started being very careful to hydrate in the morning and get electrolytes first thing I improved and after about a month it went away. Funny enough, my electrolyte levels came back normal on the blood tests. :rolleyes::rolleyes:

I tried about 5 different natural electrolyte supplements and they made me really sick. The doc said just drink regular old Gatorade and it was life changing.

I drank a small bottle of Gatorade with breakfast every single morning. I sipped water all day long and if the dizzy spells or shakiness came back in the afternoon I would have more Gatorade.

People on here give me a hard time about Gatorade because it isn't "natural" but it was the only thing that worked and it made me functional when everything else failed.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Liveenjoylife Apprentice

I had that problem for months and my doc said it was dehydration and electrolytes. Celiacs and people with other autoimmunes disorders are very prone to dehydration. When I started being very careful to hydrate in the morning and get electrolytes first thing I improved and after about a month it went away. Funny enough, my electrolyte levels came back normal on the blood tests. :rolleyes::rolleyes:

I tried about 5 different natural electrolyte supplements and they made me really sick. The doc said just drink regular old Gatorade and it was life changing.

I drank a small bottle of Gatorade with breakfast every single morning. I sipped water all day long and if the dizzy spells or shakiness came back in the afternoon I would have more Gatorade.

People on here give me a hard time about Gatorade because it isn't "natural" but it was the only thing that worked and it made me functional when everything else failed.

That makes sense, but you know I can't drink gatorade with out getting sick. So I stopped drinking it years ago. Is there any other type of drink you could recommend?...Thanks all soo much for your feedback.

ravenwoodglass Mentor

Are you taking any prescription or over the counter meds? If you are have you checked them with the maker to be sure they are gluten free? Also how much sleep are you getting? If it is less than 7 or 8 hours that could be contributing to the problems also.

kareng Grand Master

Eletrolyte drinks are mainly sugar, salt, potassium & magnesium. Fruit juices like grape juice, OJ & apple juice have a lot. They don't have so much salt. Eat something salty or add salt to the juice. My son does football every morning in the summer and then worked outside. Having apple juice with pretzels or crackers replenishes him better then just gatorade. He still drinks gatorade too. I think they are making some of them without the high fructose corm syrup that upsets so many peoples stomachs.

missceliac2010 Apprentice

I had a similar and strange (while driving) foggy, dizzyness experience the other day. I was driving my kids to school and then heading to work. On a major freeway, I got very dizzy and foggy-headed. My son yelled "MOM, WATCH OUT!" (He's 13.) HE had to grab the wheel and put us back in our lane!! Oops. I was veering towards a big rig next to me.

I pulled over, got my wits about me (as much as possible), pulled it together and made our way to my Moms house, about 10 mins away. I called my work and told them I was sick, and had my Mom take my boys to school. (I got lucky...My Mom is in the middle of moving to another city and changing jobs and happened to be home.)

I called my doctor and spoke to him, and he basically said he didn't know what happened. Doc said it could be anything from low blood sugar, a glutening, or a lactose allergy reaction. I went right to bed, and woke up 4 hours later still a bit foggy headed but overall much better.

Anyway, your post intrigued me, because we are in similar boats. I was glad to see the current and future responses.

Good luck. You are not alone!

Heather

Looking for answers Contributor

Adrenal fatigue can lead to low cortisol levels, which are the hormones needed to get us going in the morning. I used to get extremely fatigued in the morning and would have to fight to stay awake...never was dizzy though. However adrenal faygue also affects electrolyte balance so it makes sense with the other suggestion of drinking an electrolyte enhanced drink in the morning. Btw, my naturopath said mixing high quality salt (he suggested the salt of mercola.com) with water is an ideal way to balance elctrolytes.

Anyways if this continues a simple saliva test can test cortisol levels. It took me 6 months to overcome it but I haven't had an episode since.

Excuse typos, I'm on an iPad.

aderifield Apprentice

Thanks for this info. My doctor ordered me off all supplements until my symptoms lighten up and I was wondering about how I could check for the appropriateness of each one.

Are you taking the vitamins in the morning? Try switching to taking them at night and see if it helps. Also make sure none of the vitamins are interacting with each other or other meds you could be taking. If you go to drugs.com they have an interaction checker and you can plug in vitamins as well as drugs to see if any interact and cause bad side effects. Also double check to make sure your vitamins are all gluten and dairy free. Some vitamins claim to be gluten free but have wheat grass, barley grass or oat grass in them.

sandsurfgirl Collaborator

Eletrolyte drinks are mainly sugar, salt, potassium & magnesium. Fruit juices like grape juice, OJ & apple juice have a lot. They don't have so much salt. Eat something salty or add salt to the juice. My son does football every morning in the summer and then worked outside. Having apple juice with pretzels or crackers replenishes him better then just gatorade. He still drinks gatorade too. I think they are making some of them without the high fructose corm syrup that upsets so many peoples stomachs.

Gatorade doesn't have high fructose corn syrup anymore.

There are natural electrolyte supplements you can buy at Whole Foods or sprouts. I tried quite a few of them. There are drops you can put in water, or powders in little packets. Ask someone in the vitamin section.

Actually, most of the electrolyte supplements have no salt at all. Gatorade is NOT high in sodium. A serving only has like 100mg of salt. Salt is not electrolytes. You need those trace minerals. Salt does help water stay in your cells through osmosis.

Liveenjoylife Apprentice

I had a similar and strange (while driving) foggy, dizzyness experience the other day. I was driving my kids to school and then heading to work. On a major freeway, I got very dizzy and foggy-headed. My son yelled "MOM, WATCH OUT!" (He's 13.) HE had to grab the wheel and put us back in our lane!! Oops. I was veering towards a big rig next to me.

I pulled over, got my wits about me (as much as possible), pulled it together and made our way to my Moms house, about 10 mins away. I called my work and told them I was sick, and had my Mom take my boys to school. (I got lucky...My Mom is in the middle of moving to another city and changing jobs and happened to be home.)

I called my doctor and spoke to him, and he basically said he didn't know what happened. Doc said it could be anything from low blood sugar, a glutening, or a lactose allergy reaction. I went right to bed, and woke up 4 hours later still a bit foggy headed but overall much better.

Anyway, your post intrigued me, because we are in similar boats. I was glad to see the current and future responses.

Good luck. You are not alone!

Heather

Hopefully some of these answers can help you too. Thankfully, I had my mother with me the last time this happened to me. Same here I had to pull over and let her drive. Look into the drinks with electrolytes in them too.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,953
    • Most Online (within 30 mins)
      7,748

    BabsCan
    Newest Member
    BabsCan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jacki Espo
      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
    • DebJ14
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.