Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Results Of My Test


sherrylynn

Recommended Posts

sherrylynn Contributor

Doc said the results came back as not celiac. My Vit D was only 13.5 and the normal is around 32 to 100. Been on the gluten free diet for 9 days now and my "D" is kinda gone. I only go 1 time a day now and it is still soft and unformed. He saie I could still have Celiac but didn't eat enough gluten to show up on test, or it could be in early stage and not have enough antibody's to show up on test.

He said he thought the leg cramps and bone pain was from being so low on Vit D and because of that could not absorb calcium and magnesium so I am now taking 50,000 mg of vit D every other day for 2 weeks then 1 tab of 50,000 once a week after that. I am also on magnesium 4 pills a day for the muscle cramps.

I told him I am going to stay on the diet because I feel better on it. and I have lost 4 pounds in 9 days on this diet. I stopped taking the Bentyl because I started to get constipated from it and the diet is working.

My A1c was very bad and he is going to retest that in 4 months. It was 6.0 the range for diebeties is 6.4 and up. so he said to not eat any gluten, rice potatoes and to stick to just fruits vegtables and meat.

my cholestol was very bad too. my hdl was only 39 and my ldl was 109 so I have to work on that going down too.

what I don't understand is, if my "D" was caused by a low vit D then why did my "D" start to go away from this diet?

So now I don't know, Do I have celiac or not.

What what do you all think?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I think your wise to stay on the diet. I don't think low vit D can cause diarrhea so I think it is your diet change that is relieving that. Your A1c may also normalize after you have been on the diet for a bit. Being sick can raise the blood sugar levels but do keep an eye on it.

Skylark Collaborator

You have what's called non-celiac gluten intolerance. As your doctor says, it may be subclinical celiac disease since your D is so low. It's probably a good idea to stay gluten-free.

cassP Contributor

yes, ditto and ditto.

also, i recently read a study where celiacs or gluten intolerant patients had their cholesterol retested after being on a gluten free diet. it seemed as though being gluten free for some time may have raised their HDL, and lowered their Triglycerides. but had no effect on their LDL.

forgot where i read it. i was a little perturbed, cause my HDL & Triglycerides are great... its my LDL that i need to lower. ???

sherrylynn Contributor

:) Thank you guys, you made me feel a little better. I am sooo depressed right now and tired. I wish I didn't have to be on this diet. But I will continue because maybe I will feel better about it in the long run.

I guess I need to get some good recipes for meat and veggies. I am not a good cook right now and my food is soooo boring. :rolleyes:

mushroom Proficient

Why don't you start out with some stew recipes now that fall is coming on. You can make delicious dishes with chicken and beef with root veggies, onions, mushrooms, greens, some gluten-free chicken or beef stock, oodles of recipes on the web and most of them are gluten free. You can thicken with potato, gluten free flour or cornstarch. And the good part about stews is that you can make a big pot with plenty of leftovers for other dinners or to take for lunch if you have a microwave. :)

sherrylynn Contributor

Why don't you start out with some stew recipes now that fall is coming on. You can make delicious dishes with chicken and beef with root veggies, onions, mushrooms, greens, some gluten-free chicken or beef stock, oodles of recipes on the web and most of them are gluten free. You can thicken with potato, gluten free flour or cornstarch. And the good part about stews is that you can make a big pot with plenty of leftovers for other dinners or to take for lunch if you have a microwave. :)

:D Hey! thank you mushroom! I didn't even think about stews. That sounds like a good idea and will save me money too. I am good with roast and stuff, just have to leave out the corn and potatoes. Really am going to miss those. but maybe after my blood sugar get better I can have potatoes again but think I am going to keep away from corn as much as possible.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

I like to saute chicken breasts in olive oil, flavored with salt, pepper, marjoram, basil, and rosemary. Also, there are many gluten-free barbecue sauces so you can bake, broil, grill or crockpot meat with BBQ sauce. Sweet Baby Ray's is my favorite gluten-free sauce. Or cook steak with a little Lea & Perrins worchestershire (gluten-free). Also you can never go wrong with salt, pepper, onions, and garlic. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,962
    • Most Online (within 30 mins)
      7,748

    Roieliu
    Newest Member
    Roieliu
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Hello @CeliacNew, If you are Vegan to help you feel better, reconsider returning to omnivore.  Actually, since you are already on a very restrictive diet, transitioning to gluten free might be easier for you.  Read the ingredient labels, Particularly vitamin D and Choline require supplements for vegan diet because our primary source is sun, eggs and beef.  B12 also.
    • Wheatwacked
      Once you've completed testing and still don't have improvement, start a trial gluten free diet.  Looking for imprvement that may indicate Non Celiac Gluten Sensitivity, which is 10 times more prevalent than Celiac Disease. Deficiencies in vitamins B6, B12, D, and C can manifest as skin rashes.  Virtual guaranty you are deficient in vitamin D.
    • cameo674
      So those rs numbers tell researchers where the dbSNP is located in a Genome so that other reasearchers or an AI system can look in that specific spot for that Snip of information.  You can look those rs # s by pasting the numbers after rs into the lookup on this page https://www.ncbi.nlm.nih.gov/snp/ right under the Blue header bar at the top of the webpage.  Since you are not a researcher, I do not know how this will help you though.
    • cameo674
      So I posted here once before, and everyone advocated that I get into a GI doc.  I finally got into my functional health appointment on 6/16 to get my blood results evaluated and get the Gastro referral. I was told that I would be fortunate to see a gastro doctor by December, because of the number of people waiting to get in, but they did believe that I needed to see a GI doc among others.  Well, the stars aligned. I got home. I looked at MyChart and it showed an appointment available for later that same day. I never clicked so fast on an appointment time. The gastro doc ran some additional blood work based off the December values that had confirmed my daughter's suspicion that I have undiagnosed stomach issues.  Gastro has also scheduled me to get an upper endoscopy as well as a colonoscopy since it has been 8 years since my last one. She said it would rule out other concerns if I did not show Celiac per the biopsies.  Those biopsies will not occur until August 29th and like everyone here stated, Gastro wants me to keep gluten in my diet exactly as everyone suggested. To be honest, I was barely eating any gluten since I figured I would have plenty of time to do so before testing.  Doc is also looking for the cause of the low level heartburn that I have had for 30 years.  I have mentioned the heartburn to PCPs in the past and they always said take a tums or other OTC drug.  The upper endoscopy is for ruling out eosinphilic esophagitis, h. pylori, and to biopsy the duodenal bulb and second portion to confirm or exclude celiac. The colonoscopy will have random biopsies to rule out microscopic colitis. I didn't really catch her reasoning for the bloodwork.  Doc looked at the December numbers and said they were definitely concerning for Celiac.  She also said, “Hmm that’s odd; usually it’s the reverse”, but I did not catch which result made her say that. She seems very through.  She also asked why I had never bothered to see a GI before.  To be honest, I told her I just assumed that the heartburn and loose stool were a part of aging.  I have been gassy since I was born and thought constantly passing gas was normal?  Everyone I know with Celiac have horrible symptoms that cannot be attributed to other things.  They are in a lot of stomach pain.  I do not go through that.  I attribute my issues to the lactose intolerance that comes with aging, but have slowly been eliminating foods from my diet due to the heartburn or due my assumption that they did not agree with a medication that I was prescribed. I have already eliminated milk products especially high fat ones like ice cream; fats like peanut butter; acids like citrus and tomatoes; chocolate in all forms; and breads more because it is so hard to get in 100 grams of protein if I eat any foods that are not a protein.  I would not have even done the testing if my daughter had not brought up the fact that she thought I might have an undiagnosed condition since she has issues with bloating and another sibling has periodic undiagnosed stomach pain that GI docs throw pills at instead of helping.  Who knew that Bristol scale 5 and 6 were not considered normal especially multiple times a day? I watched my MIL go through basically the same bowel changes starting at 50 so to be honest, I really did think it was normal before this week's appointment.   December 2024's blood tests ran through Quest Labs were:  Deamidated Gliadin (IgA) 53.8 U/mL Above range >15.0 U/mL; Deamidated Gliadin (IgG) >250.0 U/mL Above Range >15.0 U/mL; Tissue Transglutaminase (IgA) 44.0 U/mL Above range >15.0 U/mL; Tissue Transglutaminase (IgG) <1.0 In range <15.0; Immunoglobulin A (IgA) 274 mg/dL In range 47-310 mg/dL 6/16/25 bloodwork:  Until today, I did not really know what all the four tubes of blood were for and since I did not understand the results, I got into the clinical notes to see what was ordered, but it did not exactly explain why for everything. Immunoglobulins IGG, IGA, IGM all came back in range:  IGG 1,010 mg/dL In range 600-1,714; IgA 261 mg/dL In range 66-433 mg/dL; IGM 189 mg/dL In range 45-281.  How do these numbers help with diagnosis? Google says she checked these to see if I have an ongoing infection? I do have Hashimoto's and she did say once you have one autoimmune disease others seem to follow. Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies? Comprehensive Metabolic Panel: Everything was in the middle of the normal range.  Google says this just says I am metabolically healthy. Tissue Transglutaminase ABS test results – Done by the Mayo Clinic’s Labs –  T-Transglutaminase IGA AB --Value: 3.1 U/mL – Normal Value is <4.0 (negative) U/mL; Tissue Transglutaminase, IgG -- Value: 15.3 U/mL High -- Normal Value is <6.0 (Negative) U/mL – Interpretation Positive (>9.0) – These are the only labs the GI did that have been labeled Abnormal.  I am confused at how/why these came back different than the December labs? Because these numbers seem to be the opposite of what the were in December and I know I have eaten less gluten.  They were definitely measured differently and had different ranges. This must be why she said they are usually opposite? Molecular Stool Parasite Panel said I was Negative for Giardia Lamblia by PCR; Entamoeba Histolytica by PCR and Cryptosporidium Parvum/Hominis by PCR.  So at least I do not need to do a parasite cleanse like everyone on TikTok seems to be doing. So I guess, I am just really asking why the Tissue Transglutaminase numbers are different.  Was it because they were truly different tests? Is it because I have not consumed the crazy amount of gluten one is suppose to eat prior to testing? To be honest, I thought that was only for the biopsy testing. I generally only eat twice a day, and the thought of eating the equivalent of 6 slices of bread is daunting. Even in my youth, I probably only consumed the equivalent of maybe 3 slices a day. Like I said before, now I usually focus on trying to eat 60 gram of protein.  I am suppose to consume 100 grams, but have failed to succeed. I will focus on eating gluten starting in July now that I know my procedure date.
    • Scott Adams
      I agree with @trents and wiping down the spot you eat your lunch, and eating the food your brought from home should be safe for even sensitive celiacs. Gluten can jump on your food, so it would likely better better for you to continue eating where you prefer.
×
×
  • Create New...