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I'm Really Confused!

Daisy1

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Daisy1 Newbie
Daisy1
Posted

Hi everyone!! I have been feeling really lousy for about a month, where at first I would get very sick just a few minutes after eating supper foods, but mostly pasta, and have to run to the washroom. Then my stomach is so irritated after eating many foods I didn't know what to do. So I went to the doctor, and he immediently thought it was Celiac Disease. I had blood tests takes two days ago, and also stool samples. Since they had to be sent away to the nearest city, I have to wait at least a week. I feel so gross, and I haven't been able to keep anything down so I am tired and weak :( Would anyone be able to help me with whether or not they think that it is Celiac Disease, and PLEASE give me ANY tips for foods that may make me feel okay after eating (which seems very impossible as my stomach didn't even want Soup Broth), or tips of what I can do to just feel better. I appreciate all of this as I am just a teen and it's all so confusing for me!!

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Guest Libbyk
Guest Libbyk
Posted

I can't give you an answer on whether you have celiac disease, but given your complaints, it sounds very possible. :(

As far as safe foods go, when i was really sick, the foods that worked for me were

jello

plain rice, maybe with some homemade (or any gluten free) chicken broth

tea

hot rice ceral with a little honey (like cream o' rice, just make sure the ingredients don't include wheat, oats, barley or gluten)

more tea

apple sauce

with ANY thing, if you suspect celiac, make sure it is gluten free.

good luck honey, keep posting. I know this board has been a warm hearth in a dark night for every one of us.

Libby

Daisy1 Newbie
Daisy1
Posted
  • Author

Libby,

Thanks so much for your reply! Since I posted my message today, I was wondering if ANYONE would respond! I went out to the movie tonight and it was the first time I've been out of the house since Tuesday afternoon, and I was feeling fine until I got to the theater and my boyfriend got me to eat a little since I've barely eaten all week.

I was so hungry at supper that I cut up fresh strawberries, kiwi, oranges and pineapple and ate that. I managed to eat a little before I was scared to continue. It's just been really tough these past weeks, and I've never wanted to have something stop so quickly. I keep thinking about if I have Celiac...it's gonna drive me crazy to give up my favorite foods!!

This next week is gonna be the hardest of my life and I don't know how I'm gonna get through it! My boyfriend has been great, but I know it's boring for him to stay inside with me day after day since I feel too yucky to go out!

I've also been extremely tired because I can't sleep either because I'm owrried or because I'm running to the bathroom 8 times a night. Also on my mind...what if it's not Celiac?? Then what? I know that something is REALLY wrong with me and I'm worried that they won't be able to find out what it is!

I've been stressed enough the past year, and this isn't helping one little bit! The week has been okay not having to worry about school (a few days off) but going back to school Monday is gonna be so hard. I'm also supposed to go to Cancun with my boyfriend for Easter, and I'm stressed about not feeling better! I just feel AGGGHH! PLEASE help!!

Guest Libbyk
Guest Libbyk
Posted

Daisy-

Not sure i have any wise words for you, excpet we have all been there. :rolleyes: I know how scary it is to not know what is wrong with you, and feel so crummy. Are you able to keep foods in you at all? Even basic ones? How did eating the fruit go? I can imagine all that fuit being really acidic on a tender tummy.

I know the thought of giving up favorite foods is hard. for me, I am grateful that mine disease got SO bad all of a sudden. Like an alcoholic, I have truly hit bottom. I went from a vibrant, strong (if nearly always nauseaus) happy 23 year old, to a weak, vomiting, passing out miserable kitten. Overnight. Two trips to the emergency room and a night in the hospital later, I was truly ready to embrace WHATEVER treatment there was.

We (my family) are all pretty sure my older sister has it, but since her version is more chronic, and les acute than mine, she is less than vigorous with the diet. <_< I have no doubt, and so have no ambiguity in my diet. I am still making mistakes, but having "hit bottom" there is NO cheating for me. I know where that goes, and I HATE being helpless.

I think it is pretty natural that you feel stressed out. When you feel crappy, it is stressful, and when life is stressful, you feel crappy. Vicious cycle, eh?

Good luck in school! Having to function when feeling crummy is so hard. sometimes it makes me feel worse, but sometimes it is good, takes my mind off of things. How long until easter? damn. Again, good luck.

peace

Libby

Daisy1 Newbie
Daisy1
Posted
  • Author

Libby,

Thanks again for your advice. Easter break is in about a month, and I'm looking forward to it because it will be nice to get away, but also not, because I'm worried that I might not feel better.

The fruit was a little hard on my stomach, but it was better than anything else. I'll try some tea today, and see how that helps my stomach. I'm one day closer to knowing, which is great. I'll let you know how things go!

Guest Libbyk
Guest Libbyk
Posted

how long do you have to wait for your test results? Is your family supportive? Nothing like being really sick for a longer than a day to let you know how people really feel.

Peace to your belly

Libby

Daisy1 Newbie
Daisy1
Posted
  • Author

The test results should be back late in the week. I have family problems, so I do not recieve a lot of support so that makes it even harder, but my boyfriend and his mom are really good to me!! Instead of me pushing away food, she always has fresh fruit and she's making me tea.

I'm really ancy about the results, and I hope they find out what's wrong soon, because I really want to be healed :(

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flagbabyds Collaborator
flagbabyds
Posted

when i get gluten i take promethizine i have no idea how to spell that it settles the stomach enough so you can get some fluids in and it will stop the diahreah and vomiting

Daisy1 Newbie
Daisy1
Posted
  • Author

Thanks! Is that something I can just get from the pharmacy, or does it take a prescription???

Guest Disturbed
Guest Disturbed
Posted

the stuff I have is prescription....

Disturbed

Daisy1 Newbie
Daisy1
Posted
  • Author

Hi Libby.

I just wanted to let you know that my mom called the hospital yesterday and they still haven't recieved my results back yet. It's frustrating because it hasn't been a good week, and I can't wait to get this confusion over with.

Guest Libbyk
Guest Libbyk
Posted

Lame. I think it helps to keep calling, and asking and saying hello and remindeing them you exist. they don't let time go by onp urpose, but I got the fastest action when my dad (very nicely) harrased the hospital people, to keep my name on the top of the pile. hold in there.

Lib

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
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