Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Really Confused!

Daisy1

Recommended Posts

Daisy1 Newbie
Daisy1
Posted

Hi everyone!! I have been feeling really lousy for about a month, where at first I would get very sick just a few minutes after eating supper foods, but mostly pasta, and have to run to the washroom. Then my stomach is so irritated after eating many foods I didn't know what to do. So I went to the doctor, and he immediently thought it was Celiac Disease. I had blood tests takes two days ago, and also stool samples. Since they had to be sent away to the nearest city, I have to wait at least a week. I feel so gross, and I haven't been able to keep anything down so I am tired and weak :( Would anyone be able to help me with whether or not they think that it is Celiac Disease, and PLEASE give me ANY tips for foods that may make me feel okay after eating (which seems very impossible as my stomach didn't even want Soup Broth), or tips of what I can do to just feel better. I appreciate all of this as I am just a teen and it's all so confusing for me!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Libbyk
Guest Libbyk
Posted

I can't give you an answer on whether you have celiac disease, but given your complaints, it sounds very possible. :(

As far as safe foods go, when i was really sick, the foods that worked for me were

jello

plain rice, maybe with some homemade (or any gluten free) chicken broth

tea

hot rice ceral with a little honey (like cream o' rice, just make sure the ingredients don't include wheat, oats, barley or gluten)

more tea

apple sauce

with ANY thing, if you suspect celiac, make sure it is gluten free.

good luck honey, keep posting. I know this board has been a warm hearth in a dark night for every one of us.

Libby

Daisy1 Newbie
Daisy1
Posted
  • Author

Libby,

Thanks so much for your reply! Since I posted my message today, I was wondering if ANYONE would respond! I went out to the movie tonight and it was the first time I've been out of the house since Tuesday afternoon, and I was feeling fine until I got to the theater and my boyfriend got me to eat a little since I've barely eaten all week.

I was so hungry at supper that I cut up fresh strawberries, kiwi, oranges and pineapple and ate that. I managed to eat a little before I was scared to continue. It's just been really tough these past weeks, and I've never wanted to have something stop so quickly. I keep thinking about if I have Celiac...it's gonna drive me crazy to give up my favorite foods!!

This next week is gonna be the hardest of my life and I don't know how I'm gonna get through it! My boyfriend has been great, but I know it's boring for him to stay inside with me day after day since I feel too yucky to go out!

I've also been extremely tired because I can't sleep either because I'm owrried or because I'm running to the bathroom 8 times a night. Also on my mind...what if it's not Celiac?? Then what? I know that something is REALLY wrong with me and I'm worried that they won't be able to find out what it is!

I've been stressed enough the past year, and this isn't helping one little bit! The week has been okay not having to worry about school (a few days off) but going back to school Monday is gonna be so hard. I'm also supposed to go to Cancun with my boyfriend for Easter, and I'm stressed about not feeling better! I just feel AGGGHH! PLEASE help!!

Guest Libbyk
Guest Libbyk
Posted

Daisy-

Not sure i have any wise words for you, excpet we have all been there. :rolleyes: I know how scary it is to not know what is wrong with you, and feel so crummy. Are you able to keep foods in you at all? Even basic ones? How did eating the fruit go? I can imagine all that fuit being really acidic on a tender tummy.

I know the thought of giving up favorite foods is hard. for me, I am grateful that mine disease got SO bad all of a sudden. Like an alcoholic, I have truly hit bottom. I went from a vibrant, strong (if nearly always nauseaus) happy 23 year old, to a weak, vomiting, passing out miserable kitten. Overnight. Two trips to the emergency room and a night in the hospital later, I was truly ready to embrace WHATEVER treatment there was.

We (my family) are all pretty sure my older sister has it, but since her version is more chronic, and les acute than mine, she is less than vigorous with the diet. <_< I have no doubt, and so have no ambiguity in my diet. I am still making mistakes, but having "hit bottom" there is NO cheating for me. I know where that goes, and I HATE being helpless.

I think it is pretty natural that you feel stressed out. When you feel crappy, it is stressful, and when life is stressful, you feel crappy. Vicious cycle, eh?

Good luck in school! Having to function when feeling crummy is so hard. sometimes it makes me feel worse, but sometimes it is good, takes my mind off of things. How long until easter? damn. Again, good luck.

peace

Libby

Daisy1 Newbie
Daisy1
Posted
  • Author

Libby,

Thanks again for your advice. Easter break is in about a month, and I'm looking forward to it because it will be nice to get away, but also not, because I'm worried that I might not feel better.

The fruit was a little hard on my stomach, but it was better than anything else. I'll try some tea today, and see how that helps my stomach. I'm one day closer to knowing, which is great. I'll let you know how things go!

Guest Libbyk
Guest Libbyk
Posted

how long do you have to wait for your test results? Is your family supportive? Nothing like being really sick for a longer than a day to let you know how people really feel.

Peace to your belly

Libby

Daisy1 Newbie
Daisy1
Posted
  • Author

The test results should be back late in the week. I have family problems, so I do not recieve a lot of support so that makes it even harder, but my boyfriend and his mom are really good to me!! Instead of me pushing away food, she always has fresh fruit and she's making me tea.

I'm really ancy about the results, and I hope they find out what's wrong soon, because I really want to be healed :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flagbabyds Collaborator
flagbabyds
Posted

when i get gluten i take promethizine i have no idea how to spell that it settles the stomach enough so you can get some fluids in and it will stop the diahreah and vomiting

Daisy1 Newbie
Daisy1
Posted
  • Author

Thanks! Is that something I can just get from the pharmacy, or does it take a prescription???

Guest Disturbed
Guest Disturbed
Posted

the stuff I have is prescription....

Disturbed

Daisy1 Newbie
Daisy1
Posted
  • Author

Hi Libby.

I just wanted to let you know that my mom called the hospital yesterday and they still haven't recieved my results back yet. It's frustrating because it hasn't been a good week, and I can't wait to get this confusion over with.

Guest Libbyk
Guest Libbyk
Posted

Lame. I think it helps to keep calling, and asking and saying hello and remindeing them you exist. they don't let time go by onp urpose, but I got the fastest action when my dad (very nicely) harrased the hospital people, to keep my name on the top of the pile. hold in there.

Lib

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    2. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    3. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
    4. knitty kitty
      - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten! Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten. I can get glutened from the bakery section at the grocery store. The nose and mouth drain into the digestive system and can trigger systemic reactions. I find the histamine release...
    5. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Guinness, can you drink it?

      This article may be helpful:
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,244
    • Most Online (within 30 mins)
      7,748
    tmperrella
    Newest Member
    tmperrella
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.