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Do You Think I Have Celiac?

Dan2010

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Dan2010 Newbie
Dan2010
Posted

So for the past 2-3 months I have been dealing with a new health issue and I'm not sure what it is. There was about a month

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Dixiebell Contributor
Dixiebell
Posted

Welcome! The small intestine is quite large, so they could have not taken enough samples or just missed the damaged area all together. If you have elevated antibodies and damage to your intestine, you should go gluten free. After a few months time you can have blood tests done again to see if the levels are going down. If something else besides celiac is going on, being gluten free will not mask those other problems. If you have not had blood tests for vitamin levels yet I would get that done soon. Each time you go back to eating gluten you are damaging your body. Celiac disease, I believe, has to have a trigger. For some, stopping smoking has been a trigger. Others, pregnancy/childbirth, car accidents, flu, surgery and I'm sure many more.

You can post your test results here and get some feedback about them.

Ask questions. You will get so much help here.

GFinDC Veteran
GFinDC
Posted

Celiac can show up at any point in life, youth, middle age or old age. So it's not odd that you would suddenly have symptoms after years of eating gluten without symptoms. You could ask your doctor for a copy of your test results and post them. Some people here are good at interpreting the results. I get the impression you were some what gluten lite before your testing? That could give a false result on the testing. But the small intestine is 22 feet long and the endoscopy can reach only a few feet at most. SO there is lots of room for other areas to be damaged that the docs can't test. If you had flattened mucosa you should get a copy of the analysis of the villi also. They aren't really supposed to be flattened and something caused that. Some doctors don't have a lot of experience with celiac and don't interpret results correctly.

Skylark Collaborator
Skylark
Posted

Hi there. Which antibodies were elevated? Also were any interstitial lymphocytes seen in your biopsy (Marsh 1)? You may need to ask for the actual biopsy report to find this out. Some doctors refuse to call anything but Marsh 3 or 4 celiac, even though Marsh 1 can be an early stage of the disease.

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