Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What's Up With This?

nananana

Recommended Posts

nananana Newbie
nananana
Posted

I went gluten-free in support of my husband. Totally unexpectedly, my health began to improve. A bumpy, sometimes itchy, rash just under the skin on my arms disappeared! My hair quit falling out. Nails were stronger. Mind sharper. Stomach flattened. A lot of "little things" got better.

Headaches were something I never had. Not seldom, NEVER! Never had allergies -runny nose, itchy eyes, scratchy throat - never a sinus infection. (all of my siblings do)

BUT, after 5 weeks of gluten-free, I suddenly had a terrible headache at my temples and along the back of my neck. I checked the label and there it was, we had accidently eaten gluten! My stomach became upset - was I becoming a hypochondriac?? By the end of the day the rash and brain fog were back. And now, whenever a headache comes, we check for the gluten connection. And it is always there!

Does this sound crazy to you? I never had a headache eating LOTS of gluten - but now that I've been gluten-free, I react to a small crumb of wheat? Has anyone else experienced this?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


T.H. Community Regular
T.H.
Posted

I believe this is where I sound like granpa Simpson and say: welcome to my world! ;)

Most Celiacs notice that their symptoms to gluten increase - or start in the first place - after they have been gluten free for a while. So...sounds like you may have found out something about your health, eh?

That is completely where I'm at, although I was diagnosed officially (due to something else entirely). I never noticed a reaction to eating gluten. I had health problems, but they didn't coincide specifically to me eating something and then reacting, you know? Now, after a year away from gluten? If I get the tiniest, teeniest amount, I get vertigo, nausea, headaches, vomiting.

Blech.

So your experience is completely within the Celiac realm of possibility. Although it congratulations on figuring out something that is making you feel better and healthier!!

psawyer Proficient
psawyer
Posted

It seems to be fairly common for people to develop a "tolerance" level when constantly eating gluten, and then lose it after being gluten-free for a while.

GlutenFreeManna Rising Star
GlutenFreeManna
Posted

Your experiences are really common. I never had stomach problems prior to going gluten free. I had other symptoms, but not the typical digestive ones. Now the smallest crumb and I have bad stomach pain and D for days in addition to all my other symptoms. It sounds like you have a gluten intolerance. Welcome to the board!

nananana Newbie
nananana
Posted
  • Author

I can't thank you all enough for explaining this to me! This site has really been helpful. I've been looking over all of the gluten health issues and unfortunately it reads like my family's history.

We have been off gluten for about 6 weeeks now, so should we send for the Enterolab test or is there another one that would give us an accurate result?

ravenwoodglass Mentor
ravenwoodglass
Posted

I can't thank you all enough for explaining this to me! This site has really been helpful. I've been looking over all of the gluten health issues and unfortunately it reads like my family's history.

We have been off gluten for about 6 weeeks now, so should we send for the Enterolab test or is there another one that would give us an accurate result?

You could go with Enterolab but keep in mind that they don't diagnose they look for antibodies in the stool but that is not considered diagnostic by most doctors. For all the other available tests you would need to go back on gluten for a couple of months before testing.

nananana Newbie
nananana
Posted
  • Author

My husband is doing so well - I don't think we could take a chance! This diet has saved his life . . . . .

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,995
    • Most Online (within 30 mins)
      7,748
    Naner4
    Newest Member
    Naner4
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By knitty kitty · Posted

      @sleuth, Has your son been checked for nutritional deficiencies?  All of those symptoms can be caused by malnutrition.  I had severe malnutrition that went unrecognized by my doctors.  Intense fatigue, brain fog, depression, anxiety, and gastrointestinal distress are symptoms of deficiencies in the eight essential B vitamins, especially Thiamine B1, which becomes low first because the demand is higher when we're sick.     Celiac Disease causes inflammation and damage of the intestinal lining which inhibits absorption of essential nutrients.  Checking for nutritional deficiencies is part of proper follow up care for people with celiac disease.   Is your son taking any vitamin supplements?  Most supplements contain thiamine mononitrate which in not readily absorbed and utilized by the body.  Benfotiamine is a form of thiamine that is shown to promote intestinal healing.  Benfotiamine is available over the counter.  Benfotiamine is safe and nontoxic.   Is your son eating processed gluten-free foods?  Gluten-free processed foods are not required to be enriched with vitamins like their gluten containing counterparts.   Is your son following a low histamine diet?  Histamine is released as part of the immune response to gluten and other foods high in histamine.  High levels of histamine in the brain can cause anxiety, insomnia, and depression.  The body needs the B vitamins to make the enzyme Diamine Oxidase (DAO) to break down and clear histamine.  DAO supplements are available over the counter.  Vitamin C helps clear histamine as well.  Some people find over the counter antihistamines helpful as well, but they're not for long term use.   Nicotine has antihistamine-like properties, but can also irritate the gut.  Tobacco, from which nicotine is derived, is a nightshade (like tomatoes, potatoes, peppers and eggplant).  Nightshades contain alkaloids which affect gastrointestinal permeability, causing leaky gut syndrome.  Nicotine can cause gastrointestinal irritation and alter for the worse the microbiome. Safer alternatives to Nicotine that have antihistamine properties include Lemon Balm (Sweet Melissa),  Passion Flower, Chamomile, and Bilberry.  They can be taken as supplements, extracts, or tea.  These will help with the anxiety, insomnia and depression in a much safer way. Oolong tea is also helpful.  Oolong tea contains the amino acid L-Theanine which helps the digestive tract heal.  (L -Theanine supplements are available over the counter, if not a tea drinker.)  Tryptophan, a form of Niacin B3, also helps calm digestive symptoms.  Another amino acid, L-Lysine, can help with anxiety and depression.  I've used these for years without problems.   What ways to cope have you tried in the past?
    • Scott Adams
      Gluten free nuts

      By Scott Adams · Posted

      They are a sponsor here, and I did noticed a free shipping coupon: GFships
    • Scott Adams
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By Scott Adams · Posted

      In general if it is labelled gluten-free then it should be ok for most celiacs, however, those who are super sensitive (which is most who have dermatitis herpetiformis) may want to eat only certified gluten-free items, which are supposed to test down to 10ppm (but don't always!).
    • Wheatwacked
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Wheatwacked · Posted

      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Outgrow celiac?

      By Wheatwacked · Posted

      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.