Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs - A Disease Of It's Own Or Just A Symptom?


Courtney101

Recommended Posts

Courtney101 Rookie

Hi everyone,

I was just wondering what your thoughts on IBS are? My doctor mentioned it to me, and after doing some basic research on it, I'm not sure I feel like this is a true diagnosis. It seems to me that "Irritable bowel syndrome" is just the name given to a group of symptoms. But I am finding it hard to find anywhere the cause behind the symptoms. Where's the scientific basis behind it?

I don't know, it just kind of seems like perhaps this is the diagnosis they give you when they can't find what's really wrong with you. I could be seeing this entirely wrong, since I'm really not that knowledgeable about it. I'd love to know other people's thoughts.

Thanks,

Courtney


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AlysounRI Contributor

I = I'm

B = Basically

S = Stumped

It's a lazy lump diagnosis for doctors who are not willing to get to the bottom what the symptoms are really indicating.

mushroom Proficient

I think you've hit the nail on the head fair and square. It's a waste basket diagnosis when they can't think of anything else, although a lot of doctors take it very seriously :unsure:

And even precsribe medications for it. To alleviate some of the symptoms without attempting to find the cause :rolleyes: Most of us on here have been diagnosed with IBS at some time in the past.

AlysounRI Contributor

And even precsribe medications for it. To alleviate some of the symptoms without attempting to find the cause

I got the "I'm Basically Stumpted" from this board :)

A lot of docs even try to prescribe anti-depressants for it - I suppose they figure it's related to anxiety.

But to prescribe anti-depressants for your stomach/intestinal tract just seems wrong somehow, you know???

WheatChef Apprentice

It seems to me that "Irritable bowel syndrome" is just the name given to a group of symptoms.

That is actually the official medical definition of a syndrome. It is nothing more than the grouping of symptoms to which the doctor is not aware of the cause of yet. It's use as a diagnosis is pretty much the hallmark of a lazy/irresponsible doctor. They're basically having you come in, tell them your symptoms and then charging you for the honor of them giving it a name. There is no cause of irritable bowel syndrome, there is no cure, this is because it does not exist. All that there really is to IBS is a matter of semantics, you say the list of symptoms, your doctor says IBS, you're both saying the same thing and are both no where near closer to fixing or even finding the problem.

Courtney101 Rookie

I'm so glad that others feel the same way. As for prescribing medications for it, I think that's aweful. It's only masking the symptoms, not treating the cause. Some doctors seem to have no idea.

My dad has always had digestive issues, had all the testing done years ago (including celiac) and everything came back negative. So of course he was told he had IBS and sent home with no real answers. Recently his symptoms have got worse, so he's just had a colonoscopy and endoscopy, and is still waiting for results. But the doctor who did these procedures handed him an IBS info sheet as he left. How reassuring is that?

I'm just worried that I'm going to end up in the same position, but deep down, I know there has to be something else going on. My grandma has also had similar problems all her life. I personally don't see the liklihood that 3 generations could have IBS and nothing else.

gf-soph Apprentice

I was given the IBS "diagnosis" when I had positive gluten blood tests and a negative biopsy. I went gluten free and had great improvements, but still had significant problems. I had more testing recently and was given IBS again, and recommended low dose antidepressants. The dr said it wasn't to reduce anxiety but to improve the signalling within the gut.

I didn't go on them, I went on an elimination diet instead, and was able to have several days with totally normal gut functioning. Now I'm wading through the endless process of food challenges, but I know that there is some combination where I will have a totally normal digestive system.

IBS is a description, and I don't need a dr to tell me when I can't digest properly! If a dr was happy with that, I wouldn't go back as they aren't trying hard enough.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shopgirl Contributor

A lot of docs even try to prescribe anti-depressants for it - I suppose they figure it's related to anxiety.

But to prescribe anti-depressants for your stomach/intestinal tract just seems wrong somehow, you know???

I'm not a fan of the IBS diagnosis either. That being said, though, there human gut produces serotonin and the theory is that anti-depressants that block the overproduction of serotonin in the gut

Skylark Collaborator

I agree with Shopgirl, and there is scientific evidence that abnormal gut serotonin signaling causes IBS in some people. The antispasmotics really help some people who seem to have gut motility problems. The big problem comes when doctors don't have the time or the inclination to dig deeper. Is it really only serotonin imbalance, or is there celiac disease, food intolerances, allergies, Crohn's, colitis, or some other underlying cause? I think doctors are too quick to hand out IBS labels and pills but it's partly because our society has pushed for cheap, fast health care and pills.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,330
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.