Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Capsule Endoscopy & List Of gluten-free Meds


Loey

Recommended Posts

Loey Rising Star

I had my capsule endoscopy yesterday. It was not fun because I was constipated (MiraLAX didn't take until today). I don't think it normally causes the severe pain I experienced. I didn't even know if they would let me have it but they did. Swallowing the capsule wasn't a problem.

Results take 2-3 weeks because it takes 55,000 pictures.

Loey

P.S. here's a list of medications that are supposed to be gluten-free. As with everything we need to read the labels carefully and also know our triggers and allergies.

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I had my capsule endoscopy yesterday. It was not fun because I was constipated (MiraLAX didn't take until today). I don't think it normally causes the severe pain I experienced. I didn't even know if they would let me have it but they did. Swallowing the capsule wasn't a problem.

Results take 2-3 weeks because it takes 55,000 pictures.

Loey

P.S. here's a list of medications that are supposed to be gluten-free. As with everything we need to read the labels carefully and also know our triggers and allergies.

Open Original Shared Link

Post the pics! :P

Loey Rising Star

Post the pics! :P

She just showed them to me on the recorder at the hospital. I can post a website that shows the pics of someone else.

Loey wink.gif

kareng Grand Master

She just showed them to me on the recorder at the hospital. I can post a website that shows the pics of someone else.

Loey wink.gif

Maybe you could print a few up to include in your Christmas cards! Great Aunt Mary will love it!

:P(I crack myself up)

Loey Rising Star

Maybe you could print a few up to include in your Christmas cards! Great Aunt Mary will love it!

:P(I crack myself up)

You crack me up too and laughter is supposed to be the best medicine!!!

Loeylaugh.gif

GFinDC Veteran

55K pics! That's enough for a home movie. Time for the Loey show!

Sounds like it is a simpler prep than for a colononoscopy. People have posted about taking something called movi-prep for those. They always seem impressed by the effectivenesss of it.

Loey Rising Star

Still feeling the prep since it didn't take Sunday night. My doctor called yesterday and they had already looked at all of the pictures. They found an ulcer and he thinks that's part of my increased pain. I have to have a biopsy done. Before this he was dismissive but was really nice yesterday (after they found something, of course). I might not have to change GI's after all. He's got an excellent reputation where I live. I just didn't think he was taking me seriously before this. He needs to find a special anesthesiologist because of some of the meds I'm on. The hospital where I used to live was large and that wasn't an issue. Better safe than sorry.

Swallowing the capsule wasn't a problem and I found the recording process interesting because I worked in TV for 20 years before I had my son. You're hooked up to 8 leads and have a recorder you carry in a shoulder pack. It's important that you make sure the leads stay connected. You return the recorder 8 hours after you swallow the capsule. The nurse showed me where the capsule was on the recorder when I swallowed it. She did it again when I returned the device (also to make sure it wasn't lodged).

I'm really glad I had the procedure. Hopefully the next procedure (along with remaining gluten-free) will help me to start feeling better. I need a job but can't even imagine subbing right now.

Loey smile.gif


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.