Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had My Endoscopy Yesterday....


kpryan

Recommended Posts

kpryan Apprentice

So I had my endoscopy yesterday after a 1 month gluten challenge. I know that many argue that 1 month is not long enough (I was gluten free for about 1 year to 18 months).

The biopies won't come back for 1 week. He also took biopsies for H pylori. The immediate endoscopy results were:

- Z-line irregular

- Small hiatal hernia present

- Gastritis (localized mild inflammation was found in the gastric antrum)

My doc thinks that I most likely just have reflux since the Nexium seemed to have resolved my bathroom issues. Although my chief complaint of bad abdominal bloating remains.

I guess we'll see when the biopsies come back, but I have a feeling that they'll be negative. Blood work has yet to come back either.

Yesterday was the first day in a month I didn't eat gluten, and my husband already said that i looked better ( less bloating...)

I asked if reflux caused bloating and he said not usually...and since I dont' really have heartburn...I'm still confused...

Not that i am wishing a disease on myself, but i just want a concrete answer...which i may have to realize i may not get.

So I'm going back off gluten now to see if that helps... but still had excessive bloating before when I was gluten-free..so hopefully some answer will pop up in the biopsies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, nobody "just has reflux". There has to be a cause, just as there is for the bloating, and any other symptom. And I absolutely agree that if you don't have heartburn, then you don't need heartburn medication. So I think your confusion is basically the result of the doctor's ignorance. Sorry, but I do believe you should seek a more informed doctor.

It would not be surprising if the test results come back negative. Many do, as you probably know.

For the bloating, I've found certain supplements to be helpful. Which are most likely suited may depend on the nature of those "bathroom issues" you eluded to. But one I'd immediately recommend is some digestive enzymes. Make sure they're derived from microbes, as these can withstand the normal acidity of the stomach. This also avoids the ones derived from barley (even though they usually claim gluten-free!). Both NOW Foods and Doctor's Best make some nicely comprehensive formulas, going much further than the typical sort.

Another thing to look into is additional food intolerances. Many find that eliminating other problem foods resolves bloating and other issues. Things like soy, dairy, corn, eggs, tree nuts, peanuts, and grains, have all been known to be similarly problematic for many people.

SGWhiskers Collaborator

Heartburn is one of the symptoms of reflux. Reflux can exist without heartburn though. As the stomach contents flow back into the esophageus, the esophageus can have damage at the cellular level. PPI's have been found to be the most effective means of controlling reflux. Now with that said, there are lots of ways to manage reflux without medications and their side effects. I agree, looking for the cause is a great approach. I was able to eliminate my reflux symptoms (no heartburn) buy avoiding my food triggers.

Highly acidic foods such as tomatoes and orange juice can be triggers. So can consuming beverages at the same time or immediately after meals.

You already know that even with a negative biopsy/bloodwork after so long gluten free with a short challenge, you may still have celiac. You may also have to go hunting for other possible food triggers for the bloating. I assume it is GI bloat vs. edema.

I'm curious about the reason for your gastritis. I had the same diagnosis on my biopsy, and no one ever gave me a good explaination except to say it might have been medications I was taking.

Jaymie Jaymz Rookie
So I'm going back off gluten now to see if that helps... but still had excessive bloating before when I was gluten-free..so hopefully some answer will pop up in the biopsies.

I've been gluten free for three weeks now and intitially my bloating got much better, but just this last week it's gotten bad again. I think it may be fructose malabsorption. I did without fruits and fructose-heavy foods yesterday and my stomach's already gone down considerably. I'm going to try it again today and see what happens. But it might be something you can experiment with. In all honesty, I hate the bloating above every other symptom.

I did intense exercise for five months straight and busted my butt, only to still have that pregnant look with my stomach. That's when I started researching and came across Celiac Disease. Until I figure all of this out, I'm just done with the workouts.

kpryan Apprentice

I hear you... I definitely hate the bloating most of all.

I too had looked into fructose mal....it was so frustrating though b/c that cuts out a lot!

I was even thinking that my abdominals were just really out of whack after having 2 kids so I really amped up my ab workouts...but the bloating is just not normal.

I've been gluten free for three weeks now and intitially my bloating got much better, but just this last week it's gotten bad again. I think it may be fructose malabsorption. I did without fruits and fructose-heavy foods yesterday and my stomach's already gone down considerably. I'm going to try it again today and see what happens. But it might be something you can experiment with. In all honesty, I hate the bloating above every other symptom.

I did intense exercise for five months straight and busted my butt, only to still have that pregnant look with my stomach. That's when I started researching and came across Celiac Disease. Until I figure all of this out, I'm just done with the workouts.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,222
    • Most Online (within 30 mins)
      7,748

    Amy E Rubin
    Newest Member
    Amy E Rubin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.