Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Or Not?

norahsmommy

Recommended Posts

norahsmommy Enthusiast
norahsmommy
Posted

My youngest daughter is 12 months old. Since introducing solids it seems we have been having problems. One of the first foods we introduced was oatmeal at 6 months and Gerber puffs. She became so very constipated she would scream horribly when trying to go #2. It was awful to watch. She occasionally would have steaks of blood in her diapers and her bm smelled SOO bad. It was like a rotting dead thing. Then after the major blockage of poo she would have diarrhea for the day. Then she wouldn't poop for 8 days. It was a vicious cycle. She would scream and fuss all day and get up 8-11 times a night. I told her doc but he suggested that her digestive system was slow and she would get better once she was crawling more. She didn't. I was convinced it was food related so I took her off all solids and added them back slowly. She had no problem with baby foods we tried and then she had a cracker. She got a rash, and was obviously in pain the rest of the day, and she didn't poop for 7 days. All from 1 cracker! Then I cut out breads again and she got back to pooping normally and wasn't fussy anymore. Then I added back crackers and it happened again. It happened with puffs, bread, crackers, and also with a babyfood that contained barely flakes. So then I started to wonder if it was celiac or at least a gluten intolerance. She has been gluten free and doesn't have issues unless I mess up and feed her something that has gluten in it or I set her food down in an area that had bread crumbs or something. Its hard keeping gluten away from her. I have 2 other young kids and they are constantly dripping crumbs everywhere even if I make them eat only at the table and vacuum every day. My husband does it too. In order to make 1 sandwich he somehow manages to get crumbs on the floor and every counter surface in our small kitchen. Then he will pick up that sandwich and pick up baby and play with her while dripping crumbs. It is very frustrating trying to keep it away from her. I am not perfect and she has been getting gluten lately and is back to having constipation, though not so much pain as before when she was eating bread and crackers. I want to get her tested but I dread that she needs to be eating gluten. Any advice or tips would be great!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


norahsmommy Enthusiast
norahsmommy
Posted
  • Author

bump for info

Jestgar Rising Star
Jestgar
Posted

Have you considered getting her tested?

norahsmommy Enthusiast
norahsmommy
Posted
  • Author

Have you considered getting her tested?

I am going to ask that they test her at her next doc appointment on the 3rd. I don't think they will do it that day but hopefully they will schedule her an appointment soon. How long did it take to get your child tested after you or your doc suspected gluten problems?

Skylark Collaborator
Skylark
Posted

Yes, she sounds like she has gluten issues. If she's mostly gluten-free the testing will not be reliable though. It's so hard to have to gluten challenge to get good tests.

norahsmommy Enthusiast
norahsmommy
Posted
  • Author

Yes, she sounds like she has gluten issues. If she's mostly gluten-free the testing will not be reliable though. It's so hard to have to gluten challenge to get good tests.

I am going to be putting her back on gluten until testing is complete. I don't want to, but I do want to know what the problem is. If its NOT gluten I need to find out what it is.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      High TTG-IgG and Normal TTG-IgA

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    2. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    3. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    4. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    5. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748
    yooperjb
    Newest Member
    yooperjb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.