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Itching


Bigbread

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Bigbread Rookie

After I eat white bread my skin starts itching so badly I want to go mad- and sometimes it feels like things are crawling on my skin, lots of things are crawling in the same direction round and round, it drives me crazy. This usually also comes with red patches that if left untreated scars.

I


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Kay DH Apprentice

You should probably make an appointment with a dermatologist that is very familiar with dermatitis herpetiformis and other rashes that can result from gluten. Wheat allergies can also have some unusual symptoms, so good to get tested for allergies. Check the web for allergy symptoms. My reaction to gluten was skin rashes on my calves, back, and arms that lasted for a number of years. People with celiac come in all sizes and shapes, not all are underweight or have anemia. Some are asymptomatic. It all depends on how your body reacts to gluten.

shopgirl Contributor

You need to find a new doctor because your dermatologist is suffering under antiquated ideas about Celiac. Not all Celiacs have weight loss and diarrhea. I was the exact opposite

cassP Contributor

(Derm says that its only celiac if you lose weight has diaree)

sorry- but that line is bs

and- i cant diagnose the rashes you're having... or tell u whether it's gluten intolerance, celiac, or wheat allergy, or all of the above-

but i DO know that gluten & wheat make me itch.

thruout my life- i have had EXCEMA, Psoraisis, Dandruff, and another horrific itching issue that i will leave unsaid.. they all disappeared after being Gluten Free.

thruout the last decade- when i would cheat on wheat & gluten (this was before i tested for Celiac, & only thought of it as a diet)- i would get horribly itchy.

GuyC Newbie

About 20 to 40 min. after eating gluten, my face and arms burn like a sunburn (but are not red). It takes several hours to go away. I was diagnosed Celiac last week. It's worth a check.

GuyC

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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