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How Do I Help Mom?

jasonD2

By jasonD2
in Coping with Celiac Disease

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jasonD2 Experienced
jasonD2
Posted

Ok its confirmed- mom has a gluten intolerance. her celiac serology & genetic test were negative but Enterolab results were 15 with 10 being the cutoff for negative; interestingly my result was 20

anyway, she has been struggling with stomach problems all her life, has IBS, diverticulosis, oral lichen planus, thinning hair and fragile teeth and has problems loosing weight.

She is going to "try" the diet and told me she will start after her dinner club on Sunday - i dont know if this is really sinking in but i keep urging her to do a complete elimination of gluten and shes already saying things like "well i just wont eat so much or maybe ill just treat myself on the weekends"

In any case, are there any websites i can send to her that have very basic rudimentary info on going gluten free and what types of foods to avoid, blah, blah?

would appreciate any info

thanks

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Coinkey Apprentice
Coinkey
Posted

Most of the info needed will be found on this website but here are a two places that are simple to give her.

Open Original Shared Link disease.php

https://www.celiac.com/celiac-disease/forbidden-gluten-food-list-unsafe-ingredients-r182/

Open Original Shared Link was also quite useful to me when I was figuring out my own problems.

burdee Enthusiast
burdee
Posted

You could give your mom a copy of "Healthier Without Wheat" by Dr. Stephen Wangen. That book explains all the physical problems and autoimmune conditions, which gluten consumption can cause for people who are gluten intolerant and not following a gluten free diet. It also answers many frequently asked questions about gluten intolerance and the gluten free diet.

SUE

cassP Contributor
cassP
Posted

Jason- with her thinning hair, trouble losing weight, & gluten intolerance- has she had her thyroid checked?

missy'smom Collaborator
missy'smom
Posted

This new patient packet is free. I've had it sent to relatives.

Open Original Shared Link

OK, I see that the link only goes to the storefront. Click on "pamphlets" on the left side. On that page, you'll see a "new patient packet" that lists for $0.00. You can have it sent directly to their(your mom's)address.

It includes a dining card.

shopgirl Contributor
shopgirl
Posted

You could give your mom a copy of "Healthier Without Wheat" by Dr. Stephen Wangen. That book explains all the physical problems and autoimmune conditions, which gluten consumption can cause for people who are gluten intolerant and not following a gluten free diet. It also answers many frequently asked questions about gluten intolerance and the gluten free diet.

SUE

This. I think every doctor should give their copy of this book after their diagnosis. Very concise, easy to read, and eye-opening.

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