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Help! I Got Glutened!

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xpaperbackwriterx Newbie
xpaperbackwriterx
Posted

Okay. So two weeks ago I ate a TINY bite of chocolate cake because, initially I never thought I had Celiac Disease, just a slight gluten intolerance, so I went gluten free (i've been gluten-free for about four months now and ive felt GREAT, no adhd meds anymore or anxiety or headaches or stomachaches). I didn't think the cake would hurt me because people without Celiac can usually eat a tiny bit of gluten (when on a gluten-free diet)and be fine. Well....I think I must have Celiac. Because my main symptoms before were serious constipation, ADHD, acid indigestion, anxiety and migraines, and I just generally felt like crap all the time. I ate that gluten and the very next day I got a really bad headache, terrible heart burn, and became so incredibly constipated its ridiculous--stool softeners and eating extensive fruits and vegetable wont help like it used to. This is like no other constipation I've ever had. And its been two weeks, and I've only gone a couple times. Its becoming dangerous. PLEASE someone tell me any ideas they have about how to recover from such awful constipation. Herbs? meds? special diet??? ANYTHING?! Thank you so much!

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georgie Enthusiast
georgie
Posted

Exactly my symptoms and also why I think I am Coeliac and not just Gluten Intolerant. I know some people that are GI and they sneak bits of Gluten and do not get bowel blockages.... Miralax. Get thee some Miralax and use that. I ended up with Diverticulitis, antibiotics and a water diet for a week ... and that is not fun... and all caused by some mis labelled lollies that had wheat starch....so be careful and get to a Dr if worried. My Dr said if this had not worked then it would have been hospital and an IV.. The dose my Dr told me to take for this I should not say here - but it was a 'lot' of Miralax. Try a fluid diet and Miralax. If you go to hospital it will be similar treatment.

glutenfreesavvy Rookie
glutenfreesavvy
Posted

I am so sorry! I can relate...that's a problem I have to deal with when glutened too. At this point, this is what I'd do.

1. Eat dried fruits, like apricots & prunes

2. Lots of water - at least 1/2 your body weight in ounces - more if you're really active

3. Drink herbal tea that have senna, but be careful it can cause some cramping if you overdo

4. Take some slippery elm - it coats the gi tract & is soothing, as well.

Hope this helps...I feel your pain. :-)

GFinDC Veteran
GFinDC
Posted

Milk of magnesia from the drug store can help. I also suggest looking closely at everything you are eating to be sure it is gluten free. That includes all vitamins, meds, sodas, coffee, teas etc. Staying off processed foods for a while might help also. Being gluten free is not easy if you eat food made by other people. You really need to know what the ingredients are in everything you eat. Wash your fruit and veggies before eating or cooking them also, just in case the picked up some gluten in the grocery store during storage.

Kim27 Contributor
Kim27
Posted

Try a combination of the Miralax and Magnesium Oxide pills. You can get those at any pharmacy, even WalMart, it is usually held behind the counter but is not a prescription.

anabananakins Explorer
anabananakins
Posted

Okay. So two weeks ago I ate a TINY bite of chocolate cake because, initially I never thought I had Celiac Disease, just a slight gluten intolerance, so I went gluten free (i've been gluten-free for about four months now and ive felt GREAT, no adhd meds anymore or anxiety or headaches or stomachaches). I didn't think the cake would hurt me because people without Celiac can usually eat a tiny bit of gluten (when on a gluten-free diet)and be fine. Well....I think I must have Celiac. Because my main symptoms before were serious constipation, ADHD, acid indigestion, anxiety and migraines, and I just generally felt like crap all the time. I ate that gluten and the very next day I got a really bad headache, terrible heart burn, and became so incredibly constipated its ridiculous--stool softeners and eating extensive fruits and vegetable wont help like it used to. This is like no other constipation I've ever had. And its been two weeks, and I've only gone a couple times. Its becoming dangerous. PLEASE someone tell me any ideas they have about how to recover from such awful constipation. Herbs? meds? special diet??? ANYTHING?! Thank you so much!

I'm sorry I don't have any tips add but I hope you feel a lot better soon. Getting glutened sucks, whether it's by accident or through something like this. But I would encourage you to try and stay strictly gluten free from now on. Whether or not you have officially diagnosed celiac doesn't make much difference unfortunately to how our bodies react to it. There are people with severly damaged vili who don't have any noticable symptoms... others like me who test negative but feel amazingly better gluten free and who feel sick now at the tiniest crumb. So don't let a lack of a diagnosis downplay how much better you feel gluten free. And I really hope you feel well again soon.

cctaylor01 Newbie
cctaylor01
Posted

I don't know if anyone has mentioned this yet, because I didn't read the entire thread, but when that happens to me (as constipation is one of my major problems), I use senna. I find that nothing else works to give me relief. You can buy it in tea form (yogi, traditional medicinals and some other brands sell it) or in pill form at the drugstore. For me it takes about 12-24 hours to work but when it works, it works.

I like it because it's a natural laxative. None of the chemical laxative stuff works for me.

I hope you feel better soon!

Claire

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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