Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got Glutened 4 Days Ago


coltsjen

Recommended Posts

coltsjen Newbie

I was diagnosed with celiac almost 2 years ago and have been 100% gluten free since. I do well unless I get glutened by accident. 4 days ago I got glutened at a trusted (no longer on my safe list:) and cannot seem to get better. I have had major diarrhea and extreme pain every time I eat since the episode. It is as if I cannot get the gluten out of my system. I am totally exhausted today from the diarrhea and am wondering if anyone else has had this extreme reaction. On a normal day I am extremely sensitive; one crumb containing gluten will cause problems for me. I have had other episodes where I have been glutened but never to this extreme. Any advice?

Thanks

Jen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

There are some things such as Boswellia which are supposed to be helpful for D, without causing C (it apparently has other benefits too). However, I suspect it'll just take time. Perhaps the glutening you received is more severe than the usual contamination. In other words, I wonder if it was something which actually had gluten as an ingredient.

Also, a digestive enzyme supplement may help, I suppose. There are many things which are said to sooth the digestive tract, including slippery elm, silymarin, marshmallow root, peppermint, fennel, and others.

Hope you feel better soon!

Marz Enthusiast

Maybe it's just a stomach bug that you've picked up? Especially if it's from a "trusted" source, and your symptoms are much worse/longer than they usually are.

If it is gluten, it can take several days to recover especially if it was a big hit. You can get a lot more sensitive over time.

Hope you feel better soon! :(

Marilyn R Community Regular

Soak in a tub with Epsom Salts and Baking Powder, and lemon rind or any herb or essence that you like. Use the hottest water you can stand, and stay in there as long as you can stand it. Detox.

While you're soaking, relax and meditate. Think about the hot salt water pulling the poison out of your body and into the tub. Smell the essence of the herb or citrus that you put in your tub. Think about nothing. Soak. Relax.

Then drain the tub, shower yourself off and head to bed.

And eat chicken soup tomorrow, of course, if you can make it. Chicken soup cures almost anything. That's my free advice.

coltsjen Newbie

Thanks for the suggestions. Am still feeling poorly today, actually broke down and went to the ER last night, which I never do. Didn't get results at ER, their suggestion was lets load you up with fluids and send you home. Awoke at 4 AM still having the D in a major way. Just called off for work today, can't hardly go to work when you cant stay off the potty for more than a few minutes at a time :} Am going to contact my Doc when they open and see if there is anything I can do! I suspect I am just going to have to let it get out of my system. I do not believe this is a "bug" I have no other issues except for the D when I eat anything at all.

Thanks again

Jen

ravenwoodglass Mentor

Thanks for the suggestions. Am still feeling poorly today, actually broke down and went to the ER last night, which I never do. Didn't get results at ER, their suggestion was lets load you up with fluids and send you home. Awoke at 4 AM still having the D in a major way. Just called off for work today, can't hardly go to work when you cant stay off the potty for more than a few minutes at a time :} Am going to contact my Doc when they open and see if there is anything I can do! I suspect I am just going to have to let it get out of my system. I do not believe this is a "bug" I have no other issues except for the D when I eat anything at all.

Thanks again

Jen

Glad your contacting your doctor. You might want to get stool samples taken to make sure you have not got a case of food poisoning. I had salmonella for almost 3 weeks and my doctor thought it was just my IBS (I was prediagnosis then) acting up. Boy was she apologetic when those lab reports came back.

realmaverick Apprentice

Could it be possible that you've not been glutened and you've picked up a virus or have food poisoning? The symptoms you have are not exclusive to being glutened. I do worry a little, that celiac sufferers tend to put every bout of "D" or stomach issues down to being glutened.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BoydBT Apprentice

D war stories...

Thar reminds me of one of the delays in my DX. I had some kind of intestinal parasite confirmed with a stool check.

I took some med for it and the D just got worse and then never went away.

OMG... what is wrong with doctors blindness to celiac disease. I told them that I always have D for years.

I had some Champagne on Sat night, I forgot it is not wine.

Yick did I explode the next day. LOL.

BBT

BoydBT Apprentice

D war stories...

Thar reminds me of one of the delays in my DX. I had some kind of intestinal parasite confirmed with a stool check.

I took some med for it and the D just got worse and then never went away.

OMG... what is wrong with doctors blindness to celiac disease. I told them that I always have D for years.

I had some organic Champagne on Sat night, It is always advisable, however, to consult with the manufacture to make sure that the wine does not contain glutinous additives or if it was stored in barrels that were not shared with glutinous product. This is rare, but if uncomfortable, it better to be safe than sorry.

Yicks did I explode the next day. LOL. Wonder why now?

I think I better take Beano before some foods. I did have some spicy rice with a ........aaaaaaaaaaaaa...creamy sauce, Dairy relief where were you.

BBT

gfmylife Newbie

After ending up in ER for accidently getting glutened.

I went on a search to find something to help speed the process. My gasto doctor told me to try probiotics. I read about pineapple and pineapple juice helping. I started taking both. This did help. I have read about a product called Gluten FREEze. I haven't tried it yet but will get some on my next Whole Foods trip.

coltsjen Newbie

Glad your contacting your doctor. You might want to get stool samples taken to make sure you have not got a case of food poisoning. I had salmonella for almost 3 weeks and my doctor thought it was just my IBS (I was prediagnosis then) acting up. Boy was she apologetic when those lab reports came back.

Am awaiting stool sample results and hoping to get some answers soon. At this point I can't eat anything and have spent much of the day in the restroom! Going to bed now and am hoping to be able to get some rest tonight!

Thanks again

MelindaLee Contributor

After ending up in ER for accidently getting glutened.

I went on a search to find something to help speed the process. My gasto doctor told me to try probiotics. I read about pineapple and pineapple juice helping. I started taking both. This did help. I have read about a product called Gluten FREEze. I haven't tried it yet but will get some on my next Whole Foods trip.

My son tried the Gluten Freeze and didn't get any benefit. :blink:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,759
    • Most Online (within 30 mins)
      7,748

    eloisapg
    Newest Member
    eloisapg
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • MagsM
      Thank you so much for this in depth analysis. I am currently taking Vit D3/K2 5000IU daily.i started taking a flushing Niacin but foolishly took a 500mg tab and nearly passed out! I have just ordered a gut microbiome genome test and it will be interesting to see what my current balance of microbes are. After I finish diagnosis I will definitely go gluten free. Diagnosis will inform exactly how strict I’ll need to be regarding cross contamination etc. my focus will be on healing the gut. I have also been focusing on the oral microbiome - cutting out FL and using more natural products as well as daily oil pulling. I read from some of your other forum entries about Benfothiamine and I’ll definitely order that. I’ll make sure my doc orders more detailed vitamin and mineral panel plus total IGA as well as the DGP-IGA and DGP-IGG tests. We will see if I can get the endoscopic biopsy done. Do you think I should request Vitamin B shots to get me started?  My daily vitamin protocol will likely be VitD/K2 5000IU, Benfothiamin 300x2, Niacin (flushing) 50mg working up to 300mg. I also take a EPA/DHA as well as some vascular support (Arterosil HP and Vascanox HP) as well as Magnesium at night. Which B complex brand do you like? I will see what the gut microbiome test comes back with. I’m sure they will try to sell me pre/probiotics and maybe some digestive enzymes. What are you thought on those? I’m curious if you managed to go into full remission from your Ménière’s disease? Thank you so much for your thoughtful insight. I know that building back up my gut health and immune health will help in so many ways as well as protecting me from many other major diseases as I go into my 60s and beyond. 
    • Scott Adams
      You are right! The logo the have on their packages got me confused--it looks like they are less than 20ppm, not certified GF. Thanks for catching that! My brain also zeroed in on this "less than 10ppm" but I should have seen the rest...
    • Wheatwacked
      Zinc glyconate lozenges (Cold Eeze) helps fight off viral respiratory infections by coating the mucous membrane cells to protect them from virus.  Zinc is an antiviral essential mineral. Choline deficieicy can be the cause of Non Alcoholic Fatty Liver Disease.  It is estimated by some experts that less than 10% eat the minimum RDA of around 450 mg.  It has also been connected to gallbladder disease.  Brain fog and high homosystein blood level is an independant indicator of cardiovascular disease. Eggs and red meat are the primary sources.  Three eggs or 10 cups of cooked brocolli a day.  Low vitamin D is a common denominator of autoimmune disease.  Is it a contributing factor or a result? I think that low vitamin D is maybe the main contributing factor.  Low vitamin D allows the immune system to run amuck. I would like to point out the many diagnosed with Celiac Disease went through several misdiagnoses, like gall bladder disease, and were repeatedly tested negative and then one day tested positive. Regardless of your diagnosis, you should avoid gluten, you mention it in your first post : "When I eat gluten I get a lot of mucus with my stool and most of the times it’s quite thin. As soon as I take gluten away from my diet my stool becomes normal". It can take six months to several years to heal completely.  How long I believe is directly related to how quickly you identify deficiencies and correct. Essential to my recovery:  Thiamine, 10,000 IU vitamin D3 a day, maintaining 25(OH)D at 80 ng/dl (200 nmole/L), 600 mcg Liquid Iodine, Phosphatidyl Choline.  And of course: Gluten Free.
    • RMJ
      Not all of King Arthur’s gluten free flours and baking mixes are certified gluten free. This bread flour is not. 
    • knitty kitty
      Bump up your thiamine dose!  You can take more if you don't feel anything after the first one.  Must needs getting to that 500mg. We need more thiamine when we're fighting an infection.  Zinc will help fight infections, too, as well as Vitamin C. They all work together. Hope you feel better!
×
×
  • Create New...