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Pediatric Selective Igm Immunodeficiency


Roda

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Roda Rising Star

Found this article interesting and it references celiac quite a bit. Found it researching information for my youngest son.

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cassP Contributor

Found this article interesting and it references celiac quite a bit. Found it researching information for my youngest son.

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that's really interesting.. how come it's not standard practice over here to screen for such things?? oh, because the drug companies would lose money if we were all healthier :angry:

and how come we never hear of this Igm? it wasnt till the past 2 years i even knew what Iga & Igg were... and my docs only tested my Iga which was low. how come they didnt test Igg or Igm?? it probably doesnt matter now that im gluten free and fairly healthy-> but it could have helped decades ago before i had a tonsilectomy .. before i had bronchitis for 6 weeks every year in my teens (while on a food pyramid diet w/ extra wheat germ on my morning cereal because it's "healthy fiber") :angry::angry::angry:

oh, and before i developed hypothyroid (which im assuming will turn out to be hashimotos)

ok, sorry for the rant... thanks for the interesting link

Roda Rising Star

I found the article while looking up IgG, IgA, IgE, and IgM. My youngest went for skin allergy testing last week (his third time and is almost 6) and everything was normal. I had him off his zyrtec for a week prior and he looked like crap when we went. He had congestion, red swollen eyes and the lovely raccoon eyes. Since then his symptoms have progressed, (has been taking xyzal, nasocort, singulair and astepro since last Wed. after testing) to more of the same, post nasal drip and a horrible cough. He was there Mon. for blood work for venom allergy testing and the celiac workup. The NP, upon hearing his symptoms wanted to check his IgG, IgA, IgE, and IgM to see if he had enough to fight whatever he has. I told him that given another week he would have a full blown sinus infection. So I am unsure if they are checking the total of all of those or using them for blood allergy testing which was also mentioned. We go back in two weeks. I did some other reading of case studies of Selective Igm Immunodeficiency and I swear it sounded like I was reading about my own son. It seems alot of people with this have alot of sinus, and upper and lower respiratory manifistations. My poor child has battled recurrent rhinosinusitis, reflux, RAD and MARSA in his tonsils. He started having issues when he was around two months old. The lingering thing has been the rhinosinusitis. It just keeps him down and I don't like having him on so many antibiotics. It seems also linked to autoimmunity and me being celiac really rang a bell with me. I'm going to inquire more about it when I talk to the NP. I think if any part of his celiac tests come back positive I will forgo the endo and go straight gluten free. However, I told the NP that I am seriously consdering putting him casin and gluten free regardless to see how he does. If I do that with him I am going to trial my oldest gluten free at the same time. He has alot of IgE allergies that he does allergy shots for and was diagnosed with asthma. The good thing about his asthma is that he doesn't take any meds for it and only mildly acts up upon extreme exercise. He is so active and loves to exercise that I think it helps control it and by managing his allergies with his injections.

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