Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Funny You Don't Look Sick?

Nor-TX

By Nor-TX
in Coping with Celiac Disease

Recommended Posts

Nor-TX Enthusiast
Nor-TX
Posted

Met some friends for dinner at Chili's last night. Two I work with and 1 I hadn't seen in 3 years. I try to keep my medical issues low key because no one is interested in my Colitis, Remicade issues, upcoming knee surgery, GERD, and all my other stuff. So when asked how my health was, I answered, "Not great, but I am dealing with things day by day." One of the friends I work with said, "Didn't you have your chemo on Friday?" I said, "Yes I did." Then she said "Funny you don't look sick?"

No one knows or understands. When they brought the bowl of chips and salsa and I didn't take any, the three "friends" chided me for not eating them. I told them this isn't a diet that you can cheat on like a calorie counting diet, but if I eat the chips and salsa, I will get sick. Again I heard, "sheesh, a couple of chips couldn't hurt you." They spent the next bit of time telling me how delicious the salsa and chips were and waving them in front of my nose.. *sigh*.

Wanna hear the saddest thing? One has a husband who has Diabetes, one's husband died within a week of finding out he had cancer, and one is a nurse. All of them are well into their 50s....

So much for dining out with unsympathetic "friends".

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Again I heard, "sheesh, a couple of chips couldn't hurt you." They spent the next bit of time telling me how delicious the salsa and chips were and waving them in front of my nose.. *sigh*.

When you eat in the school cafeteria with 6 th graders, what do you expect? I guess you have to find friends your own age. ;)

Actually, if you are going through Chemo, the comment that you don't look sick is a compliment. I am flabbergasted that with Chemo, they weren't more sensitive.

I usually get the"Oh, that's right! Sorry!" when I say I can't eat something. This is from people I don't see everyday. I don't mind that.

I'll meet you at PF Changs for lunch. We can order things off the gluten-free menu and share. :)

Nor-TX Enthusiast
Nor-TX
Posted
  • Author

When you eat in the school cafeteria with 6 th graders, what do you expect? I guess you have to find friends your own age. ;)

Actually, if you are going through Chemo, the comment that you don't look sick is a compliment. I am flabbergasted that with Chemo, they weren't more sensitive.

I usually get the"Oh, that's right! Sorry!" when I say I can't eat something. This is from people I don't see everyday. I don't mind that.

I'll meet you at PF Changs for lunch. We can order things off the gluten-free menu and share. :)

The chemo I am taking is Remicade with lots of drugs thrown in at each session. heavy doses of Prednisone, lots of bendryl, double Venofer, B12.

I haven't tried PF Changs yet. Do you live in north Dallas?

kareng Grand Master
kareng
Posted

The chemo I am taking is Remicade with lots of drugs thrown in at each session. heavy doses of Prednisone, lots of bendryl, double Venofer, B12.

I haven't tried PF Changs yet. Do you live in north Dallas?

No. Actually, I live in Kansas City. My BIL/SIL live in Plano. He is starting a "healthy fast casual" restuarant in Plano. Looking into the gluten-free certification for restuarants. Should open in December. I'll let everyone know when it does.

I really like PF Changs. I feel safe eating there. One of the owners has a daughter (?) with Celiac.

ohsotired Enthusiast
ohsotired
Posted

The chemo I am taking is Remicade with lots of drugs thrown in at each session. heavy doses of Prednisone, lots of bendryl, double Venofer, B12.

I haven't tried PF Changs yet. Do you live in north Dallas?

Nor_TX I'm sorry your coworkers are so insensitive!

I DO live in north Dallas, so if you ever want to go grab lunch or something, just holler.

I don't participate on the boards here much anymore but I do still lurk.

Kareng - please do let us know about the new restaurant! I would frequent it for sure!

Nor-TX Enthusiast
Nor-TX
Posted
  • Author

A new Gluten Free restaurant in Plano!!!!!!!!!!! Whoo Hooo... That's where I work and live close by. Where are they going to have their restaurant?

Ohsotired: Which PF Changs do you go to? I'm at Plano Pkwy and Preston.

ohsotired Enthusiast
ohsotired
Posted

A new Gluten Free restaurant in Plano!!!!!!!!!!! Whoo Hooo... That's where I work and live close by. Where are they going to have their restaurant?

Ohsotired: Which PF Changs do you go to? I'm at Plano Pkwy and Preston.

Actually, I have never been to a PF Chang's either! LOL Been dying to try it, but the hubby isn't fond of the place, so I've never been.

We should go!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Katie B Apprentice
Katie B
Posted

Time to get new friends! That reaction is appalling.

cassP Contributor
cassP
Posted

im sorry you're having to do chemo :( i hope u feel & get better SOON.

ya, look for PF changs- they've got a fairly sized gluten free menu :)

kareng Grand Master
kareng
Posted

The restuarant is going in the old Pizza Inn (being re-done) at Park & Midway.

They have just started (Monday) looking into what it will take to do gluten-free. I hope its not too discouraging.

kayo Explorer
kayo
Posted

If I lived in Texas I'd meet you for lunch too! No chiding, teasing or guilt trips!

We have a lot in common, I have arthritis and colitis too. I was on methotrexate (chemo) for years and the side effects were awful. So glad they came out with new meds. How do you like the Remicade?

ohsotired Enthusiast
ohsotired
Posted

The restuarant is going in the old Pizza Inn (being re-done) at Park & Midway.

They have just started (Monday) looking into what it will take to do gluten-free. I hope its not too discouraging.

I hope not too! Please let them know that if they need any help, I would be willing - whether it be just ideas or actual labor in getting the place set up!

Nor-TX Enthusiast
Nor-TX
Posted
  • Author

Me too... my husband is pretty handy. Mmmmmm gluten free pizza restaurant... is it too early to put in my order?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    2. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...
    3. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...
    4. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...
    5. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,266
    • Most Online (within 30 mins)
      7,748
    Barbara lynn
    Newest Member
    Barbara lynn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.