Negative Test Results

[Twenty4isours]

I've been off gluten for almost a month now and the results were fantastic. So fantastic I decided to get a gluten intolerance test. I called my doctor 2 days ago and he told me based on the results I am not gluten intolerant. So I decided to eat a piece of rye toast about 2 hours ago. I feel awful.. I'm dizzy, my vision is blurry, I can't stop blinking my eyes for some reason, and my TERRIBLE gas is back.. I don't understand how I could possibly come back negative when eating gluten has such a drastic impact on my body!

[Emilushka]

It could have been problematic that you were off gluten for the month before getting the test ... what test exactly are you talking about?

[shopgirl]

It was definitely problematic that you were off gluten. If you want positive

[Twenty4isours]

I figured taking that long time off could of done that. I really don't wanna go back to eating gluten. I just woke up after eating it now and my body feels like I just did an olympic work out

I don't have a copy of my test, I'm going to have to go to the office and get some. Is there a test I could take that doesn't require gluten in my system? Like I said, going back is just too rough on my body.

thanks!!

[Kay DH]

I don't think there are any definitive tests for celiac that you can take while off gluten. You could have the genetic test for the HLA-DQ2 and HLA-DQ8 alleles; +99% of people with celiac have one and (or) the other genetic markers. But so do about 30-40% of the population, so it is better for indicating if you don't have it. The Enterolab tests for antibodies and genes advertises that the antibody test is good even after going gluten-free for a year, but I haven't investigated this. Enterolab results do not have to be shared with doctors or insurance companies, so the potential problem of "pre-existing condition" can be avoided. My celiac panel was negative in January, probably because I had been gluten-free for a couple of months (symptoms started after the flu a year ago) and gluten-lite since last November. My biopsy was negative, probably because the GI only had me on the gluten challenge for a week (more than 3 weeks of +3 slices of bread a day are needed), and only did 1 biopsy (multiple needed because of spotty nature of inflammation, especially early stages). So, I, like a lot of people on this forum are self diagnosed because of symptoms when off gluten, and when the nasty molecule attacks us. I, like 7% of the population has the HLA-DQ8 allele, which gives me about a 10% chance of celiac. Even trace amounts of gluten make me quite ill. That is great that your symptoms resolved once off gluten. Life is much better without it.