Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has It Been The Bread All Along?


chronicowie

Recommended Posts

chronicowie Newbie

Hi everyone,

I've been reading through these forums because it has been suggested to me by a doctor (who is also a registered naturopath) that I may be gluten intorlerant and/or celiac.

I've been doing the run around with doctors for about 2 years now after developing disturbing gastro-symptoms while living overseas. I had convinced myself that I must have contracted some stubborn parasite/bacteria that was some how escaping doctor's tests...which led me to this new doc.

After an hour's consultation about my medical history, symptoms, etc. the verdict was not as I'd suspected. Although she agreed that my gut was most likely a mess she felt about 90% sure it was because of gluten and not a sneaky worm. I had bloodwork for celiac done and it was negative...because of my other symptoms, however, the doc wanted me to have an endoscopy anyways. Problem is, I'm not living in my home country and simply can not afford this procedure. When I told her this, she recommended that I should do a 3 month elimination diet instead.

Anyways, I'm hoping to list my symptoms and get some adivce as to whether or not my efforts are in vain (I don't want to be celiac, obviously, but if removing gluten ends this horrible ordeal I am soooo down!)

Problems:

Gastro - A strange combination of both C and D...with terrible abdominal pain

Multiple vitamin deficiencies - low iron, B12, zinc, vitamin d (which I now am suppose to take 4 times the daily dose of!)

Borderline hypothyroid

Wonky periods - Completely off my whole life...never came monthly, have since basically stopped (only 24 years old, by the way)

Fatigue - Always so tired and sleep waaaay too much!

Thanks for reading and for any advice/opinions you might have!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Hi, and welcome to the forum.

Kudos to your doctor for suggesting gluten intolerance. I second her suggestion that you eliminate gluten (and also lactose) for three months on a trial basis. Those are all indications of gluten intolerance. And you may have intestinal damage that will make digesting lactose difficult (you could try using Lactaid tablets if they are available where you are). I would anticipate that after three months you will notice a marked improvement.

Cypressmyst Explorer

I agree with your Naturopath, at least from everything listed here. 3 months is solid but you should begin to see improvement within the first few days with as severe as your stomach symptoms are. So take some comfort in that.

Get off the gluten. You will live a longer, healthier life for it and be amazed at all the little things that clear up that you never even realized were a problem. :)

Please keep us posted as to your progress!

I should add that this isn't a diet you can cheat on. It is 100% or bust, especially during the first month while your system gets to breath for the first time in your life.

Best of luck and use this forum for support whenever you need it! :wub:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,035
    • Most Online (within 30 mins)
      7,748

    bostonbell
    Newest Member
    bostonbell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      Exactly which blood tests were done? There are a few different ones and some docs don't do them all. Also, your results and reference ranges for each?
    • Jmartes71
      Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it.
    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.