Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Has Anyone Ever Had This Before?


Diosa

Recommended Posts

Diosa Apprentice

Hi all.

Since trying to go gluten-free to stop the pain I'm in, I've been missing some of the stuff, like pasta. I found some gluten-free/wheat free pasta (made of rice flour). I got sooooooooo ill from it last night it was unbelievable. I thought maybe it was the pasta sauce (vodka sauce lots of dairy), so I tried rice bread this morning. Same results. Very ill. In pain within a half an hour.

Is it possible to be "allergic" - sensitive I guess is the better word, to other grains? I know I don't get on with soy, and rice and corn were somewhat questionable, but I've never reacted that badly before. I've never really ate a lot of gluten-free stuff, so to be fair, this was really my first major intake of anything other than white flour/wheat flour.

I feel really defeated right now as I just don't know what I'm doing. :(

Thanks for listening.

Beth


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

It is possible to be intolerant or allergic to other grains, but there are other options as well. First, does regular rice cause this problem - not just processed rice? Also, was it a gluten like reaction or very different? How long have you been gluten free; sometimes things can bother you for a while until you heal? Have you identified other food intolerances?

jenvan Collaborator

Beth-

I agree with Tiffany... and I note I am intolerant to a ton of foods, and that some foods procedure worse "noticeable" reactions in me than gluten--like turkey, corn, some dairy, coffee... Might want to check into other food intolerances. Have you tried other gluten-free breads, like corn bread or a bean flour bread? Also, you should make sure when you're cooking that your not cross contaminated your gluten-free food with utensils, pans etc that have gluten on them... Hopefully you'll figure out the culprit soon. It takes some of us a while to work out all the kinks !!

Diosa Apprentice

Thanks for replying. The reaction was similar to gluten (nausea,dry heaves, then pain) but more pronounced. Gluten usually just goes to blinding pain within a half an hour. Rice in and of itself could be a problem. I was told to avoid rice and soy by my nutritionist, but corn should be ok every once in a while. Except for sushi, I was never a big rice eater. Never really liked the stuff. :)

I never thought about gluten being in the pans. I use a dishwasher and figured that would blast about anything off. :) I'll check into that.

Bean flour? I've never heard of it. What kind of beans is it made out of? Is it any good?

Sorry to be asking so many questions. :)

Beth

mytummyhurts Contributor

FYI - there is also tapioca bread. That's what I eat and I like it better than rice bread.

Diosa Apprentice

I'll definitely give that a try and see how it goes. Thanks Abby!! :)

jenvan Collaborator

Beth-

Questions are always welcome :) Bean flour can be made from several types of beans, some products will have a bit of a bean taste if there is much bean flour, but it leads to good texture. You can buy these flours in many places, but here is one example of Bob's Red Mill bean flour. I have this at home: Open Original Shared Link

You could ck out this bread--very good texture and taste. One of the ingredients is a rice grass. Not sure if that is related to rice or just a name... THis bread is a favorite of many. Open Original Shared Link

If you're using a dishwasher, I bet your okay. I just ask b/c its an issue for some. Ie:--sharing a toaster, muffin pan that has crusted on bread or something... I know there are other non-rice breads, but would need more time to look for some. I bet Abby's tapioca bread is bread. Ab--what brand do you get?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mytummyhurts Contributor

Jen - I think the brand is EnerG

I'm not saying Tapioca bread is the greatest in the world. But I've liked it better than the rice breads I've had. And it may be an option if you can't eat rice. ;)

jenvan Collaborator

okay-i'm an idiot! i just read my post where i said

I bet Abby's tapioca bread is bread

Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

:blink:

Carriefaith Enthusiast
Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

It's easy to make mistakes, I have to edit my posts a lot because I make horrible mistakes all the time. That is pretty funny though :lol:

celiac3270 Collaborator

LOL :lol: ...we understood :)

skbird Contributor

I'm trying to go off of all grains but am happy to consider tapioca bread, etc for some foods. I'm thinking of ordering some of the raved about Chebe bread for that reason. Nice to have a grain free option.

Stephanie

tarnalberry Community Regular
Jeez!! there is some genius logic there! i meant to say --"i bet her bread is good!"

:blink:

lol... I don't know... I think with gluten-free bread, there may be a fair amount of sense in that statement "I bet her bread is bread". some of it really isn't bread, you know. it's ground up cardboard held together by a vacuum package, unless it's actually just a porous rock. :lol:

Guest Viola

Kinnikinnick has a very good Tapioca Bread as well, also they have a real nice English muffin which is mostly Tapioca I believe. I think there is a bit of rice flour in there as well, but when I was having trouble with rice both the bread and buns didn't bother me. I do hope that you find something that really agrees with you and tastes good too :rolleyes:

pixiegirl Enthusiast

I totally agree, most gluten-free bread is NOT bread!

LOL, Susan

jenvan Collaborator

ha ha ! maybe i was "wise" in what i said then :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,075
    • Most Online (within 30 mins)
      7,748

    Amy1620
    Newest Member
    Amy1620
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.