Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Constipation


gemstar8069

Recommended Posts

gemstar8069 Newbie

y 6 year old has been suffering from chronic constipation since she was two. I started to notice because just before she was two she was trained for peeing. but she would poop these little poops smears or sometimes D all day long up to 10 x or more a day. so i took the pull-ups away thinking she was being lazy. not the case at all. started taking her to the doc they gave her laxatives enemas told me once that it was my potty training told me that she was severley impacted. the had her on restorolax for a year and the pediatrition signed off on her case. i had to get another referal to see him again. i went and demanded he send me to a gastro doc. we have an app for them in jan. my family doc is sending us to calgary to a childrens clinic that speacializes in children who soil are constipated or wet the bed things like that so we are to go there in dec. i am waiting on test results from my doc for celiacs and her Iga and igg levels aswell. has anyone had any ting similar. right now we relive her constipation with an enema because that is what we were told to do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mizzo Enthusiast

y 6 year old has been suffering from chronic constipation since she was two. I started to notice because just before she was two she was trained for peeing. but she would poop these little poops smears or sometimes D all day long up to 10 x or more a day. so i took the pull-ups away thinking she was being lazy. not the case at all. started taking her to the doc they gave her laxatives enemas told me once that it was my potty training told me that she was severley impacted. the had her on restorolax for a year and the pediatrition signed off on her case. i had to get another referal to see him again. i went and demanded he send me to a gastro doc. we have an app for them in jan. my family doc is sending us to calgary to a childrens clinic that speacializes in children who soil are constipated or wet the bed things like that so we are to go there in dec. i am waiting on test results from my doc for celiacs and her Iga and igg levels aswell. has anyone had any ting similar. right now we relive her constipation with an enema because that is what we were told to do.

My girl was diagnosed at almost 7yrs old. After almost 2 yrs of being treated for severe constipation and compacted stool in her outstretched colon and on Miralax for 1 1/2 yrs of that time she was finally diagnosed with Celiac disease.

It took a GI specialist to get the diagnosis. Our Pedi was treating her for the constipation with encouraging high fiber and whole grains increases in her diet. This is when the daily stomach pains started.

At 7 1/2 she still has outstretched colon (6 month gluten-free) cannot stay dry thru the night and when she gets accidental gluten has diarrhea accidents also. It's a long process of healing but she is soo much better on the gluten free lifestyle.

We were also very close to the cleansing enema's, but chose to do weekend cleanings with milk of magnesia instead. Wel'd start on Friday after school and did this for a months long of weekends.

Haven't had any problems after the first 2 months going gluten-free

Maureen

good luck

T.H. Community Regular

I had constipation for years, off and on, that I thought was a problem that had developed because of my first pregnancy - nope, it was all gluten, for me. I notice it as a reaction now when I get gluten. If you are waiting results, it couldn't hurt to go off gluten, just in case - there's always non-celiac gluten intolerance, too, where the tests are negative. Might be nice to have some idea of how going gluten free might affect your little one, before you have test results to bias you, as odd as that may sound.

srall Contributor

My daughter is not diagnosed but I have her on a gluten free/dairy free diet. We are both still on a big health journey. I think after Thanksgiving we will both be going through some diagnostic testing to really figure out what we are reacting to. That said, I will tell you that my daughter age 7 has dealt with severe constipation and severe diarrhea from the get go. I'm not sure I'd consider her regular now, but after going gluten free she is complaining less and less about her stomach. I have to believe that constipation is not normal and must be a result of diet. I do wish you the best of luck. I know it's a tough road.

Mizzo Enthusiast

My girl was diagnosed at almost 7yrs old. After almost 2 yrs of being treated for severe constipation and compacted stool in her outstretched colon and on Miralax for 1 1/2 yrs of that time she was finally diagnosed with Celiac disease.

It took a GI specialist to get the diagnosis. Our Pedi was treating her for the constipation with encouraging high fiber and whole grains increases in her diet. This is when the daily stomach pains started.

At 7 1/2 she still has outstretched colon (6 month gluten-free) cannot stay dry thru the night and when she gets accidental gluten has diarrhea accidents also. It's a long process of healing but she is soo much better on the gluten free lifestyle.

We were also very close to the cleansing enema's, but chose to do weekend cleanings with milk of magnesia instead. Wel'd start on Friday after school and did this for a months long of weekends.

Haven't had any problems after the first 2 months going gluten-free

Maureen

good luck

I forgot to mention we were also told to sign up for the "Incontinence classes" in the Urology dept. at children's hospital. They figured her accidents were bad potty training habits. NOT!

We are our children's only advocates.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,386
    • Most Online (within 30 mins)
      7,748

    TByrd
    Newest Member
    TByrd
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.