Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Severe Constipation


gemstar8069

Recommended Posts

gemstar8069 Newbie

y 6 year old has been suffering from chronic constipation since she was two. I started to notice because just before she was two she was trained for peeing. but she would poop these little poops smears or sometimes D all day long up to 10 x or more a day. so i took the pull-ups away thinking she was being lazy. not the case at all. started taking her to the doc they gave her laxatives enemas told me once that it was my potty training told me that she was severley impacted. the had her on restorolax for a year and the pediatrition signed off on her case. i had to get another referal to see him again. i went and demanded he send me to a gastro doc. we have an app for them in jan. my family doc is sending us to calgary to a childrens clinic that speacializes in children who soil are constipated or wet the bed things like that so we are to go there in dec. i am waiting on test results from my doc for celiacs and her Iga and igg levels aswell. has anyone had any ting similar. right now we relive her constipation with an enema because that is what we were told to do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mizzo Enthusiast

y 6 year old has been suffering from chronic constipation since she was two. I started to notice because just before she was two she was trained for peeing. but she would poop these little poops smears or sometimes D all day long up to 10 x or more a day. so i took the pull-ups away thinking she was being lazy. not the case at all. started taking her to the doc they gave her laxatives enemas told me once that it was my potty training told me that she was severley impacted. the had her on restorolax for a year and the pediatrition signed off on her case. i had to get another referal to see him again. i went and demanded he send me to a gastro doc. we have an app for them in jan. my family doc is sending us to calgary to a childrens clinic that speacializes in children who soil are constipated or wet the bed things like that so we are to go there in dec. i am waiting on test results from my doc for celiacs and her Iga and igg levels aswell. has anyone had any ting similar. right now we relive her constipation with an enema because that is what we were told to do.

My girl was diagnosed at almost 7yrs old. After almost 2 yrs of being treated for severe constipation and compacted stool in her outstretched colon and on Miralax for 1 1/2 yrs of that time she was finally diagnosed with Celiac disease.

It took a GI specialist to get the diagnosis. Our Pedi was treating her for the constipation with encouraging high fiber and whole grains increases in her diet. This is when the daily stomach pains started.

At 7 1/2 she still has outstretched colon (6 month gluten-free) cannot stay dry thru the night and when she gets accidental gluten has diarrhea accidents also. It's a long process of healing but she is soo much better on the gluten free lifestyle.

We were also very close to the cleansing enema's, but chose to do weekend cleanings with milk of magnesia instead. Wel'd start on Friday after school and did this for a months long of weekends.

Haven't had any problems after the first 2 months going gluten-free

Maureen

good luck

T.H. Community Regular

I had constipation for years, off and on, that I thought was a problem that had developed because of my first pregnancy - nope, it was all gluten, for me. I notice it as a reaction now when I get gluten. If you are waiting results, it couldn't hurt to go off gluten, just in case - there's always non-celiac gluten intolerance, too, where the tests are negative. Might be nice to have some idea of how going gluten free might affect your little one, before you have test results to bias you, as odd as that may sound.

srall Contributor

My daughter is not diagnosed but I have her on a gluten free/dairy free diet. We are both still on a big health journey. I think after Thanksgiving we will both be going through some diagnostic testing to really figure out what we are reacting to. That said, I will tell you that my daughter age 7 has dealt with severe constipation and severe diarrhea from the get go. I'm not sure I'd consider her regular now, but after going gluten free she is complaining less and less about her stomach. I have to believe that constipation is not normal and must be a result of diet. I do wish you the best of luck. I know it's a tough road.

Mizzo Enthusiast

My girl was diagnosed at almost 7yrs old. After almost 2 yrs of being treated for severe constipation and compacted stool in her outstretched colon and on Miralax for 1 1/2 yrs of that time she was finally diagnosed with Celiac disease.

It took a GI specialist to get the diagnosis. Our Pedi was treating her for the constipation with encouraging high fiber and whole grains increases in her diet. This is when the daily stomach pains started.

At 7 1/2 she still has outstretched colon (6 month gluten-free) cannot stay dry thru the night and when she gets accidental gluten has diarrhea accidents also. It's a long process of healing but she is soo much better on the gluten free lifestyle.

We were also very close to the cleansing enema's, but chose to do weekend cleanings with milk of magnesia instead. Wel'd start on Friday after school and did this for a months long of weekends.

Haven't had any problems after the first 2 months going gluten-free

Maureen

good luck

I forgot to mention we were also told to sign up for the "Incontinence classes" in the Urology dept. at children's hospital. They figured her accidents were bad potty training habits. NOT!

We are our children's only advocates.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    2. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

    3. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,365
    • Most Online (within 30 mins)
      7,748

    candiceelse08
    Newest Member
    candiceelse08
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.