Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positive Blood Test For My 4 Year Old

Lunabell

Recommended Posts

Lunabell Apprentice
Lunabell
Posted

We just got the results this morning, over the phone. My youngest daughter had a positive blood test for celiac. I managed to get her a GI appt on December 10,which is much earlier than the receptionist was telling me. My oldest is disabled so I know how to work the system a bit.;)

Right now though, I am feeling a bit overwhelmed. I was told that we need to have an endo with a biopsy, which I am not looking forward to putting her through. I know it is painless, after they are knocked out, but still not a ball of fun. My oldest had a couple of them for reflux when she was younger.

I am glad we are finally getting some answers, I just really, really with there was nothing to be getting answers for. I know this isn't the end of the world, but we have been through so much with my oldest daughter's issues that I really emotionally "needed" the other two kids to not have health issues. Alas, that is not the case. I will get over the self pity in a couple of days, but right now I am wallowing in it.

I have been reading about how celiac can be strongly genetic. Have families here found that to be the case? I am wondering about my oldest daughter. She had reflux as a baby, lifelong constipation problems, weird eczema issues (like in her ears) etc. We assumed most of it was related to her brain issues, but now I wonder. I will pursue this more if my youngest's endo confirms the diagnosis.

Also, does a positive blood test usually lead to a confirmed diagnosis?

Thanks for any advice. My brain is struggling to wrap itself around this potentially new "normal".

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Roda Rising Star
Roda
Posted

I would probably go ahead and get all the kids, you and dad blood tested now. My youngest son just showed up with a positive celiac test (negative 2 yrs ago), but I am not going to do the biopsy for him. Since I am diagnosed (blood and biopsy), his symptoms and the positive test it was enough for me to put him gluten free. THat said, if I did not have celiac and we were going down this road for the first time with my son, I probably would have the biopsy done. It is quite possible you can have positive blood work and a negative biopsy. The biopsy can be negative due to the samples were not taken of the damaged areas (seen under microscope) or it is early celiac and not enough damage is there to show up. There are others on here that are probably more helpful. I hope you get some answers soon.

Lunabell Apprentice
Lunabell
Posted
  • Author

Thanks, Roda. I will probably get everyone tested. Though, I don't relish the experience with the 6 year old. I have to dig her out from underneath the examination table every year for her flu shot. She can be a bit dramatic. A blood draw is going to take it to a whole new level.

If Laura's biopsy is positive, I am not inclined to do it for the other kids, if they have positive blood tests. I will just have them go gluten free as well. I am not about doing procedures, just for the sake of doing them.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,539
    • Most Online (within 30 mins)
      7,748
    Josiemc
    Newest Member
    Josiemc
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
    • ElisaAllergiesgluten
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By ElisaAllergiesgluten · Posted

      Hello good afternoon, I was wondering if anyone has ever brought their anti-allergy pills? I have been wanting to use their Cetirizine HCI 10mg. They are called HealthA2Z and distributed by Allegiant Health.I’m also Asthmatic and these allergies are terrible for me but I also want to be sure they don’t have any sort of gluten compound.    I have tried calling them but to no avail. Has anyone ever used them? If so, did you had any problems or no problems at all?    thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.