Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm A Newbie...need Help Understanding Cc!


Free-CountryGirl

Recommended Posts

Free-CountryGirl Apprentice

As a college student, and when I'm at home, it can be extremely difficult for me to avoid gettign glutened since my household, and obviously college, is not gluten-free. My mom is just starting to understand how severe it can be for me if I eat gluten, and how real of a disease Celiac's is, especially after she read an article in a mag about how eating gluten can affect a celiac's health (such as, a 72% increase in risk for cancer). Anyways, I am such a newbie at going gluten-free, and I really need help on how to avoid cross contamination. I have washed off a few select utensils with boiling hot water and soap then put them away in a baggie and in a place seperate from any gluten, is the boiling hot water enough to kill off any contamination?? Can I get glutened from touching the microwave handle? I washed off the pan I use to scramble my eggs in, in the same way I cleaned off my utensils, is that ok? As for surfaces that are around gluten (countertops) can I still set my plate on them? If not, is using those disinfecting wipes good enough to temporarily remove gluten contamination for that moment so I can set my plate on the table? Also, can I even be in the kitchen while they are using flour for cooking?? How come I can't use the same pots ans pans they use for gluten food if I wash them properly?

I am sorry if I seem so paranoid, it's just I'v been reading posts and hearing about CC and now I'm kind of freaking out, since I have no idea how I'm going to prevent from getting glutened!

PLEASE HELP!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Free-CountryGirl Apprentice

Alos, I talked to my parents about cc, and how careful i need to be, and how I can't eat the turkey b.c of the stuffing. They flipped out on me, and gave me this talk about how it was all in my head, and that "your greatgrandmother often thought she was sick as well, very dramatic about things", and how we have no family history of celiacs so I can't possibly be celiac. Oh and apparently they know my body as well, b.c my symptoms "arent severe enough", even though they have no idea how I feel because they never ask. ugh! They have no clue! I have been doing so mucgh research, and they have done none! They are making me feel so paranoid...I'm not a hypochondriac. I tried to explain how I'v been having symptoms for years and never realized that stomach pain, bloating, and excessive fatigue weren't normal, and how I only starting doing research until my symptoms became practically unbearable. I know it can't possibly be all in my head, because when I ate peanut butter out of the jar everyone else uses for their sandwhiches the other day, I got horribly sick and exhausted, with a major headache almost immediately. I didn't learn about cc until today, so when I got sick after the peanut butter I couldnt figure out why.

*sigh* I am so sorry for my venting, I guess I'm just very frustrated. Has anyone else had this problem, where other's thought they were making everything up?

Also, a quick question: If my family has pizza, then they touch the tv remote, then I touch the remote, am I safe as long as I dont touch my face, or eat until I wash my hands? Thank you everyone for listening to me freak out!!

Kimbalou Enthusiast

See my post about this, too. I am new too, since Friday I have been eating gluten-free. Read someone's response to my questions regarding this....it will help. It's better to eliminate gluten first, then go from there. I don't think it's necessary to walk around in our own plastic bubble with a contamination suit on or something! lol, seriuosly, don't worry too much! Cut out gluten first, then see if you are really that sensitive where you need to be sterile about CC. I think gluten will come off pots and pans in the dishwasher...it's wooden things that may not be good...since gluten might get stuck in the cracks.

Don't worry too much!!

Free-CountryGirl Apprentice

phew! Thanks so much Kimbalou! :)

lynnelise Apprentice

As for pots and pans, make sure there are absolutely no scratches because gluten can stick in those and you can't clean them out properly. Try buying your own jar of peanut butter and other condiments and labeling it gluten-free so your family doesn't mess with them.

A helpful thing someone used in another thread was think of it as being raw chicken. Would you wash your hands if someone touched raw chicken and then touched the microwave or the remote? Of course. Treat gluten the same way. Sounds overwhelming now but believe me it becomes almost second nature really quick.

tarnalberry Community Regular

gluten may or may not come off in the dishwasher - it is sticky. a good scrubbing with a scouring pad may be more effective in some cases. (this is why we suggest replacing collanders - pasta bits get stuck in the holes, and you can't scrub the inside of the holes. if it's plastic, you can't scrub out the scratches, nor can the dishwasher clean them out effectively.)

there are different levels of cross contamination. picking up flour-y wheat bread for someone, then (without washing your hands) picking up your own food with your hands is going to be distinct contamination that you'd want to avoid. (ditto for putting your food directly on a counter with crumbs.) gluten isn't a pathogen; it doesn't need to be "disinfected". a simple wipe down to remove the flour/crumbs/whatever is sufficient.

but using the same stainless steel utensils that have been thoroughly cleaned is unlikely to provide any contamination risk. to a certain degree, you need to feel this one out for yourself.

jenngolightly Contributor

As a college student, and when I'm at home, it can be extremely difficult for me to avoid gettign glutened since my household, and obviously college, is not gluten-free. My mom is just starting to understand how severe it can be for me if I eat gluten, and how real of a disease Celiac's is, especially after she read an article in a mag about how eating gluten can affect a celiac's health (such as, a 72% increase in risk for cancer). Anyways, I am such a newbie at going gluten-free, and I really need help on how to avoid cross contamination. I have washed off a few select utensils with boiling hot water and soap then put them away in a baggie and in a place seperate from any gluten, is the boiling hot water enough to kill off any contamination?? Can I get glutened from touching the microwave handle? I washed off the pan I use to scramble my eggs in, in the same way I cleaned off my utensils, is that ok? As for surfaces that are around gluten (countertops) can I still set my plate on them? If not, is using those disinfecting wipes good enough to temporarily remove gluten contamination for that moment so I can set my plate on the table? Also, can I even be in the kitchen while they are using flour for cooking?? How come I can't use the same pots ans pans they use for gluten food if I wash them properly?

I am sorry if I seem so paranoid, it's just I'v been reading posts and hearing about CC and now I'm kind of freaking out, since I have no idea how I'm going to prevent from getting glutened!

PLEASE HELP!

I think it's important to distinguish gluten from a germ. Disinfecting will not "kill" gluten because gluten is not a germ. Gluten must be removed from the scene-of-the-crime in order for you to be safe. Of course, it's always nice to have a disinfected kitchen because god only knows what's been in there. :-) I get grossed out when people make chicken and wipe down the counter with the communal sponge. Setting the bottom of your plate on gluten won't hurt you, but you pick up the plate with your hands - now the gluten is on those - and you eat with those hands - voila! You've gotten cc'd. Same with microwave handle.

This is what I do. I just know that there's gluten everywhere. Those buggers can't be helped. They're on the handles of the fridge and microwave and cupboard handles. So I wash my hands constantly. And I wash those handles, too. Get your dinner plate ready. Set everything out to eat. And go and wash your hands. (Mom's love that anyway.)

Next - You can use the same pots and pans if they have no scratches (I use aluminum and scrub-scrub-scrub). I share the metal mixing spoons. Everything goes in the dishwasher so they get sparkling clean.

Stay far away from flour! It floats. Cover all of your things if your family uses flour in the kitchen. I had the luxury of tossing the regular flour and buying gluten-free flour (but I'm the Mom).

Have a great holiday!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Free-CountryGirl Apprentice

Thank you so SO much jenngolightly and tarnalberry!! You have saved me a lot of confusion, and a lot of stress. Happy Thanksgiving! :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Lotte18 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      9

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    2. - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    3. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    4. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    5. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,241
    • Most Online (within 30 mins)
      7,748

    Lectinfreetxn
    Newest Member
    Lectinfreetxn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.