Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm A Newbie...need Help Understanding Cc!


Free-CountryGirl

Recommended Posts

Free-CountryGirl Apprentice

As a college student, and when I'm at home, it can be extremely difficult for me to avoid gettign glutened since my household, and obviously college, is not gluten-free. My mom is just starting to understand how severe it can be for me if I eat gluten, and how real of a disease Celiac's is, especially after she read an article in a mag about how eating gluten can affect a celiac's health (such as, a 72% increase in risk for cancer). Anyways, I am such a newbie at going gluten-free, and I really need help on how to avoid cross contamination. I have washed off a few select utensils with boiling hot water and soap then put them away in a baggie and in a place seperate from any gluten, is the boiling hot water enough to kill off any contamination?? Can I get glutened from touching the microwave handle? I washed off the pan I use to scramble my eggs in, in the same way I cleaned off my utensils, is that ok? As for surfaces that are around gluten (countertops) can I still set my plate on them? If not, is using those disinfecting wipes good enough to temporarily remove gluten contamination for that moment so I can set my plate on the table? Also, can I even be in the kitchen while they are using flour for cooking?? How come I can't use the same pots ans pans they use for gluten food if I wash them properly?

I am sorry if I seem so paranoid, it's just I'v been reading posts and hearing about CC and now I'm kind of freaking out, since I have no idea how I'm going to prevent from getting glutened!

PLEASE HELP!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Free-CountryGirl Apprentice

Alos, I talked to my parents about cc, and how careful i need to be, and how I can't eat the turkey b.c of the stuffing. They flipped out on me, and gave me this talk about how it was all in my head, and that "your greatgrandmother often thought she was sick as well, very dramatic about things", and how we have no family history of celiacs so I can't possibly be celiac. Oh and apparently they know my body as well, b.c my symptoms "arent severe enough", even though they have no idea how I feel because they never ask. ugh! They have no clue! I have been doing so mucgh research, and they have done none! They are making me feel so paranoid...I'm not a hypochondriac. I tried to explain how I'v been having symptoms for years and never realized that stomach pain, bloating, and excessive fatigue weren't normal, and how I only starting doing research until my symptoms became practically unbearable. I know it can't possibly be all in my head, because when I ate peanut butter out of the jar everyone else uses for their sandwhiches the other day, I got horribly sick and exhausted, with a major headache almost immediately. I didn't learn about cc until today, so when I got sick after the peanut butter I couldnt figure out why.

*sigh* I am so sorry for my venting, I guess I'm just very frustrated. Has anyone else had this problem, where other's thought they were making everything up?

Also, a quick question: If my family has pizza, then they touch the tv remote, then I touch the remote, am I safe as long as I dont touch my face, or eat until I wash my hands? Thank you everyone for listening to me freak out!!

Kimbalou Enthusiast

See my post about this, too. I am new too, since Friday I have been eating gluten-free. Read someone's response to my questions regarding this....it will help. It's better to eliminate gluten first, then go from there. I don't think it's necessary to walk around in our own plastic bubble with a contamination suit on or something! lol, seriuosly, don't worry too much! Cut out gluten first, then see if you are really that sensitive where you need to be sterile about CC. I think gluten will come off pots and pans in the dishwasher...it's wooden things that may not be good...since gluten might get stuck in the cracks.

Don't worry too much!!

Free-CountryGirl Apprentice

phew! Thanks so much Kimbalou! :)

lynnelise Apprentice

As for pots and pans, make sure there are absolutely no scratches because gluten can stick in those and you can't clean them out properly. Try buying your own jar of peanut butter and other condiments and labeling it gluten-free so your family doesn't mess with them.

A helpful thing someone used in another thread was think of it as being raw chicken. Would you wash your hands if someone touched raw chicken and then touched the microwave or the remote? Of course. Treat gluten the same way. Sounds overwhelming now but believe me it becomes almost second nature really quick.

tarnalberry Community Regular

gluten may or may not come off in the dishwasher - it is sticky. a good scrubbing with a scouring pad may be more effective in some cases. (this is why we suggest replacing collanders - pasta bits get stuck in the holes, and you can't scrub the inside of the holes. if it's plastic, you can't scrub out the scratches, nor can the dishwasher clean them out effectively.)

there are different levels of cross contamination. picking up flour-y wheat bread for someone, then (without washing your hands) picking up your own food with your hands is going to be distinct contamination that you'd want to avoid. (ditto for putting your food directly on a counter with crumbs.) gluten isn't a pathogen; it doesn't need to be "disinfected". a simple wipe down to remove the flour/crumbs/whatever is sufficient.

but using the same stainless steel utensils that have been thoroughly cleaned is unlikely to provide any contamination risk. to a certain degree, you need to feel this one out for yourself.

jenngolightly Contributor

As a college student, and when I'm at home, it can be extremely difficult for me to avoid gettign glutened since my household, and obviously college, is not gluten-free. My mom is just starting to understand how severe it can be for me if I eat gluten, and how real of a disease Celiac's is, especially after she read an article in a mag about how eating gluten can affect a celiac's health (such as, a 72% increase in risk for cancer). Anyways, I am such a newbie at going gluten-free, and I really need help on how to avoid cross contamination. I have washed off a few select utensils with boiling hot water and soap then put them away in a baggie and in a place seperate from any gluten, is the boiling hot water enough to kill off any contamination?? Can I get glutened from touching the microwave handle? I washed off the pan I use to scramble my eggs in, in the same way I cleaned off my utensils, is that ok? As for surfaces that are around gluten (countertops) can I still set my plate on them? If not, is using those disinfecting wipes good enough to temporarily remove gluten contamination for that moment so I can set my plate on the table? Also, can I even be in the kitchen while they are using flour for cooking?? How come I can't use the same pots ans pans they use for gluten food if I wash them properly?

I am sorry if I seem so paranoid, it's just I'v been reading posts and hearing about CC and now I'm kind of freaking out, since I have no idea how I'm going to prevent from getting glutened!

PLEASE HELP!

I think it's important to distinguish gluten from a germ. Disinfecting will not "kill" gluten because gluten is not a germ. Gluten must be removed from the scene-of-the-crime in order for you to be safe. Of course, it's always nice to have a disinfected kitchen because god only knows what's been in there. :-) I get grossed out when people make chicken and wipe down the counter with the communal sponge. Setting the bottom of your plate on gluten won't hurt you, but you pick up the plate with your hands - now the gluten is on those - and you eat with those hands - voila! You've gotten cc'd. Same with microwave handle.

This is what I do. I just know that there's gluten everywhere. Those buggers can't be helped. They're on the handles of the fridge and microwave and cupboard handles. So I wash my hands constantly. And I wash those handles, too. Get your dinner plate ready. Set everything out to eat. And go and wash your hands. (Mom's love that anyway.)

Next - You can use the same pots and pans if they have no scratches (I use aluminum and scrub-scrub-scrub). I share the metal mixing spoons. Everything goes in the dishwasher so they get sparkling clean.

Stay far away from flour! It floats. Cover all of your things if your family uses flour in the kitchen. I had the luxury of tossing the regular flour and buying gluten-free flour (but I'm the Mom).

Have a great holiday!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Free-CountryGirl Apprentice

Thank you so SO much jenngolightly and tarnalberry!! You have saved me a lot of confusion, and a lot of stress. Happy Thanksgiving! :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.