Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There Any Actual Evidence That Casein Is Similar To Gluten In Terms Of Effects On The Body?


The Fluffy Assassin

Recommended Posts

The Fluffy Assassin Enthusiast

I quit dairy a year and a half ago in hopes of managing Asperger's. I think it was pretty successful, but allergies shot up to the point that I was showing signs of minor asthma, and I also started getting a bit hunchbacked, a lot like older ladies with osteoporosis. I had tried to develop a taste for kale, which most likely would have helped with both problems, but failed. So this week I've started drinking a cup of milk every evening, purely for medicinal purposes. Allergies are better, breathing is better, pins and needles are finally gone (huzzah!) and my creaky neck is getting considerably less so. However, if casein is going to kill me, I'll happily bite the bullet and switch to kale, however nasty it might be. What are thoughts? Is the "casein is a lot like gluten" storyline true, or a celiac urban legend?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WheatChef Apprentice

Casein is a lot like gluten in that it can be associated with a major systemic food intolerance reaction in someone predisposed to it. It's not something that can trigger a gluten reaction though if that's what you're asking, there's actually a lot of different possible food intolerances out there that all have their own special little immune response.

As far as thinking that you need any of the nutrients from dairy well that's certainly not true. As you are aware kale has calcium but it's also found in a number of other sources. Obviously all of the other leafy green vegetables have decent levels of calcium in them (collard greens/swish chard/spinach/chinese cabbage/bok choy/mustard greens & even parsley) but other sources include nuts and seeds, seaweed, fish bones (such as canned sardines/salmon/mackerel) shrimp and raw oysters. If you're thinking you were having VitD or VitA problems (often supplemented into milk) then simply check out all the dietary sources mentioned for those down in the Vitamin A deficiency post a few posts down in this subforum.

cassP Contributor

i dont know your body at all... but i honestly believe that milk can help some people build stronger bones, but i also believe that in others- milk can put their body in an acidic state- making the bones weaker. ????

there's also calcium in canned salmon with the bones (tho, not yummy).

i dont really like to eat kale at all- but it tastes just fine juiced! i think kale & spinach & pineapple juiced is delish! or kale, spinach, banana, & pineapple.. maybe some coconut :P

do any of the substitutes like Almond Milk, or Hemp milk have calcium & D added???? they're yum too

Skylark Collaborator

Here is the actual evidence that there may be celiac-like reactivity to casein in some celiacs. The full article is available for free. It shows an inflammatory reaction to mucosal challenge with casein in 50% of the celiacs studied. They did not challenge long-term with casein or look at anti-TTG or look for villous atrophy.

Open Original Shared Link

There is other research showing the presence of mucosal IgA to casein. Open Original Shared Link Authors suggest that the IgA and inflammatory reaction may contribute to celiac damage or autoimmunity but the research is in a fairly speculative phase. Thing is, if a food causes inflammation you generally feel lousy eating it. There is no evidence that casein is unsafe for celiacs who seem to tolerate it.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,567
    • Most Online (within 30 mins)
      7,748

    Silver82
    Newest Member
    Silver82
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your genetic test results confirm that you carry the highest-risk markers for celiac disease, specifically the HLA-DQ2 haplotype (while being negative for HLA-DQ8). The fact that both HLA-DQA1*05 and HLA-DQB1*0201 appear twice means you inherited identical copies from each parent, making you homozygous for these genes. This double dose of the DQ2.5 haplotype is significant because it indicates an even stronger genetic predisposition to celiac disease compared to those who only inherit one copy. Research suggests that people with this homozygous pattern may have a higher likelihood of developing the disease, potentially more severe immune responses to gluten, and a stronger association with dermatitis herpetiformis (which aligns with your diagnosis). While this genetic profile doesn’t guarantee worse symptoms, it does reinforce why strict gluten avoidance is critical for you. Since you’re already diagnosed, the main takeaway is that your results explain your biological susceptibility—no further genetic counseling is needed unless you have family planning questions. The repeating variants simply mean both parents passed you the same high-risk alleles, which is why your body reacts so strongly to gluten. Ultimately, your diagnosis and management remain the same, but this insight helps underscore the importance of lifelong dietary diligence.
    • Scott Adams
      It sounds like you and your daughter are navigating celiac disease with a lot of care and dedication, and it’s wonderful that you’re prioritizing her health and growth during this critical time. Since her antibody levels and growth have plateaued, tightening up her diet by avoiding eating out (except at dedicated gluten-free places) is a smart move—even if it’s challenging socially. Many parents of celiac kids report significant growth spurts once gluten exposure is minimized, so there’s hope she’ll catch up if her levels improve. As for the future, while her growth window closing may reduce some risks, celiac is lifelong, and staying as strict as possible will likely always be best to avoid long-term complications, even if occasional cautious outings become manageable later. Navigating this with a teenager is tough, especially with spontaneous social events. For unplanned outings, keeping safe snacks (like GF protein bars, nuts, or fruit) in her bag or your car can help. To boost nutrition, try sneaking in variety where you can—like lentil or chickpea pasta instead of rice pasta, or adding veggies and proteins to her favorite dishes. Involving her in meal planning might help with pickiness, and connecting with other celiac families or support groups could provide social strategies and emotional support. It’s exhausting, but you’re doing an amazing job—your efforts now will set her up for a healthier future. Hang in there!
    • Scott Adams
      This is good news--I hope we can get this done on a national level!
    • Scott Adams
      I use a blender and have made various juice recipes over the years. 
    • captaincrab55
      Pharmacies personnel need training to prevent cross contamination.     
×
×
  • Create New...