Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had Bad Reaction To Gluten Free Sausage

junevarn

By junevarn
in Coping with Celiac Disease

Recommended Posts

junevarn Rookie
junevarn
Posted

Hi all,

I had a bad reaction this morning to some shelton turkey no gluten sausage. It was a milder reaction than I used to get. I pooped everything out,(sorry to be gross but I must have gone 7-8 times.) I was slightly nausested. The weirdest symptoms were neurological, I had weird thoughts and my legs felt shakey. :(

My blood tests showed three times the normal level of mold antibodies so my doc gave me a list of foods not to eat and I forgot that sausage was on it! :rolleyes: He said that mold toxins cause neurological symtoms so thats why I used to get my whole body shaking and extreme anxiety like I did.

I had to take 1/2 ativan and 1/4 phenergan to feel better. I don't want to be too sleepy since we are meeting some friends for lunch later. I guess its just human to make a mistake like that,huh?

We are going to Maggianos which is very celiac friendly.

Just needed some support. Its hard to follow a gluten, casein free diet as well as a mold free diet too!

Thanks for listening.

Sincerely,

June

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest nini
Guest nini
Posted

I can imagine. Sorry you are feeling badly. Hope you feel better soon.

steve-o Apprentice
steve-o
Posted

Hope you're feeling better by now...it's bad enough having just one food sensitivity.

I've never heard that mold can cause anxiety, or that there was a blood test that can measure mold antibodies. This really peaked my interest, because I have a mold allergy, and I have problems with anxiety too...but I never knew there was a connection.

Would you mind providing a little more info on this, and/or do you know of any good websites where one might read up on mold sensitivity, blood tests, etc?

Thanks!

junevarn Rookie
junevarn
Posted
  • Author

Hi Steve-O,

My doctor at Health NOw clinic took some blood and sent it to BioHealth Diagnostics . Immunosciences Lab.8393 Wilshire Blvd Beverly Hills CA 90211 310-6571077. I have a huge number of antibodies to mold and am trying to figure out where I have been exposed to it. I think that is my main problem. (Besides the gluten of course. I just sent three more mold samples of to the lab.

Just got home from Maggianos. Had roast chicken, potatoes and asparagus. Was kind of hard to see my friends eating pasta and cake! :unsure: My husband took me to Peets coffee(my favorite) and got me a large soy latte after dinner. I had 1/2 a gluten free brownie when I got home. Unfortunately I still have a stomach ache from this morning.

Its back to a stricter diet tommorow, no sweets at all. :P

Talk to you soon,

June :D

junevarn Rookie
junevarn
Posted
  • Author

Steve-O,

Just so you know, some molds can be extremely toxic and have been shown to cause death in infants. They definitely have neurotoxic effects. I'll try to find a web site for you.

Thanks all for your support!

June

steve-o Apprentice
steve-o
Posted

June,

Thanks for the info. I'll be seeing an allergist next week, so I'll be sure to ask him about mold testing.

Thanks again,

Steve

  • 2 weeks later...
BellaSara Newbie
BellaSara
Posted

Maggianos is gluten free friendly? That used to be one of my favorite places, I love Italian food and well they make the best. What gluten-free choices do they have? Is it the Chicago one? And what's all this about gluten-free sausage? I've still been eating sausage since going gluten-free and don't think I've had problems.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skbird Contributor
skbird
Posted

I heard Maggianos now is offering rice pasta. You might want to ask about that next time you are there. The closest one to me is 4 hours so I probably won't be going anytime soon.

Anyway, something to ask about.

Stephanie

jenvan Collaborator
jenvan
Posted

Read this post to see the good news on Maggiano's. As far as I know the pasta is corn based. (Which I myself can't tolerate...)

Mold allergies stink. I have one, but haven't ever noticed it to food. Hmmm.

Just started dairy-free too. It is hard. I have gone to a milion places looking for this gluten-free, cf vegan cheese. Who knows what it will taste like once I get a hold of some!! Good luck to you June, hope Maggiano's is good to you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      nothing has changed

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get...
    2. nanny marley
      - nanny marley replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me I tryed lol , another was to have another blood test after...
    3. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      Supplements for those Diagnosed with Celiac Disease

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel. they offered me an endoscopic biopsy ...
    4. par18
      - par18 replied to Woodster991's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Is it gluten?

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test...
    5. SilkieFairy
      - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      IBS-D vs Celiac

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748
    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      nothing has changed

      By asaT · Posted

      Scott, I am mostly asymptomatic. I was diagnosed based on high antibodies, low ferritin (3) and low vitamin D (10). I wasn't able to get in for the biopsy until 3 months after the blood test came back. I was supposed to keep eating gluten during this time. Well why would I continue doing something that I know to be harmful for 3 more months to just get this test? So I did quit gluten and had the biopsy. It was negative for celiacs. I continued gluten free with iron supps and my ferritin came back up to a reasonable, but not great level of around 30-35.  Could there be something else going on? Is there any reason why my antibodies would be high (>80) with a negative biopsy? could me intestines have healed that quickly (3 months)?  I'm having a hard time staying gluten free because I am asymptomatic and i'm wondering about that biopsy. I do have the celiacs gene, and all of the antibody tests have always come back high. I recently had them tested again. Still very high. I am gluten free mostly, but not totally. I will occasionally eat something with gluten, but try to keep to a minimum. It's really hard when the immediate consequences are nil.  with high antibodies, the gene, but a negative biopsy (after 3 months strict gluten-free), do i really have celiacs? please say no. lol. i think i know the answer.  Asa
    • nanny marley
      IBS-D vs Celiac

      By nanny marley · Posted

      I have had a long year of testing unfortunately still not diagnosed , although one thing they definitely agree I'm gluten intolerant, the thing for me I have severe back troubles they wouldnt perform the tests and I couldn't have a full MRI because I'm allergic to the solution , we tryed believe me  I tryed lol , another was to have another blood test after consuming gluten but it makes me so bad I tryed it for only a week, and because I have a trapped sciatic nerve when I get bad bowels it sets that off terribly so I just take it on myself now , I eat a gluten free diet , I'm the best I've ever been , and if I slip I know it so for me i have my own diagnosis  and I act accordingly, sometimes it's not so straight forward for some of us , for the first time in years I can plan to go out , and I have been absorbing my food better , running to the toilet has become occasionally now instead of all the time , i hope you find a solution 🤗
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      I was undiagnosed for decades. My ferritin when checked in 2003 was 3. It never went above 10 in the next 20 years. I was just told to "take iron". I finally requested the TTgIgA test in 2023 when I was well and truly done with the chronic fatigue and feeling awful. My numbers were off the charts on the whole panel.  they offered me an endoscopic biopsy 3 months later, but that i would need to continue eating gluten for it to be accurate. so i quit eating gluten and my intestine had healed by the time i had the biopsy (i'm guessing??). Why else would my TTgIgA be so high if not celiacs? Anyway, your ferritin will rise as your intestine heals and take HEME iron (brand 4 arrows). I took 20mg of this with vitamin c and lactoferrin and my ferritin went up, now sits around 35.  you will feel dramatically better getting your ferritin up, and you can do it orally with the right supplements. I wouldn't get an infusion, you will get as good or better results taking heme iron/vc/lf.  
    • par18
      Is it gluten?

      By par18 · Posted

      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      IBS-D vs Celiac

      By SilkieFairy · Posted

      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.