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Financial Assistance


frogrun

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frogrun Apprentice

Does anyone know of any financial assistance programs to assist with the purchase of gluten free foods? I am exteremly sensative to gluten and I know it runs in families...I have an aunt who I think really needs to be gluten free, but she won't even go see a doctor becuase she says she can't afford the food (she is on disability and receives food stamps). I'm lucky enough to have the ability to spend the extra money to feel better; however, she dosn't have that ability on a fixed SSI income. It seems like she should be able to get help, but I'm not sure where to start looking.


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kareng Grand Master

There have been some threads on here about inexpensive gluten-free foods. Bread, pasta and cookies are probably the most expensive. I don't know what you can get with food stamps but Chex, Some Progresso soups, Thai Kitchen noodles, rice, beans, frozen veggies, etc.

ravenwoodglass Mentor

I rarely buy specialty gluten free foods. I usually get one or two loaves of bread and one package of pizza shells in a month and that is about it. Many foods are naturally gluten free. Rice, beans, veggies and fruit, meats and chicken etc are all naturally gluten free. Being gluten free doesn't have to be expensive. I have a very limited budget, actually less for food than she likely gets in food stamps, and I eat quite well. Fresh meats are not expensive and I get frozen single ingredient veggies and buy some fruits that way. Most canned veggies are safe also. If she has a Wegmans close by they label all their store brand items that are gluten free.

lovegrov Collaborator

There's no program I know of in the U.S. and I'm sure that won't change any time soon. I can afford to buy expensive specialty gluten-free foods but simply choose not to because I don't think it's worth it. I do buy pasta regularly and I get the Nut Thin crackers, but they aren't all that expensive. Every now and then I buy bagels or make something from scratch, but otherwise I just regular old food that others consume and is naturally gluten-free. I've grown to really like corn tortillas for sandwiches (or I just roll ingredients in the meat or lettuce) or mini pizzas. And they're cheap as heck and have a lot fewer calories.

richard

T.H. Community Regular

Oh! I've seen something that might help!

I came across it last month. It's on a website for families with autistic family members who want to go on a gluten free/casein free/soy free diet. And it's aimed at trying this diet for the least amount of money.

So it is a month's menu, including recipes and a grocery list, that can be bought with food stamps/food stamp budget, for a family of 4 (so I imagine your aunt should be able to buy it as well, yes?). Mostly plain, basic ingredient foods. They list brand names that are supposed to be gluten-free, too.

There were a few things that you'd have to be careful of, however, because I don't believe they are as careful about gluten CC as celiacs need to be (they recommend quaker oats, for example, which wouldn't be good for us, obviously). However, having an entire month all set out like that would, I think, be of great value, and I imagine she would be able to find a few substitutes without too much trouble. Like, just grind up rice in a blender until it's powder and cook it, or cook it extra long with milk or juice or broth added, and make rice porridge instead of oatmeal. Things like that, yes?

Anyway, here's the link! It's an article that contains the links to the menu, the grocery list, etc...

Open Original Shared Link Casein-free-diet.talkaboutcuringautism.org/gfcfsf-diet-on-food-stamps.htm

Hope it helps!

T.H. Community Regular

oops, sorry about the bad link!

Open Original Shared Link

kareng Grand Master

Try

Open Original Shared Link Casein-free-diet.talkaboutcuringautism.org/gfcfsf-diet-on-food-stamps.htm

It keeps changing the G F C f to the full word. Enter the above link but change the Words Gluten Free and Casein Free to the initials.


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Jestgar Rising Star

oops, sorry about the bad link!

Open Original Shared Link

the auto fill feature changes the g f c f to Gluten-free Casein-free. You'll have to change them back to work the link.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
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      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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