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Possible Positive?


Milkweedmouth

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Milkweedmouth Newbie

I've been suffering from debilitating GI and general health problems for several months and recently received a "possible positive" for Celiac from my endoscopy biopsy. Since following a gluten free diet for a month I slowly felt better after 2 weeks then accidentally ate sausage with gluten and have since felt absolutely horrible. During the course of the 2 weeks where I was feeling better I was also taking an antibiotic for an ear infection and am now concerned over whether celiac was the right diagnosis (oh to have a concrete answer!) or if its something else! I'm wondering about others experiences with the "possible positive" and if anyone could shed some light on what exactly this rocky diagnosis means. have put message in to doctor and am waiting to hear back. thank you! just want to reclaim my healthy body!


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mushroom Proficient

Hello and welcome to the board.

You will find that this is a place where many of us have to live with the gray - that we cannot find any black or white answers to our questions. But often the gray becomes more black or white with elucidation by others' answers and experiences.

Could you post for us a copy of your results of your biopsy and some of our more experienced posters might be able to clarify or interpret the results a little differently from what your doctor told you (or possibly not?). At any rate, it is worth running it by them. Did you have the celiac panel of blood tests before you had the endoscopy? If so, those results would be of interest too.

There is a saying here on the board that you cannot be a little bit celiac, just as you cannot be a little bit pregnant - you either are or you aren't. But sometimes the interpretations are difficult, I'll admit.

It is common to feel good after a short time on the gluten free diet, and then feel like you have relapsed. Many people go through a period of withdrawal from gluten where they feel horrible. You accidentally ate some gluten and found what many also find, that once you quit eating gluten you react to it more severely than you did previously. This would be particularly true if you were on a course of antibiotics during that time, particularly if you were not supplementing with probiotics, because the antibiotic would kill off whatever good flora you had left in your gut and create horrible digestive problems. Do not give up on the diet because you were on antibiotics - it is just going to take you a while to replenish the good guys in your small intestine because the bad guys are in charge currently. Take some good gluten-free probiotics and stay the course, and you should again start to feel better. :)

waitingtopounce Rookie

Please let us know how it turns out! I'm a newbie too and waiting to get diagnosed!

Good luck! :)

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      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
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