Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Frustrations With People


jasonD2

Recommended Posts

jasonD2 Experienced

I posted on my frustrations with my family when i spent a few days with them for thanksgiving, now Im finding that other people are really getting on my nerves as well.

1. i ate out with my girlfriend last night and they had Gluten Free carrot cake on the menu...my girlfriend read it out to me and then said "oh but it probably has dairy in it so you wont eat it" then rolled her eyes

2. Was at my company's main office this week and had a dinner with colleagues. at the office i was talking to one of the girls in the finance dept who handles my expense reports and i told her it was a rough week and i needed a drink tonite. she said "oh well you shouldnt be drinking with all those food allergies of yours" then she chuckled and walked away

3. My girlfriends 2 friends have been obsessing over what i can eat and cant eat..they keep talking about food they like and all the restaurants they want to go to but then follow it up with "oh well Jason cant eat there so i guess thats off the list"

Meantime my girlfriend is allergic to alcohol and gets palpitations and shortness of breath from it, the girl at my office has an ass the size of Cleveland and one of my girlfriends friends gets violent stomach pains when she eats shellfish, yet im the one being treated like a freak. can anyone explain this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Try not to obsess over it they are the ones being jerks. Ignore them.

MelindaLee Contributor

I posted on my frustrations with my family when i spent a few days with them for thanksgiving, now Im finding that other people are really getting on my nerves as well.

1. i ate out with my girlfriend last night and they had Gluten Free carrot cake on the menu...my girlfriend read it out to me and then said "oh but it probably has dairy in it so you wont eat it" then rolled her eyes

2. Was at my company's main office this week and had a dinner with colleagues. at the office i was talking to one of the girls in the finance dept who handles my expense reports and i told her it was a rough week and i needed a drink tonite. she said "oh well you shouldnt be drinking with all those food allergies of yours" then she chuckled and walked away

3. My girlfriends 2 friends have been obsessing over what i can eat and cant eat..they keep talking about food they like and all the restaurants they want to go to but then follow it up with "oh well Jason cant eat there so i guess thats off the list"

Meantime my girlfriend is allergic to alcohol and gets palpitations and shortness of breath from it, the girl at my office has an ass the size of Cleveland and one of my girlfriends friends gets violent stomach pains when she eats shellfish, yet im the one being treated like a freak. can anyone explain this?

I am guessing from reading your past post that you would never say anything unkind to these people, so I hope it was cathartic to write those things! :D They are not being good friends. I wish they would realize that their frustration with your dietary limitation is only a fraction of the frustration you feel at times. I would chalk up the finance person as ingnorance. But your friends, especially the gluten-free(EDIT:...ooops...that was to be girlfriend, perhaps that was a freudian slip! :lol: )....shame, shame on them! :P

Lincoln Rookie

Yeah, I totally know what you mean, after telling my friend who saw me when I was dropping two kilograms a day that I was diagnosed with coeliac his first reply was "f*ck that I always said if I got that I'd top myself"....... f*cking jerk, and then another one of my friends decided that it was funny that I can't eat chocolate due to lecithin intolerance. The other thing that annoyed me was that after never really liking beer much at all everyone decides to point out to me how much gluten free beer costs, like I care I can still drink rum which is all I ever drank anyway. My advice, tell them that it is not supportive, at least once I did this everyone realised that they had been jerks.

rainer83 Newbie

That sucks, I hope they stop being jerks and realize you didn't sign up for this.

I'm lucky, my parents and my friends have been 100% supportive. The only person that isn't is my sister, whom, I don't get along with as it is, so it's not a surprise. She thinks I'm being difficult, but meh. Some have said some stupid comments like "Oh, if I can't have bread, I'd kill myself." Thanks. I'm flat out honest with people and tell them when something isn't appreciated and since then, the people who used to say stupid comments to me, probably just say it behind my back now :P

mushroom Proficient

I dunno, Jason, could you find a way to say to these people nicely, in a very reasonable fashion: Hey guys, it's hard enough having to deal with this myself without having to deal with your reactions to it too? And then say, Can we change the subject? So that you make them feel like jerks but are not making a big issue out of it.

When I had a cancer diagnosis, I told my husband, "Listen, I am dealing with this. Now I don't want to have to deal with you dealing with it too!! Because that is even harder than my dealing with it!!!" :ph34r::lol:

lynnelise Apprentice

I feel your frustration. I'd say these people probably don't even know how they are coming across with these comments. Anytime we are with a group and deciding where to eat my husband does the really annoyed "you choose, you're the one with special needs" and for some reason I think it comes across as snarky but I don't think he means it to.

The most annoying thing is when my in-laws literally wave food in my face and go on about how good it is and then say "oh no, you can't eat this can you? I forgot." Somehow I don't think they really forgot but who knows maybe they did. Gluten is not on their mind 24/7 like it is mine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.