Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

3 Yr Old Turns Into The Incredible Hulk Help!


sassiskull

Recommended Posts

sassiskull Rookie

My daughter was diagnosed at 2.5 yrs. This was just about a year ago. It is so hard to tell when she has had gluten because she doesnt verbally tell us. I think this is because maybe she is just used to her belly hurting? I do notice things though esp in her behavior. For example she can change from my sweet cuddley daughter to the incredible hulk so fast! The behavior can last for anywhere from 2 days to a week and it is accompanied with constipation & sometimes (not often) vomiting. So my guess is she has gotten gluten. Ive called her GI and they said everyone reacts diff but she is a toddler and toddlers have moods. A friend told me she may have ADHD, but I think this is how she reacts to gluten. Does anyone else's child act out like this? Im in crack down mode at the house, going through things I wouldnt have guessed to find the hidden source.. Bath & Body Works?!?! Also Im wondering if my makeup could be making her sick? She is into the lipsticks and lotions and she has been sneaking into these things recently, we havent changed anything in diet so I am really curious as to what cosmetics, nail polish, lotions, baby wash, shampoos contain gluten. Im thinking I should change to bare Minerals or something. My poor girl :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Katie B Apprentice

Oh dear,

Glad you're trying to get to the bottom of it. I can say from personal experience that I can turn into the Hulk when I'm feeling sick and constipated and I've often thought how difficult it would be to not be able to express this to the ones I love. It really is a terrible feeling!

You might also wish to look into fructose malabsorption, lactose intolerance, and other intolerances if she doesn't feel better with an entirely gluten-free diet.

Hope this helps!

Hang in there!

srall Contributor

My daughter is 7 1/2 and not diagnosed celiac, but we (pedi and I) are calling her gluten/dairy/corn sensitive. I started pulling offending from her foods from her diet mid October so this is new to her. I have been gluten/dairy/corn free since this past spring. Looking back I know I've probably had problems for the past decade and my daughter certainly has had problems since 3 or 4 years old if not earlier.

I thought behavior wise I had a defective kid. Other kids were so calm and able to sit still. My daughter was so wiggly and crazy, never slept, had out of control tantrums. We actually got kicked out of Target once, and you cannot tell me that Target never sees tantrums.

We are still trying to smooth out behaviors and I think she's still very spirited, but now I can tell when it's food. I'm like the above poster in that I'm also intolerant to foods and know they can make you CRAZY and enraged.

I also know that my daughter thinks stomach aches are normal. I've also noticed now she doesn't really recognize the normal urge to just go poop. I think this is from years of feeling gassy. Now when she complains about her gassy stomach I have to tell her to just go to the bathroom to make herself feel better.

As your daughter gets older she'll hopefully have more words to explain what's going on with her. Last Friday night my husband let my daughter eat cotton candy (aka corn syrup delight) and her behavior was insane. She kept asking me why she felt so crazy and said she felt out of control.

So far in my house I haven't switched beauty products and we seem to be doing okay. But I would definitely do a switch if I thought we were being effected. Good luck to you. I'm willing to bet your daughter's behavior is mostly food, just based on what I've seen with my daughter and even myself.

cassP Contributor

agreed- dairy & corn could be messing her up. and of course we all here about celiac kids, and autistic kids avoiding Casein (in dairy) just the same as gluten.

and i dont know about Bare Minerals.. but that Afterglow company i think makes powders like bare minerals- and they're Gluten Free.. and then Joelle makes all the lip stuff gluten free.

good luck... and PART of it may be normal child moods... my 2 yr old neice is starting up with the moods a little

salexander421 Enthusiast

My daughter has not been diagnosed yet but she is definitely gluten intolerant. She is almost 3 and I can totally tell a difference in her moods when she's had gluten. She was irritable, extra whiny, would fly off the handle about the smallest things, clingy, and would not sit still for a second before we went gluten free. After being gluten free she was a little angel. We are now doing a gluten challenge and she is back to the irritable etc. behavior. This whole experience has really made me wonder how many children are misdiagnosed with ADHD when they're really just celiac/gluten intolerant.

BeHappy Apprentice

My daughter (now 3) was a monster until she went gluten free. She was SUCH a hard kid. She would throw crazy tantrums, run around the house like a maniac, jump from crazy heights and laugh when she fell down, never ever slept, would climb up on the counters with a chair and step stool on top of it. We used to joke that she's stronger than my 7 year old. She also had tremendous anxiety. She got kicked out of school because of it too. She's a changed person since she's gone gluten-free. she is SO much calmer. she's happy, and she uses her brain now before doing something dangerous. She started a new school and is doing beautifully (aside from her accidents but they're willing to work with her) The difference in behavior is unimaginable.

SGWhiskers Collaborator

Also Im wondering if my makeup could be making her sick? She is into the lipsticks and lotions and she has been sneaking into these things recently, we havent changed anything in diet so I am really curious as to what cosmetics, nail polish, lotions, baby wash, shampoos contain gluten. Im thinking I should change to bare Minerals or something. My poor girl :(

I hope you find what is making your little girl sick. Almost all nail polish contains gluten. Look for Tocepherol Acetate/Vitamin E in your lotions and other liquids. Sometimes it is derived from wheat, sometimes soy, it could be from other sources. You will have to call the manufacturer to learn the source. Someone has posted a list of cosmetic industry names for wheat, rye, barley, oats in the ingredients of blushes, shadows, etc. I'll see if I can search for it and include it later. If you have Aveeno products, those are not gluten free due to the oats. I think some lipgloss/chapsticks have gluten. I've switched to Burt's bees. Not all of their products are gluten free, but they are well labeled and their tocepherol acetate/vitamin E is gluten free. I also use Everyday Minerals (ordered online). Anything from Unilever will clearly label their wheat, rye, barley, oats in the ingredients. They make Suave and Dove. Cover Girl has the same policy. Not all their products are gluten free, but they will label gluten in plain english.

People will state that since you need to ingest gluten, topical products are safe. I can state from experience, in the early days of gluten free, my blush made me sick from just a few hours of wearing it. I think it was breathing it in while putting it on for a special occassion. I've also been made sick from kissing my little nieces even though their mom's washed their faces. You may find you need to switch your products just so your daughter does not pick up gluten from snuggling you.

Also, look into craft materials. Playdough, fingerpaint, paper mache are all major sources of gluten. There are more, but those are the worst and most common. Most Crayola products are safe. Do a search in the kids forum.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,346
    • Most Online (within 30 mins)
      7,748

    Thomas D Cosgrove
    Newest Member
    Thomas D Cosgrove
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Given your severe symptoms it sounds like you would be much better off going 100% gluten-free!
    • Ginger38
      Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes would not be affected. WRONG. I have tried this several times since I crossed over to full blown diabetes, because I get so sick eating gluten that I end up getting frustrated and go back to gluten free to get some relief. I have a continuous glucose monitor so it is easy to see how my body and glucose are reacting to foods. Unfortunately my suspicions are correct. When I eat gluten-free foods -like Schar breads or rolls, or the crackers, including when I stay in my carb limit,  my sugar spikes and just sits there.. .it won;t even come back down for hours. So in the end it drives my overall glucose and A1C up. I can't really even eat oats or things like that. Cereal is very iffy. Gluten free pizzas, gluten free nuggets, and things like that majorly spike my sugar as well, again, even when staying in my carb limits. I already feel so limited on foods because of the diabetes so of course, when medical people and family and friends are like just go eat gluten, I have been like oh okay - maybe it is all in my head and hey its way cheaper to eat gluten and tastes wayyy better...and then I end up right back where I am today,. MISERABLE, just laying around in pain, spending all day in the bathroom, having accidents related to diarrhea, constant tremors, heart rate issues, chest pain etc. and I forgot about these terrible painful canker sores in my mouth right now, I can't even hardly eat or drink or swallow they hurt so bad.  Not being able to feel like I can eat gluten free is extremely frustrating. I had some great recipes and substitutes for things, and was at a decent place with all that, until the diabetes went crazy out of control, so gluten-free living seems to not be an option for me. However, eating gluten when I truly still believe I am celiac -just misdiagnosed- does NOT seem like a wise idea. I am honestly scared  I am going to get deathly ill from all this or something. I even asked my GI doctor, more like begged, if he would please just label me as celiac and tell me I was for sure (like he did before) so I could get the support I truly need. No such luck. He just keeps saying but your tests were okay 🙄 My family went to an arcade and pizza/pasta buffet yesterday - obviously I didn't want to miss out spending time with my family and my mom spent money paying for my meal/buffet - and I was hungry, so of course I ended up eating pizza and pasta that was not gluten-free, because they don't offer any gluten-free options, and then my brother and others want to ask can you eat that or are you supposed to, and I am like well no, and I will definitely pay for it. They think it is hilarious when I say things and then make comments, like how it is so fun to go out with me especially places like that because I am not supposed to eat but I just do it anyway and say I will pay for it 😥 just seems everywhere I turn it is pointless and I have no support 
    • Wheatwacked
      Just like you cannot be a little pregnant, you cannot be a little Celiac.  Here is an article I found that explains what the numbers mean. Are You Confused About Your Celiac Disease Lab Results? Here is another article about the non traditional symptoms of Celiac Disease. What Are the Symptoms of Celiac Disease? I've been taking 10,000 IU vitamin D3 since 2015.  My blood tests every 3 months for 25(OH)D have never gone above 93 ng/ml, even in the Florida summer.  70 - 100 is the body's natural homeostasis level. Surge of information on benefits of vitamin D "“When combined with supplemental magnesium, vitamin D repletion has dramatically changed my practice,” said McCarthy ... “There are now very few patients with infections, and asthmatics who are coming off medications are staying off of them. ... A lifeguard study that found vitamin D levels in the 70 ng/mL range up to 100 ng/mL (nature’s level) were associated with no adverse effects; ... Colon cancer data showing a reduction in the incidence of new cancer (linear) with postulated 0 point at 75 ng/mL;
    • somethinglikeolivia
      Interesting! Recent labs I had done did show that I was low in Vitamin D so I just began supplementing, it’s hard to tell so soon but it does seem to have a positive affect! Thanks for the input!
    • Scott Adams
      Your frustration and exhaustion are completely valid, and many in the celiac and gluten-sensitive community can relate to the overwhelming confusion you're experiencing. You’re being pulled in different directions by medical advice that seems contradictory, and it’s heartbreaking that your efforts to feel better are met with so many setbacks. Positive TTG IgA antibodies are not something to brush off, especially when combined with your long list of debilitating symptoms that clearly worsen with gluten exposure. A negative biopsy does not necessarily mean you don’t have celiac disease—it’s entirely possible that damage was missed, especially since biopsy results can vary depending on where the samples are taken and how many are collected. It’s also true that celiac disease exists on a spectrum, and many people have serious symptoms and immune responses without yet showing classic biopsy damage. Managing diabetes alongside suspected or confirmed celiac disease is incredibly tricky, especially when healthcare providers don’t work as a team to support your whole health. You shouldn’t be forced to choose between controlling your blood sugar or protecting your gut and immune system. A well-planned gluten-free diet can be both nourishing and diabetes-friendly, especially with guidance from a knowledgeable dietitian who understands both conditions. It’s also deeply concerning that your symptoms—neurological issues, severe fatigue, GI distress, rashes, and more—are being dismissed. You’re not just describing discomfort; you’re describing a level of illness that’s life-altering, and your instincts that something is seriously wrong are absolutely worth trusting. You know your body better than anyone. You deserve a team that listens, believes you, and helps you build a realistic, sustainable path to healing. Whether it’s celiac disease, non-celiac gluten sensitivity, or something else, you have every right to go gluten-free permanently if that’s what makes you feel functional. Many people never get a “perfect” diagnosis but reclaim their health by honoring their own experience and choosing a path of least harm. You are not crazy, you are not weak, and you are not alone. Keep advocating for yourself—you and your daughter both deserve a healthier, more stable life.
×
×
  • Create New...