Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This And A Bit Lost At Times


maxjac

Recommended Posts

maxjac Apprentice

Hi everyone..

i'm new here and since i've been reading some of your posts i feel that i may just belong here..

My son has been going through issues with mood so he was advised to do an elimination diet to see if allergies were an issue.. since he is only 8, i also did the diet so he wouldn't do it alone.. well that has set me on a path of enlightenment and although we have found he has no allergies but is Hypoglycemic.. i myself have learned some major things about myself.

First off for years i've thought i was lactose intolerant ( due to the intense pain when i eat cheese, yogurt, milk, ice cream, etc)

then my doctor tells me my "D" and cramps and bloating and unexplained abdominal pains is IBS

then my stuffy nose, phlegm and headaches are due to allergies

and my tiredness is due to depression...

so since the elimination of most major allergy causing foods, i've discovered that foods made from wheat severely affect every aspect of my life.. from the toilet to looking 3 months pregnant..

I've been very diligent about removing Wheat and it's by products from my diet, but the darn stuff keeps pooping up in the most unusual of places and causing me to buckle over in some crazy pains..

The one day while out with my older children i ate French fries with gravy and cheese ( of course i thought i'd get a bit of a stomach ache but oh well, right)

then i indulged in a piece of cheese cake.. i barely made it out the door of the restaurant and was in the most intense pain of my life.. ( next to child birth)

i drove my oldest son home and sat in his driveway for what seemed like an hour ( i'm sure it was 10 minutes or more)

it felt like a hot poker being driven into my intestines and ripped across my abdomen.. not fun..

this lasted for at least an hour.. not to mention the intense pain in my butt ( not 100% sure what that is about)

anyway.. i have now learned most of what i can not eat, and am frustrated..

I'd like to enjoy a drink with my husband on new years and ( from just ingesting it tonight) realized the Polar ice vodka is a no-no.. ARGH!

i found your site with the information about alcohol and had to say thank you..

this is tougher than i imagined it would be.. so thank you to all that post their experiences for newcomers such as myself.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Welcome to the group! I hope you find all the information you need here. I think that most people don't have trouble with distilled alcohol, so you may find that you can still indulge in that drink with your husband after you've given your intestines time to heal.

maxjac Apprentice

Welcome to the group! I hope you find all the information you need here. I think that most people don't have trouble with distilled alcohol, so you may find that you can still indulge in that drink with your husband after you've given your intestines time to heal.

thank you for the welcome.

I tried drinking the vodka, but it hurt.. i did take a peek around and found that a few are better options then others, so i'll just try a different brand. :)

GFinDC Veteran

You would probably ok with some wine, some tequila, or some potato vodka. Or maybe all three! :D

kareng Grand Master

You would probably ok with some wine, some tequila, or some potato vodka. Or maybe all three! :D

Not all 3 at once! That will make you sick and it has nothing to do with gluten.

Judy3 Contributor

You would probably ok with some wine, some tequila, or some potato vodka. Or maybe all three! :D

sounds like a heck of a time with all three!! Where's the party! LOL :P

maxjac Apprentice

sounds like a heck of a time with all three!! Where's the party! LOL :P

LOL..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 5 weeks later...
made Newbie

I have exactly the same symptoms, and was diagnosed yesterday with a tremendous intolerance to wheat, gluten and lactose. I was suffering these symtoms for so many years without knowing what was the reasons. Now, I need to learn and know first wich natural food is naturally gluten-free. If anybody can help me, I will be very grateful.Thank you.

Alison R Rookie

Naturally gluten free is the easy stuff. Meats, vegetables, and fruit. You have to watch processed meats (lunch meat, sausage, etc) but many are fine. Oils, vinegar (but not malt vinegar.) Rice is fine. I use Adolphus rice because the American Rice Co says it is in fact free of cc issues and I haven't had any problems. I don't have problems with oats, but some do. (Many grains can be an issue not because of the grain but cross contamination with wheat, so be careful.)

Stay out of the center isles of the store as much as possible and you can make tons of gluten free nutrient dense meals with relative ease. This does mean more frequent shopping because this is perishable food.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.