Which Tests To Request?

[momof4gf]

Hi! I had posted last week that my son who has alot of neuro symptoms and responded very well to a gluten free diet was tested for celiac. After a 5 week gluten challenge he tested negative for ttg-iga. Now I hear those with neuro symptoms show up in the AGA. Anyway, I want to request what tests I want done from the doctor. What all should I request? All she tested for was the ttg-iga.

[cassP]

omg, why do they only order 1 test sometimes??

um- well, a more complete order would include: antigliadin antibodies iga & igg, ttg iga & igg, endomysial antibodies, and Total Iga Serum. (if your kid is Iga deficient, then all the Iga tests could be inconclusive/false negative)

there's a newer test i learned about on here with more accuracy: Deamidated Antigliadin Antibodies.

then of course there's also a genetic test which doesnt really give u the complete answer.

also know that there's a 20% false negative rate for Celiacs. it can be tricky, if you look at my results below- the Ema is ONLY SPECIFIC to Celiac, and my low iga probably gave me low ttg numbers... but with a quick glance my docs just gave me a "gluten sensitive" dx. as far as they were concerned at the moment- my tests were inconclusive.

so it's good to get ALL those tests, request a copy for your own records, and learn it all. and of course explore the diet if your child feels better.