Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy; Bad Or Ok?


rockectman

Recommended Posts

rockectman Rookie

Is soy ok for celiacs to eat or is it one of those individual things like oatmeal?

Also, is being gluten sensitive have the same damaging effects on your villi as

a full blown celiac has? I dont get as sick as alot of people on here when glutenated

but I think I could be still getting the same damage as a full blown celiac, of which

I still consider myself a celiac. Sometimes the pain on my side is so bad I can barely

walk straight up.

Thanks.....Derrick


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Soy is gluten-free, but some people, including some celiacs, are unable to eat it. It is one of the FDA's top eight allergens, so it must be clearly disclosed on labels in the USA.

mushroom Proficient

Soy is an individual thing, Derrick. There do seem to be a lot of us who do not tolerate it, but gluten and soy sensitivities do not go hand in hand. Some people think it's bad for everyone because of its hormonal effect but soy is generally considered to be a safe edible.

As for damage from gluten, gluten has different damaging effects in each individual. To say it is worse or not as bad - well, it's hard to quantify. Would you rather have D and/or C with cramps, or gluten ataxia and brain fog, or have it silently attack some other part of your body like your thyroid? Or suddenly end up with lymphoma? You will never know until it shows up what damage it is doing. And it doesn't matter if you have a diagnosis or not, if you are sensitive to it it is harming you.

rockectman Rookie

Thanks for the replies. Love this board, really helps me.

GlutenFreeManna Rising Star

Soy SAUCE is not always gluten free. Some of it is made with wheat (check the label, it has to be disclosed in the US). Soy ALONE does not have gluten in it. However many do react to soy in various ways. I did a poll asking how many people here also avoid soy and the variety of reasons for avoiding it was wide. Some people might have an allergy, some might get the same symptoms from it as they get from glutening, some avoid it because they also have thyroid issues.

rockectman Rookie

Soy SAUCE is not always gluten free. Some of it is made with wheat (check the label, it has to be disclosed in the US). Soy ALONE does not have gluten in it. However many do react to soy in various ways. I did a poll asking how many people here also avoid soy and the variety of reasons for avoiding it was wide. Some people might have an allergy, some might get the same symptoms from it as they get from glutening, some avoid it because they also have thyroid issues.

thanks......soy sauce kills me just like a big mac would. found san j organic tamari sauce, good substitute.

chasbari Apprentice

Soy is an individual thing, Derrick. There do seem to be a lot of us who do not tolerate it, but gluten and soy sensitivities do not go hand in hand. Some people think it's bad for everyone because of its hormonal effect but soy is generally considered to be a safe edible.

It is my understanding that, technically, soy has never been granted official GRAS (generally regarded as safe) status by the FDA. I will have to track down my source on that, though. Maybe Weston Price.. Price Pottinger.. Maybe Mercola.. Can't find it at present.

CS


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

It is my understanding that, technically, soy has never been granted official GRAS (generally regarded as safe) status by the FDA. I will have to track down my source on that, though. Maybe Weston Price.. Price Pottinger.. Maybe Mercola.. Can't find it at present.

CS

A little common sense, please. The GRAS lists are for additives and flavorings, not for whole foods that are obviously edible. I doubt carrots or chicken have been granted official GRAS status either. Anyone trying to invoke lack of GRAS status for a whole food like soy has an axe to grind and if that's the best argument they can come up with, they're in sad shape.

chasbari Apprentice

A little common sense, please. The GRAS lists are for additives and flavorings, not for whole foods that are obviously edible. I doubt carrots or chicken have been granted official GRAS status either. Anyone trying to invoke lack of GRAS status for a whole food like soy has an axe to grind and if that's the best argument they can come up with, they're in sad shape.

I consider myself educated now. Thank you. It is just something that stuck in the back of my mind from my early ventures into understanding gluten-free and all my other problems. One of those statements that, contextually, can be made without fibbing in order to put forth an agenda but isn't really true either. I guess that would mean I don't have GRAS status either.. thank heavens! (I will have to tell my wife I am dangerous now.)

CS

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,848
    • Most Online (within 30 mins)
      7,748

    L.Garcia24
    Newest Member
    L.Garcia24
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.