Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Looks The Same In Her Poop..


norahsmommy

Recommended Posts

norahsmommy Enthusiast

I have endless issues with my 1 yr old daughter and her digestive tract. We have seen an allergist. All he did was a skin prick test that said she is allergic to nothing they tested her for, including wheat and dairy. I am not sure how reliable that is. Anyway he did say to remain gluten free and at her 15 month check we would test some more. Not really sure what tests he is planning. Anyway I have noticed something about my daughters poop. If she is gluten free for a long time, a month or so, her poop will look and smell (sorry) like normal poop. However if she has had gluten her poop will be totally weird. White and clumpy, grey mixed with brown, cream cheese and mustard looking and after that stage I can identify many of the foods she has eaten that day in her poop. Rice will come out in the shape and texture of rice, quinoa will come out that way as well. Grapes come out smooshed but skins still on and raisins will come out looking like slightly plump raisins. Is this in any way normal for those particular foods or is she having trouble digesting foods?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



fakename Contributor

I'll be honest with you, I'm not an expert, but those food don't seem to be coming out normally. Granted that this is coming from an adult but still, I think it is not normal for even a baby. Some cause for concern is presented.

mushroom Proficient

Is this food passing through in normal transit time, or is it going straight through her like a train? Obviously, digestion is not taking place, either because the food is not spending long enough in the gut, or the condition in the gut is not right for digestion - take your choice here, lack of stomach acid, lack of digestive enzymes or..... Defilnitely something to discuss at some length with her doctor, which I am certainly not, but this should not be happening. I have had raw food pass undigested in the past, too, I must admit, but for a baby - usually they have really messy poo, not distinguishable foods :o

beebs Enthusiast

I have endless issues with my 1 yr old daughter and her digestive tract. We have seen an allergist. All he did was a skin prick test that said she is allergic to nothing they tested her for, including wheat and dairy. I am not sure how reliable that is. Anyway he did say to remain gluten free and at her 15 month check we would test some more. Not really sure what tests he is planning. Anyway I have noticed something about my daughters poop. If she is gluten free for a long time, a month or so, her poop will look and smell (sorry) like normal poop. However if she has had gluten her poop will be totally weird. White and clumpy, grey mixed with brown, cream cheese and mustard looking and after that stage I can identify many of the foods she has eaten that day in her poop. Rice will come out in the shape and texture of rice, quinoa will come out that way as well. Grapes come out smooshed but skins still on and raisins will come out looking like slightly plump raisins. Is this in any way normal for those particular foods or is she having trouble digesting foods?

My 17 month old has exactly this problem - he is having an endoscopy for celiac testing on the 20th.

He recently came back on a stool test as having low pancreatic enzymes which cause digestion problems. There can be many reasons for this. Celiac is just one of many. But basically 15 hours after he has eaten something it comes out intact. Not everything mind - but lots of stuff. Rice, grapes, blueberries, beans. His stool is foul full of oil and mucus - makes me sick just thinking about it.

So might be wise to get a stool test done. Get rid of the allergist and get yourself a well respected Paed GI, I think that is probably the best thing.

tarnalberry Community Regular

While that's not abnormal in babies just starting solids, the fact that you're seeing it shift means that there's a problem. I think you're on the right track. Honestly, I'd keep him gluten free, and if you want to try challenging in a few years when he can better communicate, great. But for now, there's nothing inherently unhealthy about the gluten free diet and it sounds like it helps his digestion significantly.

Skylark Collaborator

I have endless issues with my 1 yr old daughter and her digestive tract. We have seen an allergist. All he did was a skin prick test that said she is allergic to nothing they tested her for, including wheat and dairy. I am not sure how reliable that is. Anyway he did say to remain gluten free and at her 15 month check we would test some more. Not really sure what tests he is planning. Anyway I have noticed something about my daughters poop. If she is gluten free for a long time, a month or so, her poop will look and smell (sorry) like normal poop. However if she has had gluten her poop will be totally weird. White and clumpy, grey mixed with brown, cream cheese and mustard looking and after that stage I can identify many of the foods she has eaten that day in her poop. Rice will come out in the shape and texture of rice, quinoa will come out that way as well. Grapes come out smooshed but skins still on and raisins will come out looking like slightly plump raisins. Is this in any way normal for those particular foods or is she having trouble digesting foods?

I would guess that she is celiac. The fact that it takes a month or so gluten-free suggests that she had malabsorption that is healing, especially if you feed her the same foods and they come out as normal stool rather than whole. I used to have that same problem and it went away gluten-free.

Skin pricks don't test for celiac at all. They're for food allergies, and they're known to be somewhat inaccurate. She needs a celiac panel, but it's hard to get positive results in kids. She would also need to be eating gluten for 2-3 months to have a hope of a positive celiac test at all.

FooGirlsMom Rookie

The advice here is quite good. The fact that a gluten-free diet returns things to normal is a sign.

If you still have trouble, you might also have her tested for Cystic Fibrosis. My best friends' girls have it and one presents primarily in the lungs, the other in the intestines (this child is now diabetic). CF causes the body to malabsorb fat (greasy stools). So the kids are thin & have some of the same GI problems as those with Celiac. I'm not saying your child has CF, but CF kids don't digest food either & they have to take very powerful enzymes to be able to digest. As babies, their capsules are opened & sprinkled on applesauce or yogurt to get them down before they are old enough to swallow pills.

What you are describing is cause for concern. As Mushroom said, it can be enzymes or other issues. Not sure this is one you are going to resolve yourself. Keep at the doctor (or switch) until you get someone to listen to you. Being unable to digest food can cause a child not to thrive and if it's something more serious like CF (which can be proven through genetic testing), then immediate & continuing treatment is a must.

Please keep us posted.

FooGirlsMom


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



norahsmommy Enthusiast

I worry because she was a big newborn, 22 inches and 8.1 lbs. My other kids were 6 lbs and 5.11 lbs and 18 and 19 inches long. She was in the 75 percentile for weight until her 9 month check and then fell to the 25 percentile, she was still there at her 1 yr check. They said they don't want to see her fall off her curve any more. I am thinking she is either missing a crucial digestive enzyme, is celiac or both. I vaguely remember bananas leaving visible traces in my other kids poop but it wasn't like I could look at it and it looked like a banana chunk. My youngest daughters food just looks like dirty, slightly worse for wear food she had to eat the previous evening. She has dinner and her morning poop (if she has one) has that food in it. my family doesn't really beleive me that she may be celiac because it takes SO LONG for things to get normal again. All they say is "well she hasn't had gluten for x days so it can't be that!" but I still think it is.

Skylark Collaborator

It's the fact that it takes SO LONG that makes me think it's more likely to be celiac and less likely to be an allergy.

FooGirlsMom Rookie

Ditto with Skylark. At this point, with your daughter not thriving, and having the malabsorption issues, do whatever it takes to get her to normal. Gluten free isn't a dangerous diet. It's still nutritious and healthful. It just lacks certain ingredients. Everyone has diets that lack certain foods even if it's just because they dislike those foods. How many kids won't eat peas or broccoli but will eat green beans? Lots.

Taking her gluten-free, if you get results from it, is information enough. If that doesn't fix it within the time frame you saw before, please follow up with other testing (and possibly genetic as I mentioned before).

Hang in there,

FooGirlsMom

beebs Enthusiast

I worry because she was a big newborn, 22 inches and 8.1 lbs. My other kids were 6 lbs and 5.11 lbs and 18 and 19 inches long. She was in the 75 percentile for weight until her 9 month check and then fell to the 25 percentile, she was still there at her 1 yr check. They said they don't want to see her fall off her curve any more. I am thinking she is either missing a crucial digestive enzyme, is celiac or both. I vaguely remember bananas leaving visible traces in my other kids poop but it wasn't like I could look at it and it looked like a banana chunk. My youngest daughters food just looks like dirty, slightly worse for wear food she had to eat the previous evening. She has dinner and her morning poop (if she has one) has that food in it. my family doesn't really beleive me that she may be celiac because it takes SO LONG for things to get normal again. All they say is "well she hasn't had gluten for x days so it can't be that!" but I still think it is.

Yeah - this is exactly like my son- last nights dinner still intact the next day in his stools. As someone mentioned before the most common reason for pancreatic enzyme deficiency is Cystic Fibrosis. My little one had a sweat test a couple of weeks ago and thankfully was negative. I did some reading on the subject in medical journals and they say as many as 8-30% of untreated children with Celiac can present with Pancreatic enzyme deficiency. So celiac can absolutely cause it as well.

If she seems better gluten free then by all means go for it. I am currently making sure my little one eats as much gluten as possible as he is going for his endo next month - and while it is hard and scary and awful to see him sick all the time - I just want it over with - I want him diagnosed and I want him healthy. Personally I don't want him to have to go through this again at a later date. And not sure what it is like there but here schools and preschools are under no obligation to make sure your kids are gluten free unless they have an official diagnosis. Anyhow -this is just me - and I totally understand why others would leave testing and just go gluten free. The only thing is that I think if her poos are like that then she should deffo be tested for pancreatic enzyme deficiency - its just a stool test nothing invasive- and if its positive for that she will have a sweat test to rule out CF. Not trying to scare you at all - but best to rule it out I reckon.

Good luck!

  • 2 months later...
brendab Contributor

The bananas in the poop reminded me of my son who once had a gluten reaction where he ate something with gluten in it along side of a banana and within a few hours he had a REALLY horrible movement with chunks of banana's in it. I have NEVER seen banana come out the other end before! I still suspect he is celiac even though they cannot prove it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      High TTG-IgG and Normal TTG-IgA

    2. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      High TTG-IgG and Normal TTG-IgA

    3. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    4. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    5. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    yooperjb
    Newest Member
    yooperjb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.