Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

More Cross-Contamination Advice


HonoluluVic

Recommended Posts

HonoluluVic Newbie

Hi, fellow travelers,

I have finally been on an upward health swing since being diagnosed in August and also finding I'm allergic to soy, peanuts, all dairy, eggs, pineapple, asparagus, besides of course all things gluten. I recently discovered that high fructose corn syrup will also set off bad reactions.

When I was diagnosed, since I'm the only cook in the house, I turned the kitchen into an almost gluten free environment. As long as I was cooking, there was no gluten; however my BF and his daughter continued to cook gluten pastas, and we shared toasters, microwaves, pans, mixing bowls, et cetera. Things have taken a nightmarish turn this week, and I finally realized why. My BF does a lot of cooking for the holidays, giving away sweet breads to all of this family and friends. He's not the cleanest in the kitchen, and the entire place has been contaminated daily with gluten flour particles in the air, on the floor, on the counters, the mixing bowls, et cetera. When I finally figured out why I have been so deathly ill this week and talked to him about it, he immediately nay-sayed it and said that it was ridiculous to think that his baking has had anything to do with my sickness. Since this is a week that I have only eaten things that I have made from scratch with organic foods, I know that I haven't ingested any other potential allergens.

What does one do when loved ones won't get on board? This is his house and he flatly refuses to consider making a gluten-free area or not using my kitchen ware. (I'm a good cook and I have a lot of special and high quality cookware, et cetera, and he and his daughter prefer to use them over the inferior stuff they owned prior to me.) Nothing I say makes a difference, even though they see clearly that I'm very sick, have lost five pounds this week, they aren't willing to make any changes in the way the kitchen is used. Does anyone have any articles I can show them? Moving out is the next step, but I'd like to try to save this relationship if possible!

Thanks, everyone, and Mele Kalikimaka!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

If you can't come to some sort of compromise, do you have a place of your own you can move back to in an attempt to get your health back and still try to salvage the relationship? Also I noticed you mentioned you were sharing a toaster. It is an absolute must you have your own toaster. If you use the old one you are contaminiting your gluten free bread. You also need a new strainer just for gluten-free pasta and may need to replace any scratched cookwear that could harbor gluten. Getting your own cutting boards is recomended too. Yes you can get sick from him doing alot of baking. You could be inhaling the flour particles in the air or once it settles on the counter you could get cc'd that way too. If he isn't all that careful I would be worried about him ccing the other ingredients like the sugar and other baking ingredients. I wouldn't use them.

Skylark Collaborator

Sadly, most of the articles I know of don't talk about sensitivity to cross-contamination. Moving out doesn't mean giving up the relationship, although I have to wonder about a relationship where your BF essentially says "this is my house and I'm going to gluten up the kitchen if I want". You can't continue in a relationship where your partner does not care about your health. I don't know what you call it, but it sure isn't my idea of love. I was in a devastatingly bad marriage and one of the many signs was my ex-husband's refusal to find new homes for his cats when doctors told us both that they were causing my asthma.

tarnalberry Community Regular

You can't continue in a relationship where your partner does not care about your health.

This.

Clearly I don't mean "dump him now", but rather, if you can't get him to care about your health, well... does he care about you?

Will he go with you to the doctor? Will he talk to a counselor about the issue? Will he discuss it at all?

cyberprof Enthusiast

HonoluluVic, sorry you're having problems even after you figured out this stuff.

I share a kitchen with my gluten-eating daughter when she's home from college. I keep separate utensiles as much as possible. Get your own:

Non-stick skillet (or use regular steel instead of non-stick)

Spatulas and pancake flippers

Toaster

Hide these or keep them in a non-accessible spot when you're not using them. Get them in a different color. For example, in my kitchen anything red is gluten-free.

Use non-absorbing versions of:

Colander - steel

pasta lifter - steel

strainer - steel

measuring cup - glass (instead of plastic)

measuring cup/spoons - steel (instead of plastic)

Mixing bowl - glass or steel (instead of plastic)

Pots and pans - steel

Use glass/pyrex food storage boxes instead of tupperware.

For cutting board, keep your own or use parchment paper on gluteny plastic/wood boards. Don't share wooden spoons, bowls, boards.

For the above non-absorbing things, a good dishwasher and/or hand washing (very carefully) should make you be able to share these.

I can't help you any with the flour in the air. I told my hubby that if he wanted to use flour to make a from-scratch pie, he had to do it in another house but if he wanted to use pre-made roll-out crusts, he could do that at home. (Pre-celiac, we made amazing pie crusts together...he made the crust and rolled it out and I made it look pretty and did the filling and baking. This was a big loss for him. He's not over it and makes a big deal about it each T-day.) He doesn't eat other gluten anymore, other than holidays.

If your BF is only doing this once a year, you may be able to save the relationship by minimizing the amount of time that you spend at home and/or going to a friend's house for the duration.

But it's a bad sign if he sees you sick and doesn't care. Sorry.

cyberprof Enthusiast

Oh, and I never put anything in the microwave uncovered. I use a lid, a cover, plastic wrap or something - every single time.

cap6 Enthusiast

ok - I'm dumb. I clean the micro plate but don't cover stuff. Why should I?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HonoluluVic Newbie

Thank you all so much! "Our" kitchen is too small to have a dedicated gluten-free area, even a cabinet, but I am buying a big crate and putting all of my things in it and simply removing it from the kitchen. Now they think I'm selfish, and I can't seem to make them understand that there is a correlation between me being sick and their using my stuff to make gluten-filled goodies. One further question, is there any way to clean my good wooden cutting board? My BF was using it to cut his just-out-of-the-oven bread and I'm wondering if I should just let it go and buy a new one?

Thanks for the practical advice as well as the relationship advice. It has been really heartbreaking to have my BF tell me I'm just paranoid or I'm "taking things too far" when I talk about cross-contamination. And no, he wouldn't go to my doctor, he thinks she's going "over-board". Which is, I guess, my next step, pulling anchor and moving to a place where I can be well!

Roda Rising Star

IMHO hun, I would cut my losses with the cutting board and get a new one.

kareng Grand Master

Thank you all so much! "Our" kitchen is too small to have a dedicated gluten-free area, even a cabinet, but I am buying a big crate and putting all of my things in it and simply removing it from the kitchen. Now they think I'm selfish, and I can't seem to make them understand that there is a correlation between me being sick and their using my stuff to make gluten-filled goodies. One further question, is there any way to clean my good wooden cutting board? My BF was using it to cut his just-out-of-the-oven bread and I'm wondering if I should just let it go and buy a new one?

Thanks for the practical advice as well as the relationship advice. It has been really heartbreaking to have my BF tell me I'm just paranoid or I'm "taking things too far" when I talk about cross-contamination. And no, he wouldn't go to my doctor, he thinks she's going "over-board". Which is, I guess, my next step, pulling anchor and moving to a place where I can be well!

Bummer about the BF. They have these really thin plastic cutting boards that don't take up much space. And if the gluten eaters get ahold of it, they don't cost much.. I got some 2 for $1 at the Dollar Store. I also use them to put on the counter when fixing food. Might want to get a "camp box" that you can lock.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.