Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Roanoke Va Habitual Gluten Offender


Super Gluten Man

Recommended Posts

Super Gluten Man Newbie

Hi, since I was reading info on this site for the last couple hours I thought I would say hi. Any SW Virginians out there? Was Buena Vista the school in the other VA post? Ok I have been diagnosed for 2 years, the first 2-4 months total denial or action taken on my part. Then after reading this site about it being all or nothing I quit all gluten and lost 20 to 30 pounds. I was 6'4" at 190 so this wasn't a good thing. Started discovering food that I could eat and gained most of it back. Found Red Bridge beer from anheiser bush but its $9 a six-pack. Found rum to hard to control. Started cheating with my kids home made cup cakes, then some pizza, donuts at work were hard to say no to, on and on.....till...yes another flare up in my lower abdomen, a little blood and a lot of pain. Started X-Mas afternoon. So I said "I will never eat gluten again" (again). There is a lot of stuff on this web site to make you stay off it. Like cancer, sleep problems, thyroid problems, .....Basically a shorter life span. Oh yea I was suppose to take some supplements too (iron for one). I thought I was always just being lazy but now it really looks like my lack of getting nutrients is my problem (like Iron)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I'm in Roanoke.

richard

  • 4 months later...
agrabler Newbie

Hi, since I was reading info on this site for the last couple hours I thought I would say hi. Any SW Virginians out there? Was Buena Vista the school in the other VA post? Ok I have been diagnosed for 2 years, the first 2-4 months total denial or action taken on my part. Then after reading this site about it being all or nothing I quit all gluten and lost 20 to 30 pounds. I was 6'4" at 190 so this wasn't a good thing. Started discovering food that I could eat and gained most of it back. Found Red Bridge beer from anheiser bush but its $9 a six-pack. Found rum to hard to control. Started cheating with my kids home made cup cakes, then some pizza, donuts at work were hard to say no to, on and on.....till...yes another flare up in my lower abdomen, a little blood and a lot of pain. Started X-Mas afternoon. So I said "I will never eat gluten again" (again). There is a lot of stuff on this web site to make you stay off it. Like cancer, sleep problems, thyroid problems, .....Basically a shorter life span. Oh yea I was suppose to take some supplements too (iron for one). I thought I was always just being lazy but now it really looks like my lack of getting nutrients is my problem (like Iron)

lovegrov Collaborator

Hi Amanda,

I live in the southwest part of Roanoke. BTW, just found out that the Co-op on Grandin does some gluten-free baking now.

richard

agrabler Newbie

Hi Amanda,

I live in the southwest part of Roanoke. BTW, just found out that the Co-op on Grandin does some gluten-free baking now.

richard

My parents live in southwest Roanoke too, so I'm definitely familiar with the area! I love the Co-Op. I haven't sampled their baking though, because I am very sensitive to the smallest amount of gluten. Knowing that they cook regular gluteny products there as well is too risky with the way flour gets in the air. I even get sick if I drink coffee at Dunkin Donuts because of how the flour particles get all over everything like the cups. :(

Not that I have any financial resources to do so, but I would love to open up a small gluten-free coffee-shop/cafe/bookstore!

lovegrov Collaborator

I'm not as sensitive as you. I can't tell you their exact precautions, but I know that one of the long-timers there, Cherie, has celiac, so she would know an approximate danger level. She's not the baker, but I imagine she was involved in setting this up.

We're fairly near PH.

richard

agrabler Newbie

I'm not as sensitive as you. I can't tell you their exact precautions, but I know that one of the long-timers there, Cherie, has celiac, so she would know an approximate danger level. She's not the baker, but I imagine she was involved in setting this up.

We're fairly near PH.

richard

I spoke with Cherie, once, I believe. Nice lady.

I wrote to the co-op and they told me what they do. I decided I couldn't risk it. I'm finally able to eat things I couldn't eat for years (like onions, garlic, other spicy foods), and don't want to lose that again. We almost always stop by the Co-Op when we're in Roanoke though, to purchase ingredients or foods we can't get in Abingdon and/or Earth Fare over in Johnson City, TN.

I know the PH area, more or less. I have a friend that lives close enough to PH to walk to their track when the school isn't using it. It's a pretty area over there. My parents are closer to CS Middle and Bent Mountain, but not far. When I'm up there, it only takes me a few minutes to get to my friend's house.

I really wish there was a Wegman's in reasonable driving distance. We were in PA last year on vacation, and the Wegman's near Scranton was just a treasure trove of gluten-free goodness. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    2. - par18 replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

    4. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,339
    • Most Online (within 30 mins)
      7,748

    Teresa King
    Newest Member
    Teresa King
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.