Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Leap Mrt Test Results


Jenny Leigh

Recommended Posts

Jenny Leigh Rookie

I thought I would start a new topic, as my original thread is getting very long winded and this topic possibly deserves it.

Here is my original thread if you would like to view my story, undiagnosed symptoms, and many doctor failures:

I will make one more post on that thread leaving a link to this one in case someone needs it to follow along.

Before I go over this I would like to point out that I have been STRICTLY gluten free for 4 weeks (including body products). Yesterday and today I binged on gluten and have not had a single negative impact so far... leading me to think gluten free may not be my path.

LEAP MRT test:

It is by Signet Diagnostics, and is a blood test measuring food sensitivities (not allergies, and not intolerances... so Celiac and gluten intolerance it wouldn't pick up) to 150 different foods. Food sensitivities give a delayed negative impact. Basically, I'd eat shrimp today and get D tomorrow... The test is new, and I'm sure not devoid of controversy. Going to work with a dietitian based on these results for an elimination and rotation diet. Apparently food sensitivities can change based on how much you consume 1 food.

Test Results:

Reactive to the following:

- Sodium Metabisulfite

- Sodium Sulfite

- FD&C Green #3

- Mint

- Peach

- Tilapia

Moderately Reactive to the following... worst in italics:

- Fructose, Lecithin, Ibuprophen, Salicylic Acid, Cottage Cheese, Cow's Milk, Cane Sugar, Banana, Mushroom, Green Pepper, Buckwheat, Millet, Barley, Rice, Shrimp, Egg, Lamb, Turkey, Cola Nut, Baker's Yeast, Lentil, Peanut, Cashew, Pecan, Pistachio, Almond, Lima Bean

My thoughts on the results:

First off, I have felt better since going gluten free, but the lack of any negative impact from my gluten binge has me thrown.

Okay, the milk and shrimp thing I understand. I've had reactions to those specifically. The sulfites I get, because I've become intolerant of wine :( . Now, gluten free has *forced* me off of all processed foods, so almost removing sulfites from my diet aside from the raisins... maybe that is why I feel better?

MINT??? Are you serious???? I would have *never* even guessed that. Considering toothpaste and mouthwash I consume mint every day. Peaches and tilapia I very rarely consume and can't think of a specific reaction to them, but that was before I was paying attention to food.

I begin the recommended elimination diet on 1/5/11. If there is enough interest in this topic, I will update you as to the results of my diet. I *must* gain at least 25 pounds for me to consider myself back to normal. So there is my new years resolution...

Let me know what you think of this, and if you want any updates. I'm going to talk to the dietitian about going back on gluten free and see what she thinks, but I'm beginning to think I don't actually have a gluten intolerance... I remain unconvinced of everything though... :/ See my profile page for results of every blood test I have had done in the past year to figure this out if you have any questions about previous tests.

Happy new year and may this year be better than the last!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I don't know anything about those blood tests so I won't address those. What you are doing by binging on gluten is a challenge. Keep it up daily for a week. It can take up to a week for a reaction to appear. Also keep in mind that symptoms that are not tummy related may appear before the upset stomach, fatigue, depression or anxiety, muscle and joint pain etc. may appear first. It took 3 days back on gluten before I reacted and my doctor said that was normal and was why he told me to only add one item at a time for a full week on my elimination diet.

Skylark Collaborator

LEAP is definitely not devoid of controversy. As far as I know, LEAP will not pick up celiac disease. They are not looking at the right cells.

I can eat a little wheat sometimes with no obvious consequences; other times I react to ridiculously low amounts of CC. It's not predictable but I feel dramatically better on a very strict gluten-free diet. I would not take a lack of reaction to one day of eating wheat as evidence either way for celiac. You need to go back to a full gluten diet for a few weeks and see if the symptoms that went away return if you are not convinced gluten is an issue. Remember that gluten has more subtle effects on people than only celiac. Some people are sensitive to wheat germ agglutinin and others are sensitive to opiod-like peptides present in gluten and casein.

If I were you, I would look at the RPAH failsafe diet for food chemical sensitivity rather than unproven tests like LEAP.

Open Original Shared Link

Jenny Leigh Rookie

I don't know anything about those blood tests so I won't address those. What you are doing by binging on gluten is a challenge. Keep it up daily for a week. It can take up to a week for a reaction to appear. Also keep in mind that symptoms that are not tummy related may appear before the upset stomach, fatigue, depression or anxiety, muscle and joint pain etc. may appear first. It took 3 days back on gluten before I reacted and my doctor said that was normal and was why he told me to only add one item at a time for a full week on my elimination diet.

I've started to feel a bit down today... tired, mild headache, grumpy, jumpy vision. It isn't a strong enough reaction yet for me to think it is truly gluten (yet). I'll continue with the gluten challenge until Tuesday night, when my diet with the dietitian begins. I'll speak to her about it.

LEAP is definitely not devoid of controversy. As far as I know, LEAP will not pick up celiac disease. They are not looking at the right cells.

I can eat a little wheat sometimes with no obvious consequences; other times I react to ridiculously low amounts of CC. It's not predictable but I feel dramatically better on a very strict gluten-free diet. I would not take a lack of reaction to one day of eating wheat as evidence either way for celiac. You need to go back to a full gluten diet for a few weeks and see if the symptoms that went away return if you are not convinced gluten is an issue. Remember that gluten has more subtle effects on people than only celiac. Some people are sensitive to wheat germ agglutinin and others are sensitive to opiod-like peptides present in gluten and casein.

If I were you, I would look at the RPAH failsafe diet for food chemical sensitivity rather than unproven tests like LEAP.

Open Original Shared Link

Yes, the MRT will most certainly NOT diagnosis anyone with gluten intolerance or Celiac... so it is absolutely not a substitute for a test through a gluten free diet and then a gluten challenge. I took this test to see if there was anything else going on, so I could better tailor an elimination/rotation diet from it. Considering I *have* felt better since being gluten free, I will probably dive back into gluten free once I am done with this gluten challenge and working with the dietitian.

I had also been casein free for about 3 weeks and started eating yogurt again this weekend as well. Still waiting on a significant response from both of these proteins.

Thank you for the link! I'll definitely check it out because I have noticed I've become annoyed by scented and cleaning products recently.

Since I've already paid for the MRT testing and gotten some results, I'm going to run with it for now. I know that it will not catch everything... so if my initial few weeks of elimination based on it are not cutting it, then I will go more strict with the RPAH elimination. Wish I had found that RPAH diet earlier...

Thank you both for your responses! Sure hope this all works out!

ravenwoodglass Mentor

You mention that you are also adding in yogurt at the same time as you are doing the gluten challenge. That is not a real good idea as it may make it hard to tell which you are reacting to. It is best to challenge with one item at a time to avoid confusion. Also be aware that not all dietians are knowledgeable about gluten and celiac disease. Yours may be but be prepared in case he or she isn't.

jorge0464 Rookie

Hi girl,

If I were you, I will send an stool sample to Enterolab to be tested. It is rare Enterolab will give you a false negative. Another thing you should look at is an intestinal fungal overgrowth. (candida) It is thought candida can trigger Celiac disease or gluten intolerance. An intestinal fungal overgrowth can cause a fall of health problems.

Jorge.

Skylark Collaborator

Enterolab is as poorly validated as LEAP.

Good luck with the elimination and RPAH diet. I really hope you figure out what is causing your troubles!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 replied to JoJo0611's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      CT with contrast.

    2. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      2

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,399
    • Most Online (within 30 mins)
      7,748

    Hoyt Marquis
    Newest Member
    Hoyt Marquis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • JoJo0611
      I didn’t know there were different types of CT. I’m not sure which I had. It just said CT scan with contrast. 
    • Scott Adams
    • Scott Adams
      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
    • Clear2me
      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.