Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Handling Brain Fog/fatigue


India

Recommended Posts

India Contributor

Hello all,

I've just lost another day to that foggy, can't-think-straight, want-to-stop-and-nap feeling. It's especially frustrating because things had been better recently and I've starting to make new plans. I'm really stuck at present though, as I just can't make progress on the proposal I'm working on :(

So - as I know this is something that affects several people on here, I wonder if you can offer any practical suggestions for dealing with this, especially for getting on with work/study? My main technique is to leave my computer for a while to do something more practical to rest my brain and try to wake up my body. Nothing is working this week though.

FYI, I'm strictly gluten-free and I take B12 sublingual supplements. My thyroid tests have been fine and I'm trying my best to get lots of sleep and exercise.

Many thanks and good wishes,

India


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



FooGirlsMom Rookie

Sorry to hear you're feeling poorly :(

I see you do the FODMAPS diet. Have you ever tried going strictly low carb? Like meat & green vegetables type of low carb? I'm about to go there myself. I think until my intestines heal I'm going to have to go back to an Atkins type of diet. I seem to be having brain fog & energy reduction due to all carbs now. If you need a low carb diet I can suggest either the Induction version of Atkins (with probably not so much focus on the carb count - eat the veggies you want) or the Protein Power diet.

I hope you feel better soon.

FooGirlsMom

eatmeat4good Enthusiast

I'm dealing with some fog, fatigue, depression.

I think I will try that Foogirls mom....yer pretty smart.

Thanks for that suggestion. :)

AZGirl Rookie

For years I have noticed that my brain doesn't work like it used to. I thought that gluten free was going to be my answer, but I still struggle with slow thinking and not being able to manipulate complex ideas in my head...It is so frustrating!!! I hate to say it, but I feel like I am getting dumber. In meetings I listen to others speak and project ideas and all I can think is "that used to be me". Now, I am more support material than I am idea girl.

I do have to say that going gluten free has definitely helped with brain fog; I still have good days and bad days. I probably will never be where I want to be, but as long as I can still be productive I will thank my lucky stars.

Bottom line; I'm interested in suggestions submitted to the original post, as well.

MegRie Rookie

I hate the brain fog thing- and you end up sounding like a crazy person when you try to explain it. I have noticed that every time I experience symptoms like this I have been glutended. For example I had been feeling great, then all of a sudden lost my energy and felt nauseous. I didn't think I was eating any gluten, but then I found out that pre-shredded cheese often has anti-clumping agents in it made from wheat. If I start feeling bad I try to pacloser attention to what proccessed food I've been eating and research it further.

I would be very leery of special diets like the Adkins diet unless you talk with your Dr. about it first. Fruits and veggies to amazing things for your body and by eating a variety of them you are more likely to reap the benefits. The Adkins diet, unfortunately, cuts out a lot of natural goodness from fruits- BUT it does help to recognize that there are good carbs and bad carbs and stay away from the bad.

eatmeat4good Enthusiast

I thought the cheese would have to be labeled if it contained wheat ingredients. I use shredded cheese all the time. Curious.

thleensd Enthusiast

I totally hear you on the brain fog thing. It's been two years gluten-free for me, and I'm still pulling out of it. The good news is, I have more and more hours of clear thinking as time marches on!

What has helped me:

Sleep. I know it's not always possible, but it's your body's healing time. Find a way to get more.

Water.

Veggie Smoothies (Blendtech blender... throw in carrots, celery, frozen grapes, a bit of juice and water).

B-12 AND a good multi (that contains coQ10 and quercetin). I feel a NOTICEABLE difference when my multi kicks in daily.

And, Floravital (by floradix). The stuff is crazy expensive... we call it "crack" at my house, because when I take it, I have reasonable energy, when I don't take it for a few days, I drag. Totally addicted.

Be careful, though, if you try the floravital, there's an almost IDENTICAL package, except for the writing that contains gluten. BLEH. The stuff if B vitamins and iron in a liquid form... so it absorbs quickly and well.

Wheat, by law, must be labeled in the US (but not necessarily "processed on equipment")

Brain fog sucks.

Good luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

I thought the cheese would have to be labeled if it contained wheat ingredients. I use shredded cheese all the time. Curious.

No one has ever found shredded cheese that's been shown to have wheat. I think this is an old wives' tale.

eatmeat4good Enthusiast

Thank you so much Jestgar. I'm relieved.

MegRie Rookie

I thought the cheese would have to be labeled if it contained wheat ingredients. I use shredded cheese all the time. Curious.

"Pre-shredded cheese, frozen french fries, teriyaki sauce, salad dressings and soy sauce may all contain wheat or gluten, according to the Food Allergy Gourmet"

Open Original Shared Link

Open Original Shared Link free.com/celiac_disease_food_additives.htm This site says that all anti-caking agents are now gluten free. I know I read something about the preshredded cheese, but I can't find it. I don't usually believe things unless they com from a reliable source, but like I said I can't find it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      Supplements for those Diagnosed with Celiac Disease

    3. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - cristiana replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      21

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
    • cristiana
      Thank you for your post, @nanny marley It is interesting what you say about 'It's OK not to sleep'. Worrying about sleeping only makes it much harder to sleep.  One of my relatives is an insomniac and I am sure that is part of the problem.  Whereas I once had a neighbour who, if she couldn't sleep, would simply get up again, make a cup of tea, read, do a sudoku or some other small task, and then go back to bed when she felt sleepy again.  I can't think it did her any harm - she lived  well into her nineties. Last week I decided to try a Floradix Magnesium supplement which seems to be helping me to sleep better.  It is a liquid magnesium supplement, so easy to take.  It is gluten free (unlike the Floradix iron supplement).  Might be worth a try.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.